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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| AN ACT concerning public health.
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| Be it enacted by the People of the State of Illinois,
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| represented in the General Assembly:
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| Section 5. The Freedom of Information Act is amended by |
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| changing Section 7 as follows: |
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| (5 ILCS 140/7) (from Ch. 116, par. 207)
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| Sec. 7. Exemptions.
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| (1) The following shall be exempt from inspection and |
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| copying:
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| (a) Information specifically prohibited from |
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| disclosure by federal or
State law or rules and regulations |
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| adopted under federal or State law.
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| (b) Information that, if disclosed, would constitute a |
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| clearly
unwarranted invasion of personal privacy, unless |
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| the disclosure is
consented to in writing by the individual |
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| subjects of the information. The
disclosure of information |
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| that bears on the public duties of public
employees and |
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| officials shall not be considered an invasion of personal
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| privacy. Information exempted under this subsection (b) |
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| shall include but
is not limited to:
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| (i) files and personal information maintained with |
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| respect to
clients, patients, residents, students or |
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| other individuals receiving
social, medical, |
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| educational, vocational, financial, supervisory or
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| custodial care or services directly or indirectly from |
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| federal agencies
or public bodies;
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| (ii) personnel files and personal information |
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| maintained with
respect to employees, appointees or |
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| elected officials of any public body or
applicants for |
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| those positions;
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| (iii) files and personal information maintained |
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| with respect to any
applicant, registrant or licensee |
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| by any public body cooperating with or
engaged in |
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| professional or occupational registration, licensure |
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| or discipline;
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| (iv) information required of any taxpayer in |
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| connection with the
assessment or collection of any tax |
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| unless disclosure is otherwise required
by State |
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| statute;
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| (v) information revealing the identity of persons |
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| who file complaints
with or provide information to |
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| administrative, investigative, law enforcement
or |
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| penal agencies; provided, however, that identification |
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| of witnesses to
traffic accidents, traffic accident |
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| reports, and rescue reports may be provided
by agencies |
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| of local government, except in a case for which a |
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| criminal
investigation is ongoing, without |
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| constituting a clearly unwarranted per se
invasion of |
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| personal privacy under this subsection; and
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| (vi) the names, addresses, or other personal |
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| information of
participants and registrants in park |
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| district, forest preserve district, and
conservation |
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| district programs.
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| (c) Records compiled by any public body for |
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| administrative enforcement
proceedings and any law |
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| enforcement or correctional agency for
law enforcement |
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| purposes or for internal matters of a public body,
but only |
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| to the extent that disclosure would:
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| (i) interfere with pending or actually and |
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| reasonably contemplated
law enforcement proceedings |
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| conducted by any law enforcement or correctional
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| agency;
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| (ii) interfere with pending administrative |
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| enforcement proceedings
conducted by any public body;
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| (iii) deprive a person of a fair trial or an |
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| impartial hearing;
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| (iv) unavoidably disclose the identity of a |
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| confidential source or
confidential information |
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| furnished only by the confidential source;
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| (v) disclose unique or specialized investigative |
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| techniques other than
those generally used and known or |
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| disclose internal documents of
correctional agencies |
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| related to detection, observation or investigation of
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| incidents of crime or misconduct;
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| (vi) constitute an invasion of personal privacy |
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| under subsection (b) of
this Section;
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| (vii) endanger the life or physical safety of law |
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| enforcement personnel
or any other person; or
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| (viii) obstruct an ongoing criminal investigation.
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| (d) Criminal history record information maintained by |
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| State or local
criminal justice agencies, except the |
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| following which shall be open for
public inspection and |
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| copying:
|
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| (i) chronologically maintained arrest information, |
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| such as traditional
arrest logs or blotters;
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| (ii) the name of a person in the custody of a law |
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| enforcement agency and
the charges for which that |
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| person is being held;
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| (iii) court records that are public;
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| (iv) records that are otherwise available under |
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| State or local law; or
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| (v) records in which the requesting party is the |
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| individual
identified, except as provided under part |
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| (vii) of
paragraph (c) of subsection (1) of this |
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| Section.
