SB3887 - 104th General Assembly
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| 1 | AN ACT concerning health. | |||||||||||||||||||
| 2 | Be it enacted by the People of the State of Illinois, | |||||||||||||||||||
| 3 | represented in the General Assembly: | |||||||||||||||||||
| 4 | Section 1. Short title. This Act may be cited as the Screen | |||||||||||||||||||
| 5 | Illinois Initiative Act. | |||||||||||||||||||
| 6 | Section 5. Findings and purpose. | |||||||||||||||||||
| 7 | (a) The General Assembly finds that: | |||||||||||||||||||
| 8 | (1) Preventive health screenings are key to spotting | |||||||||||||||||||
| 9 | diseases early. Some common diseases that screenings can | |||||||||||||||||||
| 10 | find are chronic conditions, cancer, metabolic issues, and | |||||||||||||||||||
| 11 | infections. Finding these issues early can reduce illness, | |||||||||||||||||||
| 12 | death, and long-term healthcare costs through quick, | |||||||||||||||||||
| 13 | non-invasive tests. | |||||||||||||||||||
| 14 | (2) Standardized, evidence-based preventive screening | |||||||||||||||||||
| 15 | statistics developed by the United States Department of | |||||||||||||||||||
| 16 | Health and Human Services Office of Disease Prevention and | |||||||||||||||||||
| 17 | Health Promotion Healthy People 2030 (HP2030) suggest that | |||||||||||||||||||
| 18 | Illinois falls short of the recommended adult screening | |||||||||||||||||||
| 19 | targets: | |||||||||||||||||||
| 20 | (A) only 6.3% of adults between 50 and 80 years old | |||||||||||||||||||
| 21 | are screened for lung and bronchial cancer; | |||||||||||||||||||
| 22 | (B) only 66.7% of adults between 45 and 75 years | |||||||||||||||||||
| 23 | old are screened for colorectal cancer; | |||||||||||||||||||
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| 1 | (C) only 73.1% of female adults 40 years old and | ||||||
| 2 | older are screened for breast cancer; and | ||||||
| 3 | (D) only 69.1% of female adults between the ages | ||||||
| 4 | of 21 and 65 years old are screened for cervical | ||||||
| 5 | cancer. | ||||||
| 6 | (3) In addition, significant racial disparities exist | ||||||
| 7 | in prostate screening, with only 17.3% of 50 to | ||||||
| 8 | 69-year-old Hispanic males and 29.4% of 50 to 69-year-old | ||||||
| 9 | African-American males being screened for prostate cancer. | ||||||
| 10 | (4) The Department has reported a high percentage of | ||||||
| 11 | late-stage cancer diagnoses because of potential missed | ||||||
| 12 | preventive care, such as: | ||||||
| 13 | (A) 45.4% of adults 50 years old and older with a | ||||||
| 14 | lung and bronchus cancer diagnosis; | ||||||
| 15 | (B) 24.1% of all adults with a colorectal cancer | ||||||
| 16 | diagnosis; | ||||||
| 17 | (C) 45.6% of all female adults with a breast | ||||||
| 18 | cancer diagnosis; and | ||||||
| 19 | (D) 24.0% of male adults 50 years old and older | ||||||
| 20 | with a prostate cancer diagnosis. | ||||||
| 21 | (5) When cancers are detected at a late stage, | ||||||
| 22 | treatment options available become more expensive and more | ||||||
| 23 | difficult. Consequently, cancer mortality rates for the | ||||||
| 24 | cancers listed below are high compared to the Healthy | ||||||
| 25 | People 2030 targets: | ||||||
| 26 | (A) Lung and bronchus cancer: 41.1 deaths per | ||||||
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| 1 | 100,000 people (HP2030: 25.1), | ||||||
| 2 | (B) Colorectal cancer: 14.7 deaths per 100,000 | ||||||
| 3 | people (HP2030: 8.9), | ||||||
| 4 | (C) Breast cancer: 21.0 deaths per 100,000 people | ||||||
| 5 | (HP2030: 15.3), | ||||||
| 6 | (D) Prostate cancer: 20.0 deaths per 100,000 | ||||||
| 7 | people (HP2030: 16.9). | ||||||
| 8 | (6) Residents of rural parts of the State are more | ||||||
| 9 | likely to be affected by the limited preventive public | ||||||
| 10 | health screenings due to fewer healthcare professionals, | ||||||
| 11 | medical centers, emergency facilities, or transportation | ||||||
| 12 | options to these services. | ||||||
