HR0893 104TH GENERAL ASSEMBLY

HR0893 LRB104 21821 LAW 37569 r

HOUSE RESOLUTION

WHEREAS, Ehlers-Danlos Syndrome (EDS) is an inherited condition that affects the connective tissues of the body; and

WHEREAS, Connective tissues provide support in skin, tendons, ligaments, blood vessels, internal organs, and bones; and

WHEREAS, There are 13 types of EDS caused by genetic defects in collagen, one of the major structural components of the body; and

WHEREAS, Symptoms of EDS may include joint hypermobility, loose or unstable joints that dislocate easily, joint pain, skin that bruises easily, digestive problems, dizziness and increased heart rate when standing up, and problems with internal organs; and

WHEREAS, Early and accurate diagnosis can provide the opportunity to create lifesaving medical plans, to improve quality of life, and to access appropriate medical care; and

WHEREAS, Eighty percent of people with EDS also have postural orthostatic tachycardia syndrome (POTS); and

WHEREAS, POTS causes an individual's heart rate to increase quickly after getting up from sitting or lying down, causing symptoms such as dizziness or light-headedness, fainting or almost fainting, heart palpitations, chest pain, shortness of breath, and shaking or sweating; and

WHEREAS, Those suffering from POTS may also have additional medical problems, including digestion problems such as feeling or being sick, diarrhea, constipation, bloating and stomach pain, headaches and problems with sight such as blurred vision or tunnel vision, hands and feet looking purple, weakness and extreme fatigue, and problems with thinking, memory, and concentration; and

WHEREAS, It is estimated that the prevalence of all types of EDS combined affect at least 1 in 500 people worldwide, and recent research indicates that it is likely underdiagnosed; and

WHEREAS, EDS may significantly decrease both quantity and quality of life for those affected; and

WHEREAS, Currently, there is no treatment and no known cure for EDS; however, further medical research and awareness could bring hope for those with EDS; and

WHEREAS, A network of EDS support groups can help connect those managing life with this disease; additionally, they can help inform the health care community and the public; therefore, be it

RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE HUNDRED FOURTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we declare May 2026 as Ehlers-Danlos Syndrome (EDS) Awareness Month in honor of those surviving daily with EDS, and we encourage scientific research and funding towards finding a cure.