Public Act 098-0891
 
HB4035 EnrolledLRB098 15592 RPM 50623 b

    AN ACT concerning health.
 
    Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
 
    Section 5. The Illinois Health Statistics Act is amended by
changing Section 4 as follows:
 
    (410 ILCS 520/4)  (from Ch. 111 1/2, par. 5604)
    Sec. 4. (a) In carrying out the purposes of this Act, the
Department may:
        (1) Collect and maintain health data on:
            (i) The extent, nature, and impact of illness,
        including factors relating to obesity and disability
        on the population of the State;
            (ii) The determinants of health and health hazards
        including obesity;
            (iii) Health resources, including the extent of
        available manpower and resources;
            (iv) Utilization of health care;
            (v) Health care costs and financing; and
            (vi) Other health or health-related matters; and .
            (vii) The connection between the long-term effects
        of childhood cancer and the original cancer diagnosis
        and treatment.
        (2) Undertake and support research, demonstrations,
    and evaluations respecting new or improved methods for
    obtaining current data on the matters referred to in
    subparagraph (1).
    (b) The Department may collect health data under authority
granted by any unit of local government and on behalf of other
governmental or not-for-profit organizations, including data
collected by local schools and the State Board of Education
relating to obesity on the health examination form required
pursuant to Section 27-8.1 of the School Code. The data shall
be de-identified and aggregated pursuant to rules promulgated
by the Department to prevent disclosure of personal identifying
information.
    (c) The Department shall collect data only on a voluntary
basis from individuals and organizations, except when there is
specific legal authority to compel the mandatory reporting of
the health data so requested. In making any collection of
health data from an individual or organization the Department
must give to such individual or organization a written
statement which states:
        (1) Whether the individual or organization is required
    to respond, and any sanctions for noncompliance;
        (2) The purposes for which the health data are being
    collected; and
        (3) In the case of any disclosure of identifiable
    health data for other than research and statistical
    purposes, the items to be disclosed, to whom the data are
    to be disclosed and the purposes for which the data are to
    be disclosed.
    (d) Except as provided in Section 5, no health data
obtained in the course of activities undertaken or supported
under this Act may be used for any purpose other than the
purpose for which they were supplied or for which the
individual or organization described in the data has otherwise
consented.
    (e) The Department shall take such actions as may be
necessary to assure that statistics developed under this Act
are of high quality, timely, comprehensive, as well as
specific, standardized and adequately analyzed and indexed.
    (f) The Department shall take such action as is appropriate
to effect the coordination of health data activities, including
health data specifically relating to obesity collected
pursuant to Section 27-8.1 of the School Code, within the State
to eliminate unnecessary duplication of data collection and
maximize the usefulness of data collected.
    (g) The Department shall (1) participate with state, local
and federal agencies in the design and implementation of a
cooperative system for producing comparable and uniform health
information and statistics at the federal, state, and local
levels; and (2) undertake and support research, development,
demonstrations, and evaluations respecting such cooperative
system.
(Source: P.A. 93-966, eff. 1-1-05.)