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1 | AN ACT concerning education.
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2 | Be it enacted by the People of the State of Illinois,
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3 | represented in the General Assembly:
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4 | Section 1. Short title. This Act may be cited as the Care | ||||||||||||||||||||||||||
5 | of Students with Diabetes Act. | ||||||||||||||||||||||||||
6 | Section 5. Legislative findings. The General Assembly | ||||||||||||||||||||||||||
7 | makes all of the following findings: | ||||||||||||||||||||||||||
8 | (1) Diabetes is a serious chronic disease that impairs | ||||||||||||||||||||||||||
9 | the body's ability to use food for energy. Insulin is a | ||||||||||||||||||||||||||
10 | hormone produced by the pancreas that helps convert food | ||||||||||||||||||||||||||
11 | into energy. In people with diabetes, either the pancreas | ||||||||||||||||||||||||||
12 | does not make insulin (type 1) or the body cannot use | ||||||||||||||||||||||||||
13 | insulin properly (type 2). Without insulin, the body's main | ||||||||||||||||||||||||||
14 | energy source, glucose, cannot be used to fuel the body so | ||||||||||||||||||||||||||
15 | glucose builds up in the blood. Over many years, high blood | ||||||||||||||||||||||||||
16 | glucose can cause damage to the eyes, kidneys, nerves, | ||||||||||||||||||||||||||
17 | heart, and blood vessels. | ||||||||||||||||||||||||||
18 | (2) Children with diabetes still face discrimination | ||||||||||||||||||||||||||
19 | in school and elsewhere despite the rights and protections | ||||||||||||||||||||||||||
20 | afforded by Section 504 of the Rehabilitation Act,
the | ||||||||||||||||||||||||||
21 | Individuals with Disabilities Education Act, and the | ||||||||||||||||||||||||||
22 | Americans with Disabilities Act. | ||||||||||||||||||||||||||
23 | (3) Diabetes must be managed 24 hours a day in order to |
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1 | (i) avoid the potentially life-threatening, short-term | ||||||
2 | consequences of blood sugar levels that are either too high | ||||||
3 | or too low; and (ii) prevent or delay the serious, | ||||||
4 | long-term complications of high blood sugar levels, which | ||||||
5 | include blindness, amputation, heart disease, and kidney | ||||||
6 | failure. | ||||||
7 | (4) Because diabetes imposes significant health risks, | ||||||
8 | it is vital that schools provide a safe learning | ||||||
9 | environment for students with diabetes. | ||||||
10 | (5) The school nurse is the most appropriate person in | ||||||
11 | a school setting to provide care for a student with | ||||||
12 | diabetes. However, many schools in this State do not have a | ||||||
13 | full-time nurse, and even if a nurse is assigned to a | ||||||
14 | school, the nurse will not always be available during the | ||||||
15 | school day, during extracurricular activities, or on field | ||||||
16 | trips. | ||||||
17 | (6) Additional school personnel who are not health care | ||||||
18 | professionals need to be trained to provide routine | ||||||
19 | diabetes care. Taking a team approach to diabetes care | ||||||
20 | builds on what schools already do for children with other | ||||||
21 | chronic diseases such as asthma and allergies. Thus, | ||||||
22 | current practices and existing resources can be easily | ||||||
23 | adapted for students with diabetes. | ||||||
24 | (7) Given the significant and increasing number of | ||||||
25 | students with type 1 and type 2 diabetes, the potential for | ||||||
26 | diabetes to impede a student's ability to learn, the risk |
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1 | for serious medical complications, and the protracted | ||||||
2 | processes currently required to enforce the rights and | ||||||
3 | protections afforded by federal law for students with | ||||||
4 | diabetes, the General Assembly deems it in the public | ||||||
5 | interest to enact the Care of Students with Diabetes Act.
