Public Act 099-0320
 
SB1684 EnrolledLRB099 10340 JLK 30567 b

    AN ACT concerning State government.
 
    Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
 
    Section 5. The Department of Public Health Powers and
Duties Law of the Civil Administrative Code of Illinois is
amended by adding Sections 2310-676 and 2310-677 as follows:
 
    (20 ILCS 2310/2310-676 new)
    Sec. 2310-676. Advisory council on pediatric autoimmune
neuropsychiatric disorder associated with streptococcal
infections and pediatric acute neuropsychiatric syndrome.
    (a) There is established an advisory council on pediatric
autoimmune neuropsychiatric disorder associated with
streptococcal infections and pediatric acute neuropsychiatric
syndrome to advise the Director of Public Health on research,
diagnosis, treatment, and education relating to the disorder
and syndrome.
    (b) The advisory council shall consist of the following
members, who shall be appointed by the Director of Public
Health within 60 days after the effective date of this
amendatory Act of the 99th General Assembly:
        (1) An immunologist licensed and practicing in this
    State who has experience treating persons with pediatric
    autoimmune neuropsychiatric disorder associated with
    streptococcal infections and pediatric acute
    neuropsychiatric syndrome and the use of intravenous
    immunoglobulin.
        (2) A health care provider licensed and practicing in
    this State who has expertise in treating persons with
    pediatric autoimmune neuropsychiatric disorder associated
    with streptococcal infections and pediatric acute
    neuropsychiatric syndrome and autism.
        (3) A representative of PANDAS/PANS Advocacy &
    Support.
        (4) An osteopathic physician licensed and practicing
    in this State who has experience treating persons with
    pediatric autoimmune neuropsychiatric disorder associated
    with streptococcal infections and pediatric acute
    neuropsychiatric syndrome.
        (5) A medical researcher with experience conducting
    research concerning pediatric autoimmune neuropsychiatric
    disorder associated with streptococcal infections,
    pediatric acute neuropsychiatric syndrome,
    obsessive-compulsive disorder, tic disorder, and other
    neurological disorders.
        (6) A certified dietitian-nutritionist practicing in
    this State who provides services to children with autism
    spectrum disorder, attention-deficit hyperactivity
    disorder, and other neuro-developmental conditions.
        (7) A representative of a professional organization in
    this State for school psychologists.
        (8) A child psychiatrist who has experience treating
    persons with pediatric autoimmune neuropsychiatric
    disorder associated with streptococcal infections and
    pediatric acute neuropsychiatric syndrome.
        (9) A representative of a professional organization in
    this State for school nurses.
        (10) A pediatrician who has experience treating
    persons with pediatric autoimmune neuropsychiatric
    disorder associated with streptococcal infections and
    pediatric acute neuropsychiatric syndrome.
        (11) A representative of an organization focused on
    autism.
        (12) A parent with a child who has been diagnosed with
    pediatric autoimmune neuropsychiatric disorder associated
    with streptococcal infections or pediatric acute
    neuropsychiatric syndrome and autism.
        (13) A social worker licensed and practicing in this
    State.
        (14) A representative of the Special Education
    Services division of the State Board of Education.
        (15) One member of the General Assembly appointed by
    the Speaker of the House of Representatives.
        (16) One member of the General Assembly appointed by
    the President of the Senate.
        (17) One member of the General Assembly appointed by
    the Minority Leader of the House of Representatives.
        (18) One member of the General Assembly appointed by
    the Minority Leader of the Senate.
    (c) The Director of Public Health, or his or her designee,
shall be an ex-officio, nonvoting member and shall attend all
meetings of the advisory council. Any member of the advisory
council appointed under this Section may be a member General
Assembly. Members shall receive no compensation for their
services.
    (d) The Director of Public Health shall schedule the first
meeting of the advisory council, which shall be held not later
than 90 days after the effective date of this amendatory Act of
the 99th General Assembly. A majority of the council members
shall constitute a quorum. A majority vote of a quorum shall be
required for any official action of the advisory council. The
advisory council shall meet upon the call of the chairperson or
upon the request of a majority of council members.
    (e) Not later than January 1, 2017, and annually
thereafter, the advisory council shall issue a report to the
General Assembly with recommendations concerning:
        (1) practice guidelines for the diagnosis and
    treatment of the disorder and syndrome;
        (2) mechanisms to increase clinical awareness and
    education regarding the disorder and syndrome among
    physicians, including pediatricians, school-based health
    centers, and providers of mental health services;
        (3) outreach to educators and parents to increase
    awareness of the disorder and syndrome; and
        (4) development of a network of volunteer experts on
    the diagnosis and treatment of the disorder and syndrome to
    assist in education and outreach.
 
    (20 ILCS 2310/2310-677 new)
    Sec. 2310-677. Neonatal Abstinence Syndrome Advisory
Committee.
    (a) As used in this Section:
    "Department" means the Department of Public Health.
    "Director" means the Director of Public Health.
    "Neonatal Abstinence Syndrome" or "NAS" means various
adverse conditions that occur in a newborn infant who was
exposed to addictive or prescription drugs while in the
mother's womb.
    (b) There is created the Advisory Committee on Neonatal
Abstinence Syndrome. The Advisory Committee shall consist of up
to 10 members appointed by the Director of Public Health. The
Director shall make the appointments within 90 days after the
effective date of this amendatory Act of the 99th General
Assembly. Members shall receive no compensation for their
services. The members of the Advisory Committee shall represent
different racial, ethnic, and geographic backgrounds and
consist of:
        (1) at least one member representing a statewide
    association of hospitals;
        (2) at least one member representing a statewide
    organization of pediatricians;
        (3) at least one member representing a statewide
    organization of obstetricians;
        (4) at least one member representing a statewide
    organization that advocates for the health of mothers and
    infants;
        (5) at least one member representing a statewide
    organization of licensed physicians;
        (6) at least one member who is a licensed practical
    nurse, registered professional nurse, or advanced practice
    nurse with expertise in the treatment of newborns in
    neonatal intensive care units;
        (7) at least one member representing a local or
    regional public health agency; and
        (8) at least one member with expertise in the treatment
    of drug dependency and addiction.
    (c) In addition to the membership in subsection (a) of this
Section, the following persons or their designees shall serve
as ex officio members of the Advisory Committee: the Director
of Public Health, the Secretary of Human Services, the Director
of Healthcare and Family Services, and the Director of Children
and Family Services. The Director of Public Health, or his or
her designee, shall serve as Chair of the Committee.
    (d) The Advisory Committee shall meet at the call of the
Chair. The Committee shall meet at least 3 times each year and
its initial meeting shall take place within 120 days after the
effective date of this Act. The Advisory Committee shall advise
and assist the Department to:
        (1) develop an appropriate standard clinical
    definition of "NAS";
        (2) develop a uniform process of identifying NAS;
        (3) develop protocols for training hospital personnel
    in implementing an appropriate and uniform process for
    identifying and treating NAS;
        (4) identify and develop options for reporting NAS data
    to the Department by using existing or new data reporting
    options; and
        (5) make recommendations to the Department on
    evidence-based guidelines and programs to improve the
    outcomes of pregnancies with respect to NAS.
    (e) The Advisory Committee shall provide an annual report
of its activities and recommendations to the Director, the
General Assembly, and the Governor by March 31 of each year
beginning in 2016. The final report of the Advisory Committee
shall be submitted by March 31, 2019.
    (f) This Section is repealed on June 30, 2019.
 
    Section 99. Effective date. This Act takes effect upon
becoming law.