| 13 | (7) While the Illinois Department of Public Health | ||||||
| 14 | operates mobile health screening initiatives, such as | ||||||
| 15 | Wellness on Wheels (WoW), its funding is grant-based and | ||||||
| 16 | not stable, relies on a request system for statewide | ||||||
| 17 | access, has narrow screening panels, and does not have | ||||||
| 18 | standardized referral and follow-up protocols. | ||||||
| 19 | Specifically: | ||||||
| 20 | (A) Wellness on Wheels funding is variable, having | ||||||
| 21 | received: | ||||||
| 22 | (i) $5,766,350 in FY 2023; | ||||||
| 23 | (ii) $695,000 in FY 2024; | ||||||
| 24 | (iii) $515,000 in FY 2025; and | ||||||
| 25 | (iv) $1,075,000 in FY 2026. | ||||||
| 26 | (B) These funds go toward providing variable | ||||||
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| 1 | grants to community organizations, instead of having a | ||||||
| 2 | stable funding stream. As a result, these | ||||||
| 3 | organizations are unable to provide consistent | ||||||
| 4 | statewide screenings to rural communities. The | ||||||
| 5 | inconsistent annual funding toward Wellness on Wheels | ||||||
| 6 | also makes it difficult for the initiative to plan its | ||||||
| 7 | resources, professionals, and services. | ||||||
| 8 | (C) Furthermore, Wellness on Wheels mobile health | ||||||
| 9 | screening units have hubs in just 5 areas: | ||||||
| 10 | (i) Joliet; | ||||||
| 11 | (ii) Springfield; | ||||||
| 12 | (iii) Champaign; | ||||||
| 13 | (iv) O'Fallon; and | ||||||
| 14 | (v) Grand Chain. | ||||||
| 15 | (D) The limited number of locations makes it | ||||||
| 16 | difficult for mobile health screening units to reach | ||||||
| 17 | rural areas of the State quickly. These inefficiencies | ||||||
| 18 | can lead to delays in screening, increasing the risk | ||||||
| 19 | of cancers or other diseases that go undetected, thus | ||||||
| 20 | significantly increasing the risk of worsened symptoms | ||||||
| 21 | and more expensive care. | ||||||
| 22 | (E) Wellness on Wheels also predominantly focuses | ||||||
| 23 | on screening for diseases and conditions, such as: | ||||||
| 24 | (i) Human Immunodeficiency Virus; | ||||||
| 25 | (ii) Hepatitis C; | ||||||
| 26 | (iii) Sexually transmitted infections, such as | ||||||
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| 1 | Gonorrhea and Chlamydia; | ||||||
| 2 | (iv) COVID-19; | ||||||
| 3 | (v) high blood pressure; | ||||||
| 4 | (vi) high glucose levels; and | ||||||
| 5 | (vii) high cholesterol. | ||||||
| 6 | (F) Wellness on Wheels does not focus on screening | ||||||
| 7 | for cancer or other common diseases, potentially | ||||||
| 8 | leaving those conditions undetected for long periods. | ||||||
| 9 | (G) While grants given to community organizations | ||||||
| 10 | through Wellness on Wheels have a stipulation to | ||||||
| 11 | provide care linkage and, as needed, wrap-around | ||||||
| 12 | services, the grantees are responsible for managing | ||||||
| 13 | follow-ups and referrals. Because of this, there is no | ||||||
| 14 | statewide, standardized organization providing the | ||||||
| 15 | actual medical services or follow-up referrals leaving | ||||||
| 16 | it to the local organizations to provide it. This | ||||||
| 17 | creates inefficiencies and inconsistencies between | ||||||
| 18 | regions of the State, as different community | ||||||
| 19 | organizations may vary in the methodology, frequency, | ||||||
| 20 | or quality of screenings. The creation of a statewide | ||||||
| 21 | authority to conduct follow-ups and referrals will | ||||||
| 22 | standardize screenings and improve quality throughout | ||||||
| 23 | the State. | ||||||
| 24 | (H) Thus, the creation of a statewide, | ||||||
| 25 | standardized mobile health screening framework will | ||||||
| 26 | improve screening in disadvantaged communities, reduce | ||||||
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| 1 | average mortality, and decrease healthcare costs for | ||||||
| 2 | underserved and rural constituents. | ||||||
| 3 | (b) The purpose of this Act is to: | ||||||
| 4 | (1) expand and formalize the Department of Public | ||||||
