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| 1 | AN ACT concerning State government. | ||||||
| 2 | Be it enacted by the People of the State of Illinois, | ||||||
| 3 | represented in the General Assembly: | ||||||
| 4 | Section 5. The Department of Public Health Powers and | ||||||
| 5 | Duties Law of the Civil Administrative Code of Illinois is | ||||||
| 6 | amended by adding Section 2310-750 as follows: | ||||||
| 7 | (20 ILCS 2310/2310-750 new) | ||||||
| 8 | Sec. 2310-750. Sudden unexpected death in epilepsy. | ||||||
| 9 | (a) As used in this Section, "sudden unexpected death in | ||||||
| 10 | epilepsy" means sudden, unexpected death in a patient with | ||||||
| 11 | epilepsy, with or without evidence of a seizure. | ||||||
| 12 | (b)The Department shall undertake a public education | ||||||
| 13 | campaign to bring broad public awareness to communities across | ||||||
| 14 | this State of the risk of sudden unexpected death in epilepsy | ||||||
| 15 | that is focused on providing the public with: | ||||||
| 16 | (1) current and evidence-based information about | ||||||
| 17 | sudden unexpected death in epilepsy risk factors and | ||||||
| 18 | conditions reviewed and approved by one or more | ||||||
| 19 | professional not-for-profit organizations with expertise | ||||||
| 20 | in neurology and epilepsy; and | ||||||
| 21 | (2) contact information for nonprofit organizations | ||||||
| 22 | that provide information and support services for epilepsy | ||||||
| 23 | conditions. | ||||||
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| 1 | (c) The Department shall post the information listed in | ||||||
| 2 | subsection (a) on the Department's website, with the following | ||||||
| 3 | requirements: | ||||||
| 4 | (1) the Department shall ensure that the information | ||||||
| 5 | under this Section is culturally and linguistically | ||||||
| 6 | appropriate for all recipients; | ||||||
| 7 | (2) any local or national organization that provides | ||||||
| 8 | education or services related to epilepsy conditions may | ||||||
| 9 | request that the Department include on its website that | ||||||
| 10 | organization's informational material and contact | ||||||
| 11 | information; if the Department determines that the | ||||||
| 12 | organization's informational material, contact | ||||||
| 13 | information, or both are necessary or appropriate under | ||||||
| 14 | this Section, the Department may include the | ||||||
| 15 | organization's informational material, contact | ||||||
| 16 | information, or both on its website, in written | ||||||
| 17 | information provided under this subsection (c), or both; | ||||||
| 18 | and | ||||||
| 19 | (3) the Department shall, in consultation with local | ||||||
| 20 | and national organizations that provide education or | ||||||
| 21 | services related to epilepsy conditions, provide guidance | ||||||
| 22 | to health care practitioners in determining whether a | ||||||
| 23 | patient is at elevated risk for sudden unexpected death in | ||||||
| 24 | epilepsy, including, but not limited to, whether the | ||||||
| 25 | patient has had convulsive seizures, the frequency and | ||||||
| 26 | recency of such seizures, and whether the patient's | ||||||
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| 1 | symptoms have subsided in response to medicinal or | ||||||
| 2 | surgical treatment. | ||||||
| 3 | (d) The Department shall adopt rules implementing this | ||||||
| 4 | Section. | ||||||