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6 | Section 10. Definitions. In this Act: | ||||||
7 | "Diabetes management and treatment plan" means the | ||||||
8 | document developed by the student's personal physician or other | ||||||
9 | health care professional who specializes in the treatment of | ||||||
10 | diabetes that prescribes the care and assistance needed by the | ||||||
11 | student and that is signed by the parent or guardian and the | ||||||
12 | student's personal physician or other health care | ||||||
13 | professional. | ||||||
14 | "Individualized care plan" means the document developed by | ||||||
15 | the school with the student's parent or guardian that activates | ||||||
16 | the student's diabetes management and treatment plan and | ||||||
17 | details how the student's diabetes management and treatment | ||||||
18 | plan will be implemented in daycare, at school, or at | ||||||
19 | school-related activities and events, including field trips. | ||||||
20 | "Principal" means the senior administrative executive of a | ||||||
21 | school and includes the principal's designee or designees. | ||||||
22 | "School" means any public, charter, or private | ||||||
23 | pre-primary, primary, elementary, or secondary school located | ||||||
24 | in this State and includes a daycare provider. | ||||||
25 | "School employee" means (i) a person employed by a school, |
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1 | (ii) a person employed by a local health department and | ||||||
2 | assigned to a school, or (iii) a person who contracts with a | ||||||
3 | school or school district to perform services in connection | ||||||
4 | with the care of students with diabetes. | ||||||
5 | "Unlicensed diabetes care aide" means a school employee who | ||||||
6 | is trained in routine diabetes care.
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7 | Section 15. Diabetes management and treatment plan. A | ||||||
8 | diabetes management and treatment plan must be developed for | ||||||
9 | each student with diabetes who seeks assistance with the | ||||||
10 | routine diabetes care needed in daycare, at school, or at | ||||||
11 | school-related activities and events, including field trips. | ||||||
12 | The plan must do all of the following: | ||||||
13 | (1) Prescribe the diabetes care that the student needs. | ||||||
14 | (2) Evaluate the student's ability to self-manage and | ||||||
15 | perform routine diabetes care. | ||||||
16 | (3) Be signed by the student's parent or guardian and | ||||||
17 | the student's personal physician or other health care | ||||||
18 | professional. | ||||||
19 | (4) Be submitted to the school (i) before or at the | ||||||
20 | beginning of the school year; (ii) upon enrollment of the | ||||||
21 | student, if the student enrolls in the school after the | ||||||
22 | beginning of the school year; or (iii) as soon as | ||||||
23 | practicable following a diagnosis of diabetes for the | ||||||
24 | student.
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1 | Section 20. Individualized care plan. | ||||||
2 | (a) Upon receipt of a student's diabetes management and | ||||||
3 | treatment plan, the school principal and the school nurse, if | ||||||
4 | one is assigned to the school, shall develop an individualized | ||||||
5 | care plan for the student with the student's parent or | ||||||
6 | guardian. | ||||||
7 | (b) An individualized care plan must be developed for each | ||||||
8 | student with diabetes who seeks care for diabetes in daycare, | ||||||
9 | at school, or at school-related activities and events, | ||||||
10 | including field trips. The individualized care plan must do all | ||||||
11 | of the following: | ||||||
12 | (1) Incorporate the student's diabetes management and | ||||||
13 | treatment plan. | ||||||
14 | (2) Meet the unique care needs of a particular student | ||||||
15 | with diabetes in a particular school.
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16 | Section 25. Unlicensed diabetes care aides. | ||||||
17 | (a) At each school in which a student with diabetes is | ||||||
18 | enrolled, the school principal shall do all of the following: | ||||||
19 | (1) Seek school employees who are not health care | ||||||
20 | professionals to serve as unlicensed diabetes care aides to | ||||||
21 | assist students with routine diabetes care. | ||||||
22 | (2) Provide at least one unlicensed diabetes care aide | ||||||
23 | if a full-time nurse is assigned to the school. | ||||||
24 | (3) Provide at least 3 unlicensed diabetes care aides | ||||||
25 | if a full-time nurse is not assigned to the school. |
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1 | (b) An unlicensed diabetes care aide shall serve under the | ||||||
2 | supervision of the principal. | ||||||
3 | (c) A school employee must not be subject to any penalty or | ||||||
4 | disciplinary action for refusing to serve as an unlicensed | ||||||
5 | diabetes care aide.
