104TH GENERAL ASSEMBLY
State of Illinois
2025 and 2026
SB2400
 
Introduced 2/7/2025, by Sen. Bill Cunningham
 
SYNOPSIS AS INTRODUCED:
 
210 ILCS 60/16 new
    Amends the Hospice Program Licensing Act. Requires the Department of Public Health to develop and implement a standardized system for collecting data from hospice providers across the State. Provides that the data shall include demographic information of hospice patients, including age, race, gender, and geographic location; service utilization metrics, such as average length of stay in hospice care and types of services provided; patient and family satisfaction data, collected through voluntary surveys; and workforce data, including the availability and turnover rates of hospice staff. Requires the data to be collected in compliance with applicable federal and State privacy laws. Provides that the Department shall compile an annual report summarizing key findings from the collected data, and requires the report to be submitted to the Governor and General Assembly and made publicly available on the Department's website.


LRB104 10977 BAB 21059 b

 
 
A BILL FOR
 
SB2400LRB104 10977 BAB 21059 b

1    AN ACT concerning regulation.
 
2    Be it enacted by the People of the State of Illinois, 
3represented in the General Assembly:
 
4    Section 5. The Hospice Program Licensing Act is amended by 
5adding Section 16 as follows:
 
6    (210 ILCS 60/16 new)
7    Sec. 16. Data collection and reporting. 
8    (a) The Department shall develop and implement a 
9standardized system for collecting data from hospice providers 
10across the State.
11    (b) The data collected shall include, but not be limited 
12to:
13        (1) Demographic information of hospice patients, 
14    including age, race, gender, and geographic location.
15        (2) Service utilization metrics, such as average 
16    length of stay in hospice care and types of services 
17    provided.
18        (3) Patient and family satisfaction data, collected 
19    through voluntary surveys.
20        (4) Workforce data, including the availability and 
21    turnover rates of hospice staff.
22    (c) Data shall be collected in compliance with all 
23applicable federal and State privacy laws, including the 
 
 
SB2400- 2 -LRB104 10977 BAB 21059 b

1Health Insurance Portability and Accountability Act (HIPAA), 
2to protect patient and provider confidentiality.
3    (d) The Department shall compile an annual report 
4summarizing key findings from the collected data. The report 
5shall include:
6        (1) trends in hospice service utilization and quality;
7        (2) geographic and demographic disparities in access 
8    to care; and
9        (3) recommendations for addressing identified gaps or 
10    challenges.
11    (e) The annual report shall be submitted to the Governor 
12and the General Assembly and made publicly available on the 
13Department's website.