Public Act 098-0891
 
HB4035 EnrolledLRB098 15592 RPM 50623 b



    AN ACT concerning health.

 
    Be it enacted by the People of the State of Illinois, 
represented in the General Assembly: 



 
    Section 5. The Illinois Health Statistics Act is amended  by 
changing Section 4 as follows:
 



    (410 ILCS 520/4)  (from Ch. 111 1/2, par. 5604)



    Sec. 4. (a) In carrying out the purposes of this Act, the 
Department may: 

        (1) Collect and maintain health data on:

            (i) The extent, nature, and impact of illness, 
        including factors relating to obesity and disability 
        on the population
of the State;

            (ii) The determinants of health and health hazards 
        including obesity;

            (iii) Health resources, including the extent of 
        available manpower and resources;

            (iv) Utilization of health care;

            (v) Health care costs and financing; and

            (vi) Other health or health-related matters; and .

            (vii) The connection between the long-term effects 
        of childhood cancer and the original cancer diagnosis 
        and treatment. 
        (2) Undertake and support research, demonstrations, 
    and evaluations respecting
new or improved methods for 
    obtaining current data on the matters referred
to in 
    subparagraph (1).

    (b) The Department may collect health data under authority 
granted by
any unit of local government and on behalf of other 
governmental or not-for-profit
organizations, including data 
collected by local schools and the State Board of Education 
relating to obesity on the health examination form required 
pursuant to Section 27-8.1 of the School Code. The data shall 
be de-identified and aggregated pursuant to rules promulgated 
by the Department to prevent disclosure of personal identifying 
information.

    (c) The Department shall collect data only on a voluntary 
basis from individuals
and organizations, except when there is 
specific legal authority to compel
the mandatory reporting of 
the health data so requested. In making any collection
of 
health data from an individual or organization the Department 
must give
to such individual or organization a written 
statement which states:

        (1) Whether the individual or organization is required 
    to respond, and
any sanctions for noncompliance;

        (2) The purposes for which the health data are being 
    collected; and

        (3) In the case of any disclosure of identifiable 
    health data for other
than research and statistical 
    purposes, the items to be disclosed, to whom
the data are 
    to be disclosed and the purposes for which the data are to 
    be disclosed.

    (d) Except as provided in Section 5, no health data 
obtained in the course
of activities undertaken or supported 
under this Act may be used for any purpose
other than the 
purpose for which they were supplied or for which the 
individual
or organization described in the data has otherwise 
consented.

    (e) The Department shall take such actions as may be 
necessary to assure
that statistics developed under this Act 
are of high quality, timely, comprehensive,
as well as 
specific, standardized and adequately analyzed and indexed.

    (f) The Department shall take such action as is appropriate 
to effect
the coordination of health data activities, including 
health data specifically relating to obesity collected 
pursuant to Section 27-8.1 of the School Code, within the State 
to eliminate
unnecessary duplication of data collection and 
maximize the usefulness of
data collected.

    (g) The Department shall (1) participate with state, local 
and federal
agencies in the design and implementation of a 
cooperative system for producing
comparable and uniform health 
information and statistics at the federal,
state, and local 
levels; and (2) undertake and support research, development,

demonstrations, and evaluations respecting such cooperative 
system.

(Source: P.A. 93-966, eff. 1-1-05.)