SB3771 - 104th General Assembly
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| 1 | AN ACT concerning health. | |||||||||||||||||||||
| 2 | Be it enacted by the People of the State of Illinois, | |||||||||||||||||||||
| 3 | represented in the General Assembly: | |||||||||||||||||||||
| 4 | Section 1. Short title. This Act may be cited as the | |||||||||||||||||||||
| 5 | Reproductive Health Records Privacy Act. | |||||||||||||||||||||
| 6 | Section 5. Definitions. As used in this Act: | |||||||||||||||||||||
| 7 | "Abortion" has the meaning given to that term in Section | |||||||||||||||||||||
| 8 | 1-10 of the Reproductive Health Act. | |||||||||||||||||||||
| 9 | "Health care provider" has the meaning given to that term | |||||||||||||||||||||
| 10 | in the Health Insurance Portability and Accountability Act | |||||||||||||||||||||
| 11 | (HIPAA) of 1996, as specified in 45 CFR 160.103. | |||||||||||||||||||||
| 12 | "Health information exchange" means an entity that | |||||||||||||||||||||
| 13 | facilitates the electronic exchange of health information by | |||||||||||||||||||||
| 14 | operating a health information exchange or by providing | |||||||||||||||||||||
| 15 | software or services that allow health care providers to | |||||||||||||||||||||
| 16 | maintain medical information electronically and make that | |||||||||||||||||||||
| 17 | information available to other authorized persons or providers | |||||||||||||||||||||
| 18 | for purposes of diagnosis, treatment, or care management. | |||||||||||||||||||||
| 19 | "Patient" means any person who has received or is | |||||||||||||||||||||
| 20 | receiving medical care, treatment or services from an | |||||||||||||||||||||
| 21 | individual or institution licensed to provide medical care or | |||||||||||||||||||||
| 22 | treatment in this State. | |||||||||||||||||||||
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| 1 | Section 10. Segregation of information. | ||||||
| 2 | (a) By July 1, 2027, a health information exchange shall | ||||||
| 3 | develop capabilities, policies, and procedures to enable and | ||||||
| 4 | shall enable features to do the following: | ||||||
| 5 | (1) limit user access privileges to information | ||||||
| 6 | systems that contain medical information related to the | ||||||
| 7 | provision of abortion care; | ||||||
| 8 | (2) prevent the disclosure, access, transfer, | ||||||
| 9 | transmission, or processing of medical information related | ||||||
| 10 | to the provision of abortion care to persons and entities | ||||||
| 11 | outside of the State; | ||||||
| 12 | (3) segregate medical information related to the | ||||||
| 13 | provision of abortion care from the rest of the patient's | ||||||
| 14 | record; and | ||||||
| 15 | (4) provide the ability to automatically disable | ||||||
| 16 | access to segregated medical information related to the | ||||||
| 17 | provision of abortion care by individuals and entities | ||||||
| 18 | outside of the State. | ||||||
| 19 | (b) Any fees charged to health care providers to comply | ||||||
| 20 | with this Section shall be consistent with 45 CFR 171.302. | ||||||
| 21 | (c) This Section does not apply to a health care provider. | ||||||
| 22 | Section 15. Violations. | ||||||
| 23 | (a) Any person aggrieved by a violation of this Act may sue | ||||||
| 24 | for damages, an injunction, or other appropriate relief. | ||||||
| 25 | Reasonable attorney's fees and costs may be awarded to the | ||||||
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| 1 | successful plaintiff in any action under this Act. | ||||||
| 2 | (b) The Attorney General may bring a civil action for | ||||||
| 3 | injunctive or other equitable relief to enforce this Section. | ||||||
| 4 | In an action brought by the Attorney General under this | ||||||
| 5 | Section, the court may also award a civil penalty not | ||||||
| 6 | exceeding $50,000, taking into consideration: | ||||||
| 7 | (1) whether the defendant has made a good faith | ||||||
| 8 | attempt to comply; | ||||||
| 9 | (2) the harm to patients; | ||||||
| 10 | (3) the number of violations and magnitude of the | ||||||
| 11 | violation; | ||||||
| 12 | (4) the length of time over which the violations | ||||||
| 13 | occurred; and | ||||||
| 14 | (5) the defendant's assets, liabilities, and net | ||||||
| 15 | worth. | ||||||
| 16 | Section 80. The Medical Patient Rights Act is amended by | ||||||
| 17 | changing Section 3 as follows: | ||||||
| 18 | (410 ILCS 50/3) (from Ch. 111 1/2, par. 5403) | ||||||
| 19 | Sec. 3. The following rights are hereby established: | ||||||
| 20 | (a) The right of each patient to care consistent with | ||||||
| 21 | sound nursing and medical practices, to be informed of the | ||||||
| 22 | name of the physician responsible for coordinating his or | ||||||
| 23 | her care, to receive information concerning his or her | ||||||
| 24 | condition and proposed treatment, to refuse any treatment | ||||||
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| 1 | to the extent permitted by law, and to privacy and | ||||||
| 2 | confidentiality of records except as otherwise provided by | ||||||
| 3 | law. | ||||||
| 4 | (b) The right of each patient, regardless of source of | ||||||
| 5 | payment, to examine and receive a reasonable explanation | ||||||
| 6 | of his total bill for services rendered by his physician | ||||||
| 7 | or health care provider, including the itemized charges | ||||||
| 8 | for specific services received. Each physician or health | ||||||
