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| 1 | AN ACT concerning health. | |||||||||||||||||||
| 2 | Be it enacted by the People of the State of Illinois, | |||||||||||||||||||
| 3 | represented in the General Assembly: | |||||||||||||||||||
| 4 | Section 1. Short title. This Act may be cited as the | |||||||||||||||||||
| 5 | Bereavement Care for All Act. | |||||||||||||||||||
| 6 | Section 5. Findings; purpose. | |||||||||||||||||||
| 7 | (a) The General Assembly finds that: | |||||||||||||||||||
| 8 | (1) Bereavement is a universal human experience and a | |||||||||||||||||||
| 9 | significant health, economic, and educational concern | |||||||||||||||||||
| 10 | affecting communities throughout Illinois. | |||||||||||||||||||
| 11 | (2) Approximately 1 in 12 Illinois children experience | |||||||||||||||||||
| 12 | the death of a parent or sibling before age 18, and this | |||||||||||||||||||
| 13 | number nearly doubles by age 25. | |||||||||||||||||||
| 14 | (3) Bereavement is associated with increased risk of | |||||||||||||||||||
| 15 | depression, suicide, substance use disorder, poor school | |||||||||||||||||||
| 16 | outcomes, workforce instability, chronic disease, and | |||||||||||||||||||
| 17 | financial hardship. | |||||||||||||||||||
| 18 | (4) Sudden and unexpected deaths, including suicide, | |||||||||||||||||||
| 19 | overdose, homicide, maternal mortality, and infant | |||||||||||||||||||
| 20 | mortality, have reached record levels in Illinois, yet | |||||||||||||||||||
| 21 | bereavement care remains largely absent from statewide | |||||||||||||||||||
| 22 | behavioral health planning and funding priorities. | |||||||||||||||||||
| 23 | (5) Racial disparities in mortality result in | |||||||||||||||||||
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| 1 | disproportionate and earlier, more frequent exposure to | ||||||
| 2 | loss in Black communities and historically marginalized | ||||||
| 3 | communities. | ||||||
| 4 | (6) Institutional systems often fail to identify and | ||||||
| 5 | respond to bereavement, resulting in fragmented care and | ||||||
| 6 | missed opportunities for support. In addition, most | ||||||
| 7 | professionals receive little or no training in | ||||||
| 8 | grief-informed practices, limiting effective support for | ||||||
| 9 | grieving individuals and families. | ||||||
| 10 | (7) Investing in coordinated, equitable, and | ||||||
| 11 | culturally responsive bereavement care will mitigate | ||||||
| 12 | immediate and long-term physical, behavioral, educational, | ||||||
| 13 | and economic consequences of loss. | ||||||
| 14 | (b) The purpose of this Act is to establish a | ||||||
| 15 | comprehensive statewide bereavement care strategy to improve | ||||||
| 16 | access to support, strengthen workforce capacity, reduce | ||||||
| 17 | disparities, and integrate grief-informed practices across | ||||||
| 18 | Illinois public systems. | ||||||
| 19 | Section 10. Definitions. As used in this Act: | ||||||
| 20 | "Bereavement" means the experience of loss due to death. | ||||||
| 21 | "Grief-informed" means having policies and practices that | ||||||
| 22 | recognize the prevalence and impact of bereavement and promote | ||||||
| 23 | a holistic understanding, compassionate, culturally responsive | ||||||
| 24 | care, and coordinated access to appropriate supports and | ||||||
| 25 | resources. | ||||||
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| 1 | "State agency" means any department, board, commission, or | ||||||
| 2 | authority of the executive branch. | ||||||
| 3 | Section 15. Bereavement Care Strategic Plan. | ||||||
| 4 | (a) The Department of Public Health shall develop a | ||||||
| 5 | statewide Bereavement Care Strategic Plan, in consultation | ||||||
| 6 | with statewide professional organizations and State agency | ||||||
| 7 | representatives, including, but not limited to: | ||||||
| 8 | (1) the Department of Public Health; | ||||||
| 9 | (2) the Department of Human Services; | ||||||
| 10 | (3) the State Board of Education; | ||||||
| 11 | (4) the Department of Healthcare and Family Services; | ||||||
| 12 | (5) the Department of Children and Family Services; | ||||||
| 13 | (6) the Illinois Criminal Justice Information | ||||||
| 14 | Authority; | ||||||
| 15 | (7) at least 3 community-based bereavement providers; | ||||||
| 16 | (8) representatives from communities | ||||||
| 17 | disproportionately impacted by premature death; and | ||||||
| 18 | (9) at least 2 individuals with lived experience of | ||||||
| 19 | bereavement. | ||||||
| 20 | (b) The Strategic plan shall: | ||||||
| 21 | (1) recommend standards for grief-informed training | ||||||
| 22 | and protocols; | ||||||