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| "Criminal history record information" means data |
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| identifiable to an
individual and consisting of |
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| descriptions or notations of arrests,
detentions, |
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| indictments, informations, pre-trial proceedings, trials, |
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| or
other formal events in the criminal justice system or |
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| descriptions or
notations of criminal charges (including |
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| criminal violations of local
municipal ordinances) and the |
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| nature of any disposition arising therefrom,
including |
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| sentencing, court or correctional supervision, |
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| rehabilitation and
release. The term does not apply to |
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| statistical records and reports in
which individuals are |
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| not identified and from which
their identities are not |
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| ascertainable, or to information that is for
criminal |
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| investigative or intelligence purposes.
|
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| (e) Records that relate to or affect the security of |
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| correctional
institutions and detention facilities.
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| (f) Preliminary drafts, notes, recommendations, |
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| memoranda and other
records in which opinions are |
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| expressed, or policies or actions are
formulated, except |
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| that a specific record or relevant portion of a
record |
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| shall not be exempt when the record is publicly cited
and |
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| identified by the head of the public body. The exemption |
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| provided in
this paragraph (f) extends to all those records |
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| of officers and agencies
of the General Assembly that |
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| pertain to the preparation of legislative
documents.
|
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| (g) Trade secrets and commercial or financial |
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| information obtained from
a person or business where the |
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| trade secrets or information are
proprietary, privileged |
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| or confidential, or where disclosure of the trade
secrets |
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| or information may cause competitive harm, including: |
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| (i) All
information determined to be confidential |
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| under Section 4002 of the
Technology Advancement and |
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| Development Act. |
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| (ii) All trade secrets and commercial or financial |
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| information obtained by a public body, including a |
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| public pension fund, from a private equity fund or a |
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| privately held company within the investment portfolio |
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| of a private equity fund as a result of either |
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| investing or evaluating a potential investment of |
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| public funds in a private equity fund. The exemption |
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| contained in this item does not apply to the aggregate |
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| financial performance information of a private equity |
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| fund, nor to the identity of the fund's managers or |
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| general partners. The exemption contained in this item |
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| does not apply to the identity of a privately held |
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| company within the investment portfolio of a private |
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| equity fund, unless the disclosure of the identity of a |
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| privately held company may cause competitive harm.
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| Nothing contained in this
paragraph (g) shall be construed |
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| to prevent a person or business from
consenting to disclosure.
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| (h) Proposals and bids for any contract, grant, or |
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| agreement, including
information which if it were |
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| disclosed would frustrate procurement or give
an advantage |
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| to any person proposing to enter into a contractor |
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| agreement
with the body, until an award or final selection |
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| is made. Information
prepared by or for the body in |
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| preparation of a bid solicitation shall be
exempt until an |
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| award or final selection is made.
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| (i) Valuable formulae,
computer geographic systems,
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| designs, drawings and research data obtained or
produced by |
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| any public body when disclosure could reasonably be |
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| expected to
produce private gain or public loss.
The |
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| exemption for "computer geographic systems" provided in |
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| this paragraph
(i) does not extend to requests made by news |
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| media as defined in Section 2 of
this Act when the |
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| requested information is not otherwise exempt and the only
|
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| purpose of the request is to access and disseminate |
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| information regarding the
health, safety, welfare, or |
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| legal rights of the general public.
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| (j) Test questions, scoring keys and other examination |
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| data used to
administer an academic examination or |
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| determined the qualifications of an
applicant for a license |
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| or employment.
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| (k) Architects' plans, engineers' technical |
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| submissions, and
other
construction related technical |
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| documents for
projects not constructed or developed in |
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| whole or in part with public funds
and the same for |
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| projects constructed or developed with public funds, but
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| only to the extent
that disclosure would compromise |
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| security, including but not limited to water
treatment |
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| facilities, airport facilities, sport stadiums, convention |
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| centers,
and all government owned, operated, or occupied |
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| buildings.
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| (l) Library circulation and order records identifying |
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| library users with
specific materials.