| 9 | care provider shall be responsible only for a reasonable | ||||||
| 10 | explanation of those specific services provided by such | ||||||
| 11 | physician or health care provider. | ||||||
| 12 | (c) In the event an insurance company or health | ||||||
| 13 | services corporation cancels or refuses to renew an | ||||||
| 14 | individual policy or plan, the insured patient shall be | ||||||
| 15 | entitled to timely, prior notice of the termination of | ||||||
| 16 | such policy or plan. | ||||||
| 17 | An insurance company or health services corporation | ||||||
| 18 | that requires any insured patient or applicant for new or | ||||||
| 19 | continued insurance or coverage to be tested for infection | ||||||
| 20 | with human immunodeficiency virus (HIV) or any other | ||||||
| 21 | identified causative agent of acquired immunodeficiency | ||||||
| 22 | syndrome (AIDS) shall (1) give the patient or applicant | ||||||
| 23 | prior written notice of such requirement, (2) proceed with | ||||||
| 24 | such testing only upon the written authorization of the | ||||||
| 25 | applicant or patient, and (3) keep the results of such | ||||||
| 26 | testing confidential. Notice of an adverse underwriting or | ||||||
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| 1 | coverage decision may be given to any appropriately | ||||||
| 2 | interested party, but the insurer may only disclose the | ||||||
| 3 | test result itself to a physician designated by the | ||||||
| 4 | applicant or patient, and any such disclosure shall be in | ||||||
| 5 | a manner that assures confidentiality. | ||||||
| 6 | The Department of Insurance shall enforce the | ||||||
| 7 | provisions of this subsection. | ||||||
| 8 | (d) The right of each patient to privacy and | ||||||
| 9 | confidentiality in health care. Each physician, health | ||||||
| 10 | care provider, health services corporation and insurance | ||||||
| 11 | company shall refrain from disclosing the nature or | ||||||
| 12 | details of services provided to patients, except that such | ||||||
| 13 | information may be disclosed: (1) to the patient, (2) to | ||||||
| 14 | the party making treatment decisions if the patient is | ||||||
| 15 | incapable of making decisions regarding the health | ||||||
| 16 | services provided, (3) for treatment in accordance with 45 | ||||||
| 17 | CFR 164.501 and 164.506, (4) for payment in accordance | ||||||
| 18 | with 45 CFR 164.501 and 164.506, (5) to those parties | ||||||
| 19 | responsible for peer review, utilization review, and | ||||||
| 20 | quality assurance, (6) for health care operations in | ||||||
| 21 | accordance with 45 CFR 164.501 and 164.506, (7) to those | ||||||
| 22 | parties required to be notified under the Abused and | ||||||
| 23 | Neglected Child Reporting Act or the Illinois Sexually | ||||||
| 24 | Transmitted Infection Control Act, or (8) as otherwise | ||||||
| 25 | permitted, authorized, or required by State or federal | ||||||
| 26 | law. This right may be waived in writing by the patient or | ||||||
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| 1 | the patient's guardian or legal representative, but a | ||||||
| 2 | physician or other health care provider may not condition | ||||||
| 3 | the provision of services on the patient's, guardian's, or | ||||||
| 4 | legal representative's agreement to sign such a waiver. In | ||||||
| 5 | the interest of public health, safety, and welfare, | ||||||
| 6 | patient information, including, but not limited to, health | ||||||
| 7 | information, demographic information, and information | ||||||
| 8 | about the services provided to patients, may be | ||||||
| 9 | transmitted to or through a health information exchange, | ||||||
| 10 | as that term is defined in Section 2 of the Mental Health | ||||||
| 11 | and Developmental Disabilities Confidentiality Act, in | ||||||
| 12 | accordance with the disclosures permitted pursuant to this | ||||||
| 13 | Section. Patients shall be provided the opportunity to opt | ||||||
| 14 | out of their health information being transmitted to or | ||||||
| 15 | through a health information exchange in accordance with | ||||||
| 16 | Section 9.6 of the Mental Health and Developmental | ||||||
| 17 | Disabilities Confidentiality Act, Section 9.6 of the AIDS | ||||||
| 18 | Confidentiality Act, or Section 31.8 of the Genetic | ||||||
| 19 | Information Privacy Act, as applicable. Medical | ||||||
| 20 | information related to the provision of abortion care in a | ||||||
| 21 | health information exchange may be segregated and access | ||||||
| 22 | to such information may be limited in accordance with the | ||||||
| 23 | Reproductive Health Records Privacy Act. In the case of a | ||||||
| 24 | patient choosing to opt out of having his or her | ||||||
| 25 | information available on an HIE, nothing in this Act shall | ||||||
| 26 | cause the physician or health care provider to be liable | ||||||
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| 1 | for the release of a patient's health information by other | ||||||
| 2 | entities that may possess such information, including, but | ||||||
| 3 | not limited to, other health professionals, providers, | ||||||
| 4 | laboratories, pharmacies, hospitals, ambulatory surgical | ||||||
| 5 | centers, and nursing homes. | ||||||
| 6 | (Source: P.A. 103-508, eff. 8-4-23; 103-1049, eff. 8-9-24.) | ||||||
| 7 | Section 97. Severability. The provisions of this Act are | ||||||
| 8 | severable under Section 1.31 of the Statute on Statutes. | ||||||