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6 | Section 30. Training for unlicensed diabetes care aide. | ||||||
7 | (a) If a school nurse is assigned to a school, the school | ||||||
8 | nurse shall coordinate the training of school employees acting | ||||||
9 | as unlicensed diabetes care aides. | ||||||
10 | (b) Training under this Section must be provided by a | ||||||
11 | health care professional that specializes in the treatment of | ||||||
12 | diabetes or by the school nurse if he or she has been trained | ||||||
13 | in routine diabetes care. The training must be provided before | ||||||
14 | the beginning of the school year or as soon as practicable | ||||||
15 | following (i) the enrollment of a student with diabetes at a | ||||||
16 | school that previously had no students with diabetes or (ii) | ||||||
17 | diagnosis of diabetes for a student at a school that previously | ||||||
18 | had no students with diabetes. Thereafter, training must be | ||||||
19 | provided annually by a health care professional with expertise | ||||||
20 | in diabetes care and shall take place before the commencement | ||||||
21 | of each school year. | ||||||
22 | (c) Training under this Section must include instruction in | ||||||
23 | all of the following: | ||||||
24 | (1) The details of a student's individualized care | ||||||
25 | plan. |
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1 | (2) The symptoms of hypoglycemia and hyperglycemia. | ||||||
2 | (3) How to test blood glucose levels and record the | ||||||
3 | results. | ||||||
4 | (4) How to administer insulin. | ||||||
5 | (5) The recommended schedules and food intake for meals | ||||||
6 | and snacks for a student with diabetes, the effect of | ||||||
7 | physical activity on blood glucose levels, and the proper | ||||||
8 | actions to be taken if a student's schedule is disrupted. | ||||||
9 | (6) The proper action to take if the blood glucose | ||||||
10 | levels of a student with diabetes are outside the target | ||||||
11 | ranges indicated by the student's diabetes management and | ||||||
12 | treatment plan. | ||||||
13 | (7) The symptoms and complications of diabetes that | ||||||
14 | require emergency assistance. | ||||||
15 | (8) Actions to take in response to emergency | ||||||
16 | situations, including when and how to administer glucagon. | ||||||
17 | (d) When no other unlicensed diabetes care aides will be | ||||||
18 | traveling with students with diabetes, every school and school | ||||||
19 | district shall provide training to all bus drivers responsible | ||||||
20 | for the transportation of students with diabetes. | ||||||
21 | (e) The training of school personnel under this Section | ||||||
22 | must meet or exceed the recommendations and guidelines set | ||||||
23 | forth by the American Diabetes Association. | ||||||
24 | (f) The school nurse or principal shall maintain a copy of | ||||||
25 | the training guidelines and any records associated with the | ||||||
26 | training.
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1 | Section 35. Required care of students with diabetes. | ||||||
2 | (a) For each school in which a student with diabetes seeks | ||||||
3 | assistance, the school must ensure that every day and at all | ||||||
4 | activities at which the student is present there is either a | ||||||
5 | school nurse or an unlicensed diabetes care aide to provide | ||||||
6 | care. | ||||||
7 | (b) If a school nurse is assigned to a school and the nurse | ||||||
8 | is available, the nurse shall perform the tasks necessary to | ||||||
9 | assist a student with diabetes in accordance with the student's | ||||||
10 | individualized care plan. | ||||||
11 | (c) If a school nurse is not assigned to the school or a | ||||||
12 | school nurse is not available, an unlicensed diabetes care aide | ||||||
13 | shall perform the tasks necessary to assist the student with | ||||||
14 | diabetes in accordance with the student's individualized care | ||||||
15 | plan and in compliance with any guidelines provided during | ||||||
16 | training. | ||||||
17 | (d) An unlicensed diabetes care aide may provide routine | ||||||
18 | diabetes care only if the parent or guardian of the student | ||||||
19 | signs an agreement that does both of the following: | ||||||
20 | (1) Authorizes an unlicensed diabetes care aide to | ||||||
21 | assist the student. | ||||||
22 | (2) States that the parent or guardian understands that | ||||||
