SB3045 104TH GENERAL ASSEMBLY

LRB104 17643 KTG 31074 b

104TH GENERAL ASSEMBLY
State of Illinois
2025 and 2026
SB3045

Introduced 1/28/2026, by Sen. Sara Feigenholtz

SYNOPSIS AS INTRODUCED:

20 ILCS 2205/2205-45 new

Amends the Department of Healthcare and Family Services Law. Requires the Department of Healthcare and Family Services to conduct a statewide one-year pilot program that studies the prevalence of cholestatic liver disorders associated with increased risk of end-stage liver disease among women ages 35 through 64 who are recipients of medical assistance. Requires the Department to collect the following information on study participants: (1) key demographics such as age, genetic predispositions, pre-existing conditions, and lifestyle factors that elevate the risk of developing cholestatic liver disorders; (2) the number or percentage of study participants who, despite being identified as high-risk, do not follow through with referrals or treatment recommendations; (3) the number of study participants who avoid referral and follow-up care or engage in treatment avoidance; and (4) any other relevant information or issues identified by the Department. Requires the Department to compile a report on its findings at the end of the one-year study and include (i) recommendations on how to increase awareness of cholestatic liver disorders through screenings, genetic testing, and collaboration with patient advocacy groups to raise public awareness and (ii) an analysis of strategies and funding to increase screening and genetic testing for cholestatic liver disorders. Provides that the Department shall submit the report to the General Assembly no later than December 31, 2028. Effective immediately.

A BILL FOR

AN ACT concerning State government.

Be it enacted by the People of the State of Illinois, represented in the General Assembly:

Section 5. The Department of Healthcare and Family Services Law of the Civil Administrative Code of Illinois is amended by adding Section 2205-45 as follows:

(20 ILCS 2205/2205-45 new)

Sec. 2205-45. Pilot program; cholestatic liver disorders in women.

(a) The Department of Healthcare and Family Services shall conduct a statewide one-year pilot program that studies the prevalence of cholestatic liver disorders associated with increased risk of end-stage liver disease among women ages 35 through 64 who are recipients of medical assistance under Article V of the Illinois Public Aid Code. During the pilot program, the Department shall collect the following information on study participants:

(1) Key demographics such as age, genetic predispositions, pre-existing conditions (such as, but not limited to, autoimmune diseases and metabolic disorders) and lifestyle factors that elevate the risk of developing cholestatic liver disorders.

(2) The number or percentage of study participants who, despite being identified as high-risk, do not follow through with referrals or treatment recommendations.

(3) The number of study participants who avoid referral and follow-up care or engage in treatment avoidance.

(4) Other relevant information or issues identified by the Department.

(b) At the end of the one-year pilot program, the Department shall review the collected data and information and compile it into a written report that includes:

(1) Recommendations on how to (i) increase awareness of cholestatic liver disorders, including screenings and genetic testing, and (ii) collaborate with patient advocacy groups to raise public awareness through social media, seminars, and community outreach initiatives.

(2) An analysis of strategies and funding to increase screening and genetic testing for cholestatic liver disorders. The analysis must include recommendations on how to promote public-private partnerships to ensure sustainable funding for genetic research and testing infrastructure.

All information collected and reported shall be handled in accordance with all applicable State and federal privacy laws and regulations.

The Department of Healthcare and Family Services shall submit the report to the General Assembly no later than December 31, 2028.

Section 99. Effective date. This Act takes effect upon becoming law.