SB3049 - 104th General Assembly (2025-2026)
NEWBORN METABOLIC SCREENING
Last Action
3/11/2026 - Senate: Placed on Calendar Order of 2nd Reading March 12, 2026
Statutes Amended In Order of Appearance
Synopsis As Introduced
Amends the Genetic and Metabolic Diseases Advisory Committee Act. Changes the name of the Genetic and Metabolic Diseases Advisory Committee to the Universal Newborn Screening Advisory Committee. Adds duties for the Committee, including duties to hold quarterly meetings, review conditions, make recommendations, and prepare reports. Makes conforming changes in the short title of the Act, the Newborn Metabolic Screening Act, and the Rare Disease Commission Act. Effective immediately.
Senate Committee Amendment No. 1
Deletes reference to:
Replaces everything after the enacting clause with the provisions of the introduced bill with the following changes. Provides that, beginning January 1, 2027, the Universal Newborn Screening Advisory Committee shall review all new conditions added to the federal Recommended Uniform Screening Panel within 12 months of the condition being added to the Panel, as long as the condition meets the requirements. Further provides that if the Panel includes conditions not screened by the State on the effective date of the amendatory Act, the Committee shall begin review of the condition no later than one year after the effective date of the Act. Deletes changes to the short title of the Genetic and Metabolic Diseases Advisory Committee Act. In provisions regarding purposes of the Committee, provides that the Committee shall carry out those purposes, as well as other duties, to include conducting reviews of conditions, making formal recommendations, and submitting annual reports to the Governor and the General Assembly. Deletes provisions regarding duties of the Committee. Deletes changes to the Rare Disease Commission Act. Makes technical changes.
Actions
| Date | Chamber | Action |
|---|---|---|
| 1/29/2026 | Senate | Filed with Secretary by Sen. Julie A. Morrison |
| 1/29/2026 | Senate | First Reading |
| 1/29/2026 | Senate | Referred to Assignments |
| 3/03/2026 | Senate | Assigned to Public Health |
| 3/03/2026 | Senate | Senate Committee Amendment No. 1 Filed with Secretary by Sen. Julie A. Morrison |
| 3/03/2026 | Senate | Senate Committee Amendment No. 1 Referred to Assignments |
| 3/04/2026 | Senate | Senate Committee Amendment No. 1 Assignments Refers to Public Health |
| 3/10/2026 | Senate | Senate Committee Amendment No. 1 Adopted |
| 3/11/2026 | Senate | Do Pass as Amended Public Health; 010-000-000 |
| 3/11/2026 | Senate | Placed on Calendar Order of 2nd Reading March 12, 2026 |