23 | an unlicensed diabetes care aide is not liable for civil | ||||||
24 | damages. | ||||||
25 | (e) The school nurse and the unlicensed diabetes care aide |
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1 | must have the emergency contact information for the student's | ||||||
2 | parent or guardian. | ||||||
3 | (f) At each school attended by a student with diabetes, | ||||||
4 | that school shall adopt a procedure to ensure that a school | ||||||
5 | nurse or at least one unlicensed diabetes care aide is | ||||||
6 | available to provide the required care to each student with | ||||||
7 | diabetes (i) during regular school hours, (ii) during | ||||||
8 | school-related activities and events, (iii) during before | ||||||
9 | school and after school programs, (iv) during field trips, and | ||||||
10 | (v) during extracurricular activities. | ||||||
11 | (g) A school shall provide to each employee responsible for | ||||||
12 | providing transportation for a student with diabetes or | ||||||
13 | supervising a student with diabetes during an off-campus | ||||||
14 | activity a one-page information sheet that does all of the | ||||||
15 | following: | ||||||
16 | (1) Identifies the student who has diabetes. | ||||||
17 | (2) Identifies potential emergencies that may occur as | ||||||
18 | a result of the student's diabetes and the appropriate | ||||||
19 | responses to such emergencies. | ||||||
20 | (3) Provides the telephone number of a contact person | ||||||
21 | in case of an emergency. | ||||||
22 | (h) A school district may not restrict the assignment of a | ||||||
23 | student with diabetes to a particular school on the basis that | ||||||
24 | the school does not have the required unlicensed diabetes care | ||||||
25 | aides. | ||||||
26 | (i) A student's choice of schools may not be restricted in |
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1 | any way because the student has diabetes. | ||||||
2 | (j) An unlicensed diabetes care aide, like other school | ||||||
3 | staff, acts in loco parentis and only as authorized by the | ||||||
4 | student's diabetes management and treatment plan.
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5 | Section 40. Independent monitoring and treatment. In | ||||||
6 | accordance with the student's diabetes management and | ||||||
7 | treatment plan, a student with diabetes must be permitted to | ||||||
8 | perform blood glucose tests, administer insulin through the | ||||||
9 | insulin delivery system the student uses, treat hypoglycemia | ||||||
10 | and hyperglycemia, and otherwise attend to the care and | ||||||
11 | management of his or her diabetes in the classroom, in any area | ||||||
12 | of the school or school grounds, and at any school-related | ||||||
13 | activity or event and to possess on his or her person, at all | ||||||
14 | times, the supplies and equipment necessary to perform the | ||||||
15 | monitoring and treatment functions described in this Section. | ||||||
16 | Section 45. Immunity from disciplinary action and | ||||||
17 | liability. | ||||||
18 | (a) School personnel must not be held liable for civil | ||||||
19 | damages that may result from acts or omissions as a result of | ||||||
20 | the activities authorized or required by this Act that may | ||||||
21 | constitute ordinary negligence. This immunity does not apply to | ||||||
22 | acts or omissions that constitute gross negligence or willful | ||||||
23 | or wanton conduct. | ||||||
24 | (b) A school employee must not be subject to any |
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1 | disciplinary proceeding resulting from an action taken in | ||||||
2 | compliance with this Act, unless that action constituted gross | ||||||
3 | negligence or willful or wanton conduct.
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4 | Section 90. The State Mandates Act is amended by adding | ||||||
5 | Section 8.31 as follows: | ||||||
6 | (30 ILCS 805/8.31 new) | ||||||
7 | Sec. 8.31. Exempt mandate. Notwithstanding Sections 6 and 8 | ||||||
8 | of this Act, no reimbursement by the State is required for the | ||||||
9 | implementation of any mandate created by the Care of Students | ||||||
10 | with Diabetes Act.
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11 | Section 99. Effective date. This Act takes effect upon | ||||||
12 | becoming law.
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