| 5 | Health's existing mobile public health screening | ||||||
| 6 | initiatives, such as Wellness on Wheels, and to create a | ||||||
| 7 | standardized, statewide program delivering high-quality | ||||||
| 8 | screening to rural and underserved communities; | ||||||
| 9 | (2) establish a stable, sufficient State funding | ||||||
| 10 | source for the newly created statewide screening program, | ||||||
| 11 | to improving consistency and service; | ||||||
| 12 | (3) standardize the range of diseases supported for | ||||||
| 13 | screening by mobile health units, including cancer, | ||||||
| 14 | metabolic, cardiovascular, or vaccine-preventable | ||||||
| 15 | diseases, thus improving detection speed; | ||||||
| 16 | (4) establish statewide, standardized follow-up and | ||||||
| 17 | referral guidelines to ensure constituents are screened | ||||||
| 18 | quickly; | ||||||
| 19 | (5) expand the geographic range and frequency of | ||||||
| 20 | mobile public health screening initiatives to reduce the | ||||||
| 21 | barriers to healthcare such as a lack of transportation; | ||||||
| 22 | and | ||||||
| 23 | (6) record screening data through the Department to | ||||||
| 24 | inform government policy and future funding for mobile | ||||||
| 25 | health screening programs. | ||||||
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| 1 | Section 10. Definitions. As used in this Act: | ||||||
| 2 | "Department" means the Illinois Department of Public | ||||||
| 3 | Health. | ||||||
| 4 | "Fixed-site preventive screening services" means | ||||||
| 5 | screenings that happen at a consistent location such as at a | ||||||
| 6 | clinic or hospital. | ||||||
| 7 | "Follow-up care" means further diagnostic testing or | ||||||
| 8 | referral to a healthcare service after an abnormal or positive | ||||||
| 9 | result. | ||||||
| 10 | "Medically underserved urban neighborhoods" means zip | ||||||
| 11 | codes designated by the Health Resources and Services | ||||||
| 12 | Administration as being a Primary Health Professional Shortage | ||||||
| 13 | Area or a Medically Underserved Area/Population. | ||||||
| 14 | "Mobile health screening unit" means a group of vehicles | ||||||
| 15 | operated or contracted by the Department delivering preventive | ||||||
| 16 | health screenings. | ||||||
| 17 | "Preventive health screenings" means an evidence-based | ||||||
| 18 | clinical test used to detect any disease or conditions before | ||||||
| 19 | symptoms. | ||||||
| 20 | "Underserved community" means a geographic area or | ||||||
| 21 | population identified by the Department that has limited | ||||||
| 22 | access to healthcare services due to economic or structural | ||||||
| 23 | barriers, | ||||||
| 24 | Section 15. Program Requirements. | ||||||
| 25 | (a) The Department shall build upon existing Wellness on | ||||||
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| 1 | Wheels and the Department's infrastructure to establish the | ||||||
| 2 | Screen Illinois Initiative and all of its requirements. The | ||||||
| 3 | Screen Illinois Initiative program shall act as a statewide, | ||||||
| 4 | proactive mobile health screening initiative. | ||||||
| 5 | (b) No later than January 1, 2028, the Department shall | ||||||
| 6 | increase the number of mobile health screening unit hubs from | ||||||
| 7 | the current 5 to a number sufficient to ensure every region of | ||||||
| 8 | the State has access to a mobile health screening unit within | ||||||
| 9 | one hour's distance, as determined by geographic analysis | ||||||
| 10 | conducted by the Department. | ||||||
| 11 | (1) Through the Screen Illinois Initiative, the | ||||||
| 12 | Department shall target achieving at least 20,000 annual | ||||||
| 13 | screenings by January 1, 2028. | ||||||
| 14 | (2) Through the Screen Illinois Initiative, the | ||||||
| 15 | Department shall target achieving a follow-up completion | ||||||
| 16 | rate by at least 75% by January 1, 2028. | ||||||
| 17 | (c) The Department shall prioritize mobile health | ||||||
| 18 | screening unit deployment through the Screen Illinois | ||||||