| 23 | (2) identify gaps in services across geographic | ||||||
| 24 | regions; and | ||||||
| 25 | (3) identify funding opportunities, including federal | ||||||
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| 1 | and settlement funds. | ||||||
| 2 | (c) The Department of Public Health, in consultation with | ||||||
| 3 | statewide professional organizations and State agency | ||||||
| 4 | representatives described under subsection (a), shall submit | ||||||
| 5 | recommendations to the Governor and General Assembly within 18 | ||||||
| 6 | months after the effective date of this Act and shall review | ||||||
| 7 | and update the Bereavement Care Strategic Plan every 3 years | ||||||
| 8 | thereafter. | ||||||
| 9 | Section 20. Statewide Bereavement Resource and Navigation | ||||||
| 10 | Hub. | ||||||
| 11 | (a) The Department of Public Health shall establish or | ||||||
| 12 | designate a centralized Statewide Bereavement Resource and | ||||||
| 13 | Navigation Hub. | ||||||
| 14 | (b) The Statewide Bereavement Resource and Navigation Hub | ||||||
| 15 | shall: | ||||||
| 16 | (1) maintain a publicly accessible, searchable | ||||||
| 17 | directory of community-based, culturally responsive | ||||||
| 18 | bereavement services; | ||||||
| 19 | (2) provide navigation assistance for families seeking | ||||||
| 20 | services; | ||||||
| 21 | (3) include resources related to Social Security | ||||||
| 22 | survivor benefits and victim compensation; | ||||||
| 23 | (4) coordinate with 2-1-1 systems and existing health | ||||||
| 24 | and human service platforms; and | ||||||
| 25 | (5) prioritize outreach in high-need and underserved | ||||||
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| 1 | regions. | ||||||
| 2 | Section 25. Grief-informed education and workforce | ||||||
| 3 | training. | ||||||
| 4 | (a) The State Board of Education shall develop model | ||||||
| 5 | guidance for school districts to: | ||||||
| 6 | (1) identify grieving students; | ||||||
| 7 | (2) establish grief-informed protocols for responding | ||||||
| 8 | to deaths within their school community; | ||||||
| 9 | (3) integrate grief awareness into social-emotional | ||||||
| 10 | learning frameworks. | ||||||
| 11 | (b) State-funded professional licensing boards shall | ||||||
| 12 | evaluate integration of, and may integrate, grief-informed | ||||||
| 13 | training and education into continuing education requirements | ||||||
| 14 | for: | ||||||
| 15 | (1) educators; | ||||||
| 16 | (2) mental health professionals; | ||||||
| 17 | (3) healthcare providers; | ||||||
| 18 | (4) first responders; | ||||||
| 19 | (5) criminal justice personnel; and | ||||||
| 20 | (6) funeral professionals. | ||||||
| 21 | (c) Education and training under this Section shall | ||||||
| 22 | prioritize culturally responsive and developmentally | ||||||
| 23 | appropriate approaches. | ||||||
| 24 | Section 30. Screening and identification protocols. | ||||||
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| 1 | (a) The Department of Public Health, in consultation with | ||||||
| 2 | relevant agencies, shall develop model screening tools for use | ||||||
| 3 | in schools and healthcare settings to identify bereaved | ||||||
| 4 | children and adults and connect them with appropriate | ||||||
| 5 | resources. | ||||||
| 6 | (b) The Department of Public Health shall evaluate the | ||||||
| 7 | feasibility of adding, and may add, an optional checkbox to | ||||||
| 8 | death certificates indicating whether the deceased leaves | ||||||
| 9 | behind dependent children, for purposes of survivor benefit | ||||||
| 10 | outreach and service connection. | ||||||
| 11 | (c) Implementation of this Section shall comply with all | ||||||
| 12 | privacy and confidentiality laws. | ||||||
| 13 | Section 35. Data; reporting; rules. | ||||||
| 14 | (a) The Department of Public Health shall improve data | ||||||
| 15 | collection regarding bereavement prevalence and disparities. | ||||||
| 16 | (b) The Department of Public Health shall submit a report, | ||||||
| 17 | concurrently with the recommendations submitted within 18 | ||||||
| 18 | months after the effective date of this Act and every 3 years | ||||||
| 19 | thereafter under subsection (c) of Section 15, containing | ||||||
| 20 | summaries of the following information: | ||||||
| 21 | (1) service utilization; | ||||||
| 22 | (2) identified gaps; | ||||||
| 23 | (3) disparities in access; and | ||||||
| 24 | (4) recommendations for further action. | ||||||
| 25 | (c) The Department of Public Health may adopt any rules | ||||||
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| 1 | necessary to implement and administer this Act. | ||||||