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| 1 | HOUSE RESOLUTION | ||||||
| 2 | WHEREAS, Myalgic encephalomyelitis (ME), also known as | ||||||
| 3 | chronic fatigue syndrome (CFS), is a complex, debilitating | ||||||
| 4 | neurological and immunological disease that affects millions | ||||||
| 5 | worldwide, including an estimated two to three million people | ||||||
| 6 | in the United States; and | ||||||
| 7 | WHEREAS, ME/CFS is characterized by profound fatigue, | ||||||
| 8 | post-exertional malaise, a worsening of symptoms after even | ||||||
| 9 | minor exertion, cognitive impairment "brain fog", chronic | ||||||
| 10 | pain, immune dysfunction, dizziness, and a range of other | ||||||
| 11 | disabling symptoms that significantly reduce quality of life; | ||||||
| 12 | and | ||||||
| 13 | WHEREAS, ME/CFS can affect individuals of all ages, | ||||||
| 14 | genders, and backgrounds, often leaving patients bedridden or | ||||||
| 15 | housebound for years or even a lifetime, with only a small | ||||||
| 16 | percentage achieving full recovery; and | ||||||
| 17 | WHEREAS, Scientific research has demonstrated that ME/CFS | ||||||
| 18 | is a serious, multi-system disease, yet it remains | ||||||
| 19 | underfunded, under-researched, and widely misunderstood, | ||||||
| 20 | contributing to significant delays in diagnosis, limited | ||||||
| 21 | treatment options, and ongoing stigma for patients; and | ||||||
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| 1 | WHEREAS, Over 65 million people worldwide, including those | ||||||
| 2 | suffering from long COVID and other post-viral conditions, now | ||||||
| 3 | face similar challenges, highlighting the urgent need for | ||||||
| 4 | increased biomedical research, healthcare provider education, | ||||||
| 5 | and public awareness of infection-associated chronic | ||||||
| 6 | conditions; and | ||||||
| 7 | WHEREAS, The economic impact of ME/CFS in the U.S. alone | ||||||
| 8 | is estimated to be in the hundreds of billions of dollars | ||||||
| 9 | annually due to lost productivity, medical costs, and the need | ||||||
| 10 | for full-time caregiving; and | ||||||
| 11 | WHEREAS, Recognizing ME/CFS and related conditions as | ||||||
| 12 | serious public health concerns will help accelerate research | ||||||
| 13 | funding, improve clinical care, and promote policies that | ||||||
| 14 | support affected individuals and their families; therefore, be | ||||||
| 15 | it | ||||||
| 16 | RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE | ||||||
| 17 | HUNDRED FOURTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that | ||||||
| 18 | we declare May 12, 2025 as Myalgic Encephalomyelitis/Chronic | ||||||
| 19 | Fatigue Syndrome Awareness Day in the State of Illinois in | ||||||
| 20 | recognition of the millions of people living with ME/CFS and | ||||||
| 21 | related post-infectious diseases; and be it further | ||||||
| 22 | RESOLVED, That suitable copies of this resolution be | ||||||
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| 1 | presented to Gabriel Henry Hull and his mother, Rebbeca Groble | ||||||
| 2 | Hull. | ||||||