| 19 | Initiative to: | ||||||
| 20 | (1) counties and census tracts that are designated as | ||||||
| 21 | a medically underserved urban neighborhoods or an | ||||||
| 22 | underserved community; | ||||||
| 23 | (2) counties with cancer screening rates lower than | ||||||
| 24 | the statewide average, as reported in the Department's | ||||||
| 25 | Illinois Comprehensive Cancer Control Plan; and | ||||||
| 26 | (3) counties where residents must travel at least 20 | ||||||
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| 1 | miles to access fixed-site preventive screening services. | ||||||
| 2 | (d) The Department shall ensure that each health region | ||||||
| 3 | has at least 3 mobile health screening unit hubs responsible | ||||||
| 4 | for: | ||||||
| 5 | (1) route planning; | ||||||
| 6 | (2) staff coordination; | ||||||
| 7 | (3) follow-up and referral handling; and | ||||||
| 8 | (4) equipment storage and maintenance. | ||||||
| 9 | (e) No deployment under this Act shall require a formal | ||||||
| 10 | request from a community organization, nonprofit, or local | ||||||
| 11 | government for screenings to occur in a region. The Department | ||||||
| 12 | shall grant the right for parties of interest to express their | ||||||
| 13 | opinions on the Screen Illinois Initiative's county and region | ||||||
| 14 | priorities and reserve the right to modify the deployment of | ||||||
| 15 | mobile health screening units as necessary. | ||||||
| 16 | (f) Subject to appropriation, the funding received by the | ||||||
| 17 | Screen Illinois Initiative from the Department shall be used | ||||||
| 18 | to support the operations of the mobile health screening units | ||||||
| 19 | and hubs of the Screen Illinois Initiative by covering: | ||||||
| 20 | (1) the purchase and for maintenance of vehicles; | ||||||
| 21 | (2) the salary of clinical staff and transportation | ||||||
| 22 | workers; | ||||||
| 23 | (3) the purchase and maintenance of clinical | ||||||
| 24 | equipment; | ||||||
| 25 | (4) the costs of daily operations, including, but not | ||||||
| 26 | limited to, facility costs, outreach administrators' | ||||||
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| 1 | salaries, and advertising costs; and | ||||||
| 2 | (5) the costs of data collection, reporting, and | ||||||
| 3 | organization. | ||||||
| 4 | (g) The Screen Illinois Initiative shall conduct, at a | ||||||
| 5 | minimum, the following additional services: | ||||||
| 6 | (1) cancer screenings, including screenings for lung | ||||||
| 7 | and bronchus cancer, colorectal cancer, breast cancer, | ||||||
| 8 | cervical cancer, prostate cancer, and any other screenings | ||||||
| 9 | clinically recommended by the Department; | ||||||
| 10 | (2) metabolic and cardiovascular risk assessments, | ||||||
| 11 | including assessments for body mass index, kidney | ||||||
| 12 | function, liver function, and other assessments as | ||||||
| 13 | clinically recommended by the Department; and | ||||||
| 14 | (3) vaccine-preventable disease screenings as | ||||||
| 15 | recommended by the Department. | ||||||
| 16 | (h) The Department shall establish standardized, statewide | ||||||
| 17 | follow-up and referral protocols through the Screen Illinois | ||||||
| 18 | Initiative, such as: | ||||||
| 19 | (1) automatically scheduling and coordinating at least | ||||||
| 20 | 80% of follow-up appointments at health care clinics for | ||||||
| 21 | individuals with abnormal testing results within 30 days | ||||||
| 22 | of notification of the result; | ||||||
| 23 | (2) assigning 2 patient navigators to each mobile | ||||||
| 24 | health screening unit hub to assist constituents with | ||||||
| 25 | getting screened, navigating insurance policies, and | ||||||
| 26 | finding transportation services; | ||||||
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| 1 | (3) providing language translation services for | ||||||
| 2 | constituents who are not fluent in English; and | ||||||
| 3 | (4) establishing a standardized, statewide database in | ||||||
