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| 1 | AMENDMENT TO HOUSE BILL 143
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| 2 | AMENDMENT NO. ______. Amend House Bill 143 by replacing | ||||||
| 3 | everything after the enacting clause with the following:
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| 4 | "Section 5. The State Finance Act is amended by adding | ||||||
| 5 | Sections 5.891 and 6z-107 as follows: | ||||||
| 6 | (30 ILCS 105/5.891 new) | ||||||
| 7 | Sec. 5.891. The Schaaf-Yang Syndrome Fund. | ||||||
| 8 | (30 ILCS 105/6z-107 new) | ||||||
| 9 | Sec. 6z-107. The Schaaf-Yang Syndrome Fund. | ||||||
| 10 | (a) The Schaaf-Yang Syndrome Research Fund is created as a | ||||||
| 11 | special fund in the State treasury. Subject to appropriation, | ||||||
| 12 | moneys in the Fund shall be used by the Department of Public | ||||||
| 13 | Health to make grants to public or private not-for-profit | ||||||
| 14 | entities for the purpose of conducting Schaaf-Yang Syndrome | ||||||
| 15 | research. For the purposes of this Section, "research" | ||||||
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| 1 | includes, but is not limited to, expenditures to develop and | ||||||
| 2 | advance the understanding, techniques, and modalities | ||||||
| 3 | effective in early detection, prevention, cure, screening, and | ||||||
| 4 | treatment of Schaaf-Yang Syndrome and may include clinical | ||||||
| 5 | trials. The grant funds may not be used for institutional | ||||||
| 6 | overhead costs, indirect costs, other organizational levies, | ||||||
| 7 | or costs of community-based support services. | ||||||
| 8 | (b) As soon as practical after the effective date of this | ||||||
| 9 | amendatory Act of the 101st General Assembly, the State | ||||||
| 10 | Treasurer shall transfer $300,000 from the General Revenue Fund | ||||||
| 11 | to the Schaaf-Yang Syndrome Fund.
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| 12 | Section 99. Effective date. This Act takes effect July 1, | ||||||
| 13 | 2019.".
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