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| 1 | | AN ACT concerning health.
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| 2 | | Be it enacted by the People of the State of Illinois, |
| 3 | | represented in the General Assembly:
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| 4 | | Section 1. Short title. This Act may be cited as the |
| 5 | | Consumer Choice in Maternal Care for African-American Mothers |
| 6 | | Pilot Program Act. |
| 7 | | Section 5. Findings. The General Assembly finds the |
| 8 | | following: |
| 9 | | (1) In its 2018 Illinois Maternal Morbidity and |
| 10 | | Mortality Report, the Department of Public Health reported |
| 11 | | that Black women were 6 times as likely to die from a |
| 12 | | pregnancy-related condition as white women; and that in |
| 13 | | Illinois, 72% of pregnancy-related deaths and 93% of |
| 14 | | violent pregnancy-associated deaths were deemed |
| 15 | | preventable. |
| 16 | | (2) The Department of Public Health also found that |
| 17 | | between 2016 and 2017, Black women had the highest rate of |
| 18 | | severe maternal morbidity with a rate of 101.5 per 10,000 |
| 19 | | deliveries, which is almost 3 times as high as the rate for |
| 20 | | white women. |
| 21 | | (3) In 2019, the Chicago Department of Public Health |
| 22 | | released a data report on Maternal Morbidity and Mortality |
| 23 | | in Chicago and found that "(w)omen for whom Medicaid was |
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| 1 | | the delivery payment source are significantly more likely |
| 2 | | than those who used private insurance to experience severe |
| 3 | | maternal morbidity." The Chicago Department of Public |
| 4 | | Health identified zip codes within the city that had the |
| 5 | | highest rates of severe maternal morbidity in 2016-2017 |
| 6 | | (100.4-172.8 per 10,000 deliveries). These zip codes |
| 7 | | included: 60653, 60637, 60649, 60621, 60612, 60624, and |
| 8 | | 60644. All of the zip codes were identified as |
| 9 | | experiencing high economic hardship. According to the |
| 10 | | Chicago Department of Public Health "(c)hronic diseases, |
| 11 | | including obesity, hypertension, and diabetes can increase |
| 12 | | the risk of a woman experiencing adverse outcomes during |
| 13 | | pregnancy." However, "there were no significant |
| 14 | | differences in pre-pregnancy BMI, hypertension, and |
| 15 | | diabetes between women who experienced a |
| 16 | | pregnancy-associated death and all women who delivered |
| 17 | | babies in Chicago." |
| 18 | | (4) In a national representative survey sample of |
| 19 | | mothers who gave birth in an American hospital in |
| 20 | | 2011-2012, 1 out of 4 mothers who identified as Black or |
| 21 | | African-American expressed that they would "definitely |
| 22 | | want" to have a future birth at home, compared to 8.4% of |
| 23 | | white mothers. Black mothers express a demand for planned |
| 24 | | home birth services at almost 3 times the rate of white |
| 25 | | mothers. And yet, in the United States, non-Hispanic white |
| 26 | | women who can afford to pay out-of-pocket for their labor |
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| 1 | | and delivery costs access planned home birth care at the |
| 2 | | greatest rate. Similarly, an analysis of birth certificate |
| 3 | | data from the Centers for Disease Control and Prevention |
| 4 | | for the years 2016-2019 shows that non-Hispanic white |
| 5 | | mothers are 7 times more likely than non-Hispanic Black |
| 6 | | mothers to experience a planned home birth. |
| 7 | | (5) According to calculations based on birth |
| 8 | | certificate data from July 2019 in Cook County, there |
| 9 | | would have to be 7 Black or African-American certified |
| 10 | | professional midwives working in Cook County in order for |
| 11 | | just 1% of Black mothers in Cook County to have access to |
| 12 | | racially concordant midwifery care in a given month. |
| 13 | | (6) For birthing persons of sufficient health who |
| 14 | | desire to give birth outside of an institutional setting |
| 15 | | without the assistance of epidural analgesia, planned home |
| 16 | | birth under the care of a certified professional midwife |
| 17 | | can be a dignifying and safe, evidence-based choice. In |
| 18 | | contrast, regulatory impingement on Black families' |
| 19 | | ability to access that choice does not serve to enhance |
| 20 | | maternal or neonatal safety, but instead reifies the |
| 21 | | institutionalization of Black bodies by the State. |
| 22 | | (7) In order to make safe, planned home births |
| 23 | | accessible to Black families in Illinois, the State must |
| 24 | | require Medicaid provider networks to include certified |
| 25 | | professional midwives. According to natality data from the |
| 26 | | Centers for Disease Control and Prevention, every year |
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| 1 | | from 2016 through 2019, 2 out of every 3 live births to |
