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1
HOUSE RESOLUTION

 
2    WHEREAS, Turner Syndrome is a rare and non-inheritable 
3chromosomal condition that occurs when the secondary X 
4chromosome is partially or completely missing for those born 
5female; and
 
6    WHEREAS, More than 98% of fetuses with Turner Syndrome 
7will die before birth, resulting in about 10% percent of all 
8first trimester miscarriages; and
 
9    WHEREAS, Turner Syndrome affects approximately one in 
102,000 female live births worldwide; and
 
11    WHEREAS, Three in 10 individuals diagnosed with Turner 
12Syndrome have Mosaic Turner Syndrome, for which the number of 
13X chromosomes can vary; and
 
14    WHEREAS, There are over 85,000 people living with Turner 
15Syndrome in the United States, and more than 30% of 
16individuals born with Turner Syndrome are not diagnosed until 
17they are 15 years old, with only 3.5% receiving adequate care; 
18and
 
19    WHEREAS, Those living with Turner Syndrome often face 
20lifelong cognitive, emotional, physical, and psychological 
 
 
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1challenges that can be better mitigated with early diagnosis 
2and treatment; therefore, be it
 
3    RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE 
4HUNDRED THIRD GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that 
5we declare February of 2024 as Turner Syndrome Awareness Month 
6in the State of Illinois; and be it further
 
7    RESOLVED, That we urge increased funding for Turner 
8Syndrome research and support; and be it further
 
9    RESOLVED, That we urge health care professionals, public 
10schools, educators, and the public to become more familiar 
11with Turner Syndrome in order to promote early diagnosis, 
12support those living with Turner Syndrome, and raise support 
13for organizations dedicated to improving the lives of people 
14with Turner Syndrome.