Public Act 096-0799
 
SB2043 Enrolled LRB096 11169 DRJ 21882 b

    AN ACT concerning public aid.
 
    Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
 
    Section 5. The Illinois Public Aid Code is amended by
changing Sections 5-24 and 12-4.201 as follows:
 
    (305 ILCS 5/5-24)
    (Section scheduled to be repealed on January 1, 2014)
    Sec. 5-24. Disease management programs and services for
chronic conditions; pilot project.
    (a) In this Section, "disease management programs and
services" means services administered to patients in order to
improve their overall health and to prevent clinical
exacerbations and complications, using cost-effective,
evidence-based practice guidelines and patient self-management
strategies. Disease management programs and services include
all of the following:
        (1) A population identification process.
        (2) Evidence-based or consensus-based clinical
    practice guidelines, risk identification, and matching of
    interventions with clinical need.
        (3) Patient self-management and disease education.
        (4) Process and outcomes measurement, evaluation,
    management, and reporting.
    (b) Subject to appropriations, the Department of
Healthcare and Family Services may undertake a pilot project to
study patient outcomes, for patients with chronic diseases or
patients at risk of low birth weight or premature birth,
associated with the use of disease management programs and
services for chronic condition management. "Chronic diseases"
include, but are not limited to, diabetes, congestive heart
failure, and chronic obstructive pulmonary disease. Low birth
weight and premature birth include all medical and other
conditions that lead to poor birth outcomes or problematic
pregnancies.
    (c) The disease management programs and services pilot
project shall examine whether chronic disease management
programs and services for patients with specific chronic
conditions do any or all of the following:
        (1) Improve the patient's overall health in a more
    expeditious manner.
        (2) Lower costs in other aspects of the medical
    assistance program, such as hospital admissions, days in
    skilled nursing homes, emergency room visits, or more
    frequent physician office visits.
    (d) In carrying out the pilot project, the Department of
Healthcare and Family Services shall examine all relevant
scientific literature and shall consult with health care
practitioners including, but not limited to, physicians,
surgeons, registered pharmacists, and registered nurses.
    (e) The Department of Healthcare and Family Services shall
consult with medical experts, disease advocacy groups, and
academic institutions to develop criteria to be used in
selecting a vendor for the pilot project.
    (f) The Department of Healthcare and Family Services may
adopt rules to implement this Section.
    (g) This Section is repealed 10 years after the effective
date of this amendatory Act of the 93rd General Assembly.
(Source: P.A. 95-331, eff. 8-21-07.)
 
    (305 ILCS 5/12-4.201)
    Sec. 12-4.201. (a) Data warehouse concerning medical and
related services. The Department of Healthcare and Family
Services may purchase services and materials associated with
the costs of developing and implementing a data warehouse
comprised of management and decision making information in
regard to the liability associated with, and utilization of,
medical and related services, out of moneys available for that
purpose.
    (b) The Department of Healthcare and Family Services shall
perform all necessary administrative functions to expand its
linearly-scalable data warehouse to encompass other healthcare
data sources at both the Department of Human Services and the
Department of Public Health. The Department of Healthcare and
Family Services shall leverage the inherent capabilities of the
data warehouse to accomplish this expansion with marginal
additional technical administration. The purpose of this
expansion is to allow for programmatic review and analysis
including the interrelatedness among the various healthcare
programs in order to ascertain effectiveness toward, and
ultimate impact on, clients. Beginning July 1, 2005, the
Department of Healthcare and Family Services (formerly
Department of Public Aid) shall supply quarterly reports to the
Commission on Government Forecasting and Accountability
detailing progress toward this mandate.
    (c) The Department of Healthcare and Family Services (HFS),
the Illinois Department of Public Health, the Illinois
Department of Human Services, and the Division of Specialized
Care for Children, University of Illinois at Chicago, with
necessary support from the Department of Central Management
Services, shall integrate into the medical data warehouse
individual record level data owned by one of these agencies
that pertains to maternal and child health, including the
following data sets:
        (1) Vital Records as they relate to births, birth
    outcomes, and deaths.
        (2) Adverse Pregnancy Outcomes Reporting System
    (APORS).
        (3) Genetics/Newborn Screenings/SIDS.
        (4) Cornerstone (WIC, FCM, Teen Parents,
    Immunization).
        (5) HFS medical claims data.
        (6) I-CARE.
        (7) Children with Special Healthcare Needs Data.
    By September 1, 2009, the departments of Healthcare and
Family Services, Public Health, and Human Services and the
Division of Specialized Care for Children shall jointly prepare
a work plan for fully integrating these data sets into the
medical data warehouse. The work plan shall provide an overall
project design, including defining a mutually acceptable
transfer format for each discrete data set, the data update
frequency, and a single method of data transfer for each data
set. By October 1, 2009, the Department of Public Health shall
grant to the Department of Healthcare and Family Services
complete access to all vital records data. The Department of
Public Health shall prepare a report detailing that this task
has been accomplished and submit this report to the Commission
on Government Forecasting and Accountability by October 15,
2009. By March 1, 2010, the data sets shall be completely
loaded into the medical data warehouse. By July 1, 2010, data
from the various sources shall be processed so as to be
compatible with other data in the medical data warehouse and
available for analysis in an integrated manner.
    With the cooperation of the other agencies, HFS shall
submit status reports on the progress of these efforts to the
Governor and the General Assembly no later than October 1, 2009
and April 1, 2010, with a final report due no later than
November 1, 2010.
    On an ongoing basis, the 4 agencies shall review the
feasibility of adding data from additional sources to the
warehouse. Such review may take into account the cost
effectiveness of adding the data, the utility of adding data
that is not available as identifiable individual record level
data, the requirements related to adding data owned by another
entity or not available in electronic form, whether sharing of
the data is otherwise prohibited by law and the resources
required and available for effecting the addition.
    The departments shall use analysis of the data in the
medical data warehouse to improve maternal and child health
outcomes, and in particular improve birth outcomes, and to
reduce racial health disparities in this area.
    All access and use of the data shall be in compliance with
all applicable federal and State laws, regulations, and
mandates.
    Notwithstanding anything in this Section, data
incorporated into the data warehouse shall remain subject to
the same provisions of law regarding confidentiality and use
restrictions as they are subject to in the control of the
contributing agency. The Department of Healthcare and Family
Services shall develop measures to ensure that the interplay of
the several data sets contributed to the data warehouse does
not lead to the use or release of data from the data warehouse
that would not otherwise be subject to use or release under
State or federal law.
(Source: P.A. 94-267, eff. 7-19-05; 95-331, eff. 8-21-07.)
 
    Section 99. Effective date. This Act takes effect upon
becoming law.