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| 1 | AN ACT concerning public health.
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| 2 | Be it enacted by the People of the State of Illinois,
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| 3 | represented in the General Assembly:
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| 4 | Section 5. The Department of Public Health Powers and | ||||||||||||||||||||||||
| 5 | Duties Law of the
Civil Administrative Code of Illinois is | ||||||||||||||||||||||||
| 6 | amended by adding Section 2310-338 as follows: | ||||||||||||||||||||||||
| 7 | (20 ILCS 2310/2310-338 new) | ||||||||||||||||||||||||
| 8 | Sec. 2310-338. Asthma reporting. | ||||||||||||||||||||||||
| 9 | (a) The Department shall establish and maintain a program | ||||||||||||||||||||||||
| 10 | to accept reports of asthma cases occurring in the State.
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| 11 | Every each physician must, within 180 days, give notice to | ||||||||||||||||||||||||
| 12 | the Department of every case of asthma coming under his or her | ||||||||||||||||||||||||
| 13 | care. | ||||||||||||||||||||||||
| 14 | (b) The person in charge of every asthma reporting facility | ||||||||||||||||||||||||
| 15 | must, within 180 days, give notice of every case of asthma | ||||||||||||||||||||||||
| 16 | coming under the care of that facility to
the Department. | ||||||||||||||||||||||||
| 17 | All abstracting work performed by an asthma reporting | ||||||||||||||||||||||||
| 18 | facility under the reporting provisions of this Section shall | ||||||||||||||||||||||||
| 19 | be performed by a certified asthma registrar. Asthma reporting | ||||||||||||||||||||||||
| 20 | facilities may establish consortia to engage a certified asthma | ||||||||||||||||||||||||
| 21 | registrar to perform the reporting requirements of this | ||||||||||||||||||||||||
| 22 | Section. A "certified asthma registrar"
is an individual | ||||||||||||||||||||||||
| 23 | certified by a nationally recognized not-for-profit | ||||||||||||||||||||||||
| 24 | organization that certifies asthma registrars. The provisions | ||||||||||||||||||||||||
| 25 | of this subsection do not apply to any asthma reporting | ||||||||||||||||||||||||
| 26 | facility that renders services for 100 or fewer cases of asthma | ||||||||||||||||||||||||
| 27 | per year, as determined by the Department. | ||||||||||||||||||||||||
| 28 | (c) The Department shall create, and update as necessary, a | ||||||||||||||||||||||||
| 29 | manual designating which specific data elements must be | ||||||||||||||||||||||||
| 30 | reported to the Department under this Section. The Department | ||||||||||||||||||||||||
| 31 | shall make this manual available to every asthma reporting | ||||||||||||||||||||||||
| 32 | facility and physician required to comply with the provisions | ||||||||||||||||||||||||
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| 1 | of this Section. | ||||||
| 2 | The Department shall establish and update as necessary a | ||||||
| 3 | data
dictionary to standardize information interpretation of | ||||||
| 4 | data elements
reported by asthma reporting facilities and other | ||||||
| 5 | health care providers.
The Department must make this dictionary | ||||||
| 6 | available to every asthma
reporting facility and physician | ||||||
| 7 | required to comply with the provisions
of this Section. | ||||||
| 8 | The Department shall, subject to appropriation,
establish | ||||||
| 9 | or contract for regional training programs to provide training
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| 10 | to any asthma reporting facility or physician required to | ||||||
| 11 | comply with
the provisions of this Section. The regional | ||||||
| 12 | training programs must
provide training relating to the | ||||||
| 13 | specific data elements that must be
reported under this | ||||||
| 14 | Section, the data dictionary, and any other subjects that are | ||||||
| 15 | intended to
ensure quality, timely, and complete compliance | ||||||
| 16 | with this Section. | ||||||
| 17 | The Department shall meet asthma registry goals | ||||||
| 18 | established by a
nationally recognized central asthma registry | ||||||
| 19 | organization, unless any
such goal is contrary to any provision | ||||||
| 20 | of law. | ||||||
| 21 | If an asthma reporting facility fails to comply with the
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| 22 | provisions of this Section, the Department may elect to perform | ||||||
| 23 | registry
services for the facility. The asthma reporting | ||||||
| 24 | facility must reimburse the Department for actual expenses | ||||||
| 25 | incurred. | ||||||
| 26 | (d) If a physician or asthma reporting facility violates | ||||||
| 27 | any
provision of this Section, the Department must report that | ||||||
| 28 | violation to the licensing board or State agency that regulates | ||||||
| 29 | the physician or facility. | ||||||
| 30 | (e) The notices required by this Section shall be upon | ||||||
| 31 | forms supplied
by the Department and shall contain such | ||||||
| 32 | information as shall be
required by the Department. | ||||||
| 33 | (f) For the purposes of this Section, an "asthma reporting | ||||||
| 34 | facility"
means a hospital,
clinic, health maintenance | ||||||
| 35 | organization, or other similar public or private institution. | ||||||
| 36 | (g) The Department may adopt any rules necessary to | ||||||
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| 1 | implement this Section. | ||||||
| 2 | (h) The Department must submit
an annual report to the | ||||||
| 3 | General Assembly by December 31 of each year. The report must | ||||||
| 4 | include: an evaluation
of the asthma registry as it relates to | ||||||
| 5 | timeliness, quality, and
completeness; an evaluation of the | ||||||
| 6 | utility of the registry for scientific research; an evaluation | ||||||
| 7 | of the access, timeliness, and quality of
reporting information | ||||||
| 8 | to researchers and other similar individuals; an
evaluation of | ||||||
| 9 | the registry's data elements, including treatment, stage
of | ||||||
| 10 | disease, occupation, and residence; an evaluation of the | ||||||
| 11 | feasibility
and utility of inclusion of occupational history | ||||||
| 12 | and residence history;
and an evaluation of integrating the | ||||||
| 13 | registry with other databases
maintained by State agencies and | ||||||
| 14 | Departments. | ||||||
| 15 | The reports of asthma cases
made under the provisions of | ||||||
| 16 | this Section may not be divulged or
made public by any person | ||||||
| 17 | so as to disclose the identity of any person
to whom they | ||||||
| 18 | relate, except as authorized by law.
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