| 4 | the Screen Illinois Initiative to: | ||||||
| 5 | (A) record all screening results, follow-up | ||||||
| 6 | status, and registration information; | ||||||
| 7 | (B) send automated reminders to patients and | ||||||
| 8 | providers after 7, 14, and 21 days if an appointment | ||||||
| 9 | has not been scheduled or attended; and | ||||||
| 10 | (C) flag patients for further screening and | ||||||
| 11 | escalation if no follow-up happens within 60 days. | ||||||
| 12 | (i) The Screen Illinois Initiative shall submit quarterly | ||||||
| 13 | reports to the Department that include the following data: | ||||||
| 14 | (1) the number of screenings performed and categorized | ||||||
| 15 | by disease or condition, age group, race and ethnicity, | ||||||
| 16 | county, and population served, including whether it is a | ||||||
| 17 | primary health professional shortage area or a medically | ||||||
| 18 | underserved area or population; | ||||||
| 19 | (2) the number and percentage of individuals who were | ||||||
| 20 | referred for follow-up care and the follow-up completion | ||||||
| 21 | percentages; | ||||||
| 22 | (3) the statistics regarding the amount of patients at | ||||||
| 23 | certain stages of cancer when diagnosed through Screen | ||||||
| 24 | Illinois Initiative; and | ||||||
| 25 | (4) the initiative's operational metrics, including | ||||||
| 26 | the number of mobile health screening unit hubs, staffing | ||||||
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| 1 | levels, and average travel time for screenings. | ||||||
| 2 | (j) On December 31st of each year, the Department shall | ||||||
| 3 | release a publicly-accessible annual report regarding the | ||||||
| 4 | Screen Illinois Initiative and its operation, including the | ||||||
| 5 | complied data required under subsection (i) of this Section. | ||||||
| 6 | Section 20. Screen Illinois Initiative Education Program. | ||||||
| 7 | (a) The Department through the Screen Illinois Initiative | ||||||
| 8 | shall implement a statewide education and outreach program to | ||||||
| 9 | complement its mobile health screening unit initiative by: | ||||||
| 10 | (1) collaborating to create educational flyers and | ||||||
| 11 | materials to be distributed in local libraries, schools, | ||||||
| 12 | and other public places that the Department sees fit to | ||||||
| 13 | spread information regarding the importance of early | ||||||
| 14 | screening for diseases, the statistics about common | ||||||
| 15 | diseases in State, and the statistics regarding current | ||||||
| 16 | screening rates, how the Screen Illinois Initiative | ||||||
| 17 | operates, and how members of the public can get involved | ||||||
| 18 | with the Screen Illinois Initiative; and | ||||||
| 19 | (2) conducting quarterly workshops for local | ||||||
| 20 | healthcare providers to learn more about the Screen | ||||||
| 21 | Illinois Initiative's services, its standardized referral | ||||||
| 22 | and follow-up policies, and its updated clinical | ||||||
| 23 | guidelines as recommended by the Department. | ||||||
| 24 | (b) The Department through the Screen Illinois Initiative | ||||||
| 25 | shall monitor the number of educational events conducted, | ||||||
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| 1 | participants reached, materials distributed, and provider | ||||||
| 2 | trainings completed to include in the annual report by the | ||||||
| 3 | Department required under subsection (j) of Section 15 of this | ||||||
| 4 | Act. | ||||||
| 5 | Section 25. Rulemaking. The Department shall adopt any | ||||||
| 6 | rules necessary to adopt and enforce the provisions of this | ||||||
| 7 | Act, including, but not limited to, rules regarding the | ||||||
| 8 | operation and staffing of mobile screening hubs, the screening | ||||||
| 9 | services and the purchase of clinical equipment, the | ||||||
| 10 | standardized referral and follow-up system, the education and | ||||||
| 11 | outreach program, and the data collection, reporting, and | ||||||
| 12 | public visibility of the Screen Illinois Initiative. | ||||||
