HR0636LRB103 39786 LAW 70352 r

1
HOUSE RESOLUTION

 
2    WHEREAS, Duchenne muscular dystrophy affects approximately 
3one out of every 5,000 live male births; and
 
4    WHEREAS, Globally, 20,000 children are diagnosed with 
5Duchenne muscular dystrophy each year; and
 
6    WHEREAS, There are an estimated 15,000 people in the U.S. 
7living with Duchenne muscular dystrophy; and
 
8    WHEREAS, With increased funding for research and rapidly 
9improving treatments, people with Duchenne muscular dystrophy 
10have more hope than before; however, there is currently no 
11cure for Duchenne muscular dystrophy; and
 
12    WHEREAS, Earlier diagnosis of Duchenne muscular dystrophy 
13in children could improve health outcomes for those affected; 
14and
 
15    WHEREAS, Symptoms of Duchenne muscular dystrophy include 
16progressive loss of strength and function in the hips, thighs, 
17shoulders, pelvis, arms, lower legs, and trunk; later in life, 
18strength in the muscles of the heart and lungs, heart 
19function, and breathing are also affected; and
 
 
 
HR0636- 2 -LRB103 39786 LAW 70352 r

1    WHEREAS, Newborn screening will improve health outcomes 
2for children with Duchenne muscular dystrophy; therefore, be 
3it
 
4    RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE 
5HUNDRED THIRD GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that 
6we declare September 7, 2024 as Duchenne Muscular Dystrophy 
7Awareness Day in the State of Illinois; and be it further
 
8    RESOLVED, That suitable copies of this resolution be 
9presented to Parent Project Muscular Dystrophy (PPMD) with our 
10sincere appreciation for their efforts to address Duchenne 
11muscular dystrophy.