| 2 | | Black or African-American mothers living in Cook County |
| 3 | | utilized Medicaid as the source of payment for delivery. |
| 4 | | According to that same data, Medicaid paid for over 14,000 |
| 5 | | deliveries to Black or African-American mothers residing |
| 6 | | in Cook County during the year 2019 alone. |
| 7 | | (8)
A population-level, retrospective cohort study |
| 8 | | published in 2018 that used province-wide maternity, |
| 9 | | medical billing, and demographic data from British |
| 10 | | Columbia, Canada concluded that antenatal midwifery care |
| 11 | | in British Columbia was associated with lower odds of |
| 12 | | small-for-gestational-age birth, preterm birth, and low |
| 13 | | birth weight for women of low socioeconomic position |
| 14 | | compared with physician models of care. Results support |
| 15 | | the development of policy to ensure antenatal midwifery |
| 16 | | care is available and accessible for women of low |
| 17 | | socioeconomic position. |
| 18 | | (9)
In its January 2018 report to the General |
| 19 | | Assembly, the Department of Healthcare and Family Services |
| 20 | | reported that its infant and maternal care expenditures in |
| 21 | | calendar year 2015 totaled $1,410,000,000. The Department |
| 22 | | of Healthcare and Family Services said, "(t)he majority of |
| 23 | | HFS birth costs are for births with poor outcomes. Costs |
| 24 | | for Medicaid covered births are increasing annually while |
| 25 | | the number of covered births is decreasing for the same |
| 26 | | period." The Department of Healthcare and Family Services' |
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| 1 | | expenditures average $12,000/birth during calendar year |
| 2 | | 2015 for births that did not involve poor outcomes such as |
| 3 | | low birth weight, very low birth weight, and infant |
| 4 | | mortality. That $12,000 expenditure covered prenatal, |
| 5 | | intrapartum, and postpartum maternal healthcare, as well |
| 6 | | as infant care through the first year of life. The next |
| 7 | | least expensive category of births averaged an expenditure |
| 8 | | of $40,200. The most expensive category of births refers |
| 9 | | to births resulting in very low birth weight which cost |
| 10 | | the Department of Healthcare and Family Services over |
| 11 | | $328,000 per birth. |
| 12 | | (10)
Expanding Medicaid coverage to include perinatal |
| 13 | | and intrapartum care by certified professional midwives |
| 14 | | will not contribute to increased taxpayer burden and, in |
| 15 | | fact, will likely decrease the Department of Healthcare |
| 16 | | and Family Services' expenditures on maternal care while |
| 17 | | improving maternal health outcomes within the Black |
| 18 | | community in Illinois.
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| 19 | | Section 10. Medicaid voucher pilot program. The Task Force |
| 20 | | on Infant and Maternal Mortality Among African Americans shall |
| 21 | | partner with community-based maternal care providers to |
| 22 | | develop rules and regulations for a Medicaid voucher pilot |
| 23 | | program to expand consumer choice for Black mothers that |
| 24 | | includes planned home birth services and in-home perinatal and |
| 25 | | postpartum care services provided by racially concordant |
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| 1 | | nationally accredited certified professional midwives who are |
| 2 | | licensed and registered in Illinois. The Department of |
| 3 | | Healthcare and Family Services shall implement the pilot |
| 4 | | program no later than January 1, 2023 and the pilot program |
| 5 | | shall operate for a 5-year period. On January 1, 2024, and each |
| 6 | | January 1 thereafter through January 1, 2028, the Task Force |
| 7 | | shall submit a report to the General Assembly that provides a |
| 8 | | status update on the pilot program and annual impact measure |
| 9 | | reporting. |
| 10 | | Section 15. Maternity episode payment model. The pilot |
| 11 | | program shall implement a maternity episode payment model that |
| 12 | | provides a single payment for all services across the |
| 13 | | prenatal, intrapartum, and postnatal period which covers the 9 |
| 14 | | months of pregnancy plus 12 weeks of postpartum.
The core |
| 15 | | elements of the maternity care episode payment model shall |
| 16 | | include all of the following:
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| 17 | | (1) Limited exclusion of selected high-cost health |
| 18 | | conditions and further adjustments to limit service |
| 19 | | provider risk such as risk adjustment and stop loss. |
| 20 | | (2) Duration from the initial entry into prenatal care |
| 21 | | through the postpartum and newborn periods. |
| 22 | | (3) Single payment for all services across the |
| 23 | | episode. |
| 24 | | The Department of Healthcare and Family Services shall |
| 25 | | make available to the Task Force all relevant data related to |