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| (m) Minutes of meetings of public bodies closed to the
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| public as provided in the Open Meetings Act until the |
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| public body
makes the minutes available to the public under |
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| Section 2.06 of the Open
Meetings Act.
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| (n) Communications between a public body and an |
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| attorney or auditor
representing the public body that would |
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| not be subject to discovery in
litigation, and materials |
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| prepared or compiled by or for a public body in
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| anticipation of a criminal, civil or administrative |
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| proceeding upon the
request of an attorney advising the |
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| public body, and materials prepared or
compiled with |
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| respect to internal audits of public bodies.
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| (o) Information received by a primary or secondary |
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| school, college or
university under its procedures for the |
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| evaluation of faculty members by
their academic peers.
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| (p) Administrative or technical information associated |
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| with automated
data processing operations, including but |
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| not limited to software,
operating protocols, computer |
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| program abstracts, file layouts, source
listings, object |
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| modules, load modules, user guides, documentation
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| pertaining to all logical and physical design of |
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| computerized systems,
employee manuals, and any other |
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| information that, if disclosed, would
jeopardize the |
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| security of the system or its data or the security of
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| materials exempt under this Section.
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| (q) Documents or materials relating to collective |
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| negotiating matters
between public bodies and their |
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| employees or representatives, except that
any final |
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| contract or agreement shall be subject to inspection and |
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| copying.
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| (r) Drafts, notes, recommendations and memoranda |
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| pertaining to the
financing and marketing transactions of |
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| the public body. The records of
ownership, registration, |
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| transfer, and exchange of municipal debt
obligations, and |
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| of persons to whom payment with respect to these |
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| obligations
is made.
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| (s) The records, documents and information relating to |
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| real estate
purchase negotiations until those negotiations |
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| have been completed or
otherwise terminated. With regard to |
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| a parcel involved in a pending or
actually and reasonably |
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| contemplated eminent domain proceeding under the Eminent |
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| Domain Act, records, documents and
information relating to |
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| that parcel shall be exempt except as may be
allowed under |
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| discovery rules adopted by the Illinois Supreme Court. The
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| records, documents and information relating to a real |
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| estate sale shall be
exempt until a sale is consummated.
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| (t) Any and all proprietary information and records |
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| related to the
operation of an intergovernmental risk |
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| management association or
self-insurance pool or jointly |
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| self-administered health and accident
cooperative or pool.
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| (u) Information concerning a university's adjudication |
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| of student or
employee grievance or disciplinary cases, to |
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| the extent that disclosure
would reveal the identity of the |
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| student or employee and information
concerning any public |
4 |
| body's adjudication of student or employee grievances
or |
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| disciplinary cases, except for the final outcome of the |
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| cases.
|
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| (v) Course materials or research materials used by |
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| faculty members.
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| (w) Information related solely to the internal |
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| personnel rules and
practices of a public body.
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| (x) Information contained in or related to |
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| examination, operating, or
condition reports prepared by, |
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| on behalf of, or for the use of a public
body responsible |
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| for the regulation or supervision of financial
|
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| institutions or insurance companies, unless disclosure is |
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| otherwise
required by State law.
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| (y) Information the disclosure of which is restricted |
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| under Section
5-108 of the Public Utilities Act.
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| (z) Manuals or instruction to staff that relate to |
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| establishment or
collection of liability for any State tax |
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| or that relate to investigations
by a public body to |
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| determine violation of any criminal law.
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| (aa) Applications, related documents, and medical |
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| records received by
the Experimental Organ Transplantation |
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| Procedures Board and any and all
documents or other records |
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| prepared by the Experimental Organ
Transplantation |
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| Procedures Board or its staff relating to applications
it |
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| has received.
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| (bb) Insurance or self insurance (including any |
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| intergovernmental risk
management association or self |
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| insurance pool) claims, loss or risk
management |
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| information, records, data, advice or communications.
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| (cc) Information and records held by the Department of |
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| Public Health and
its authorized representatives relating |
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| to known or suspected cases of
sexually transmissible |
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| disease or any information the disclosure of which
is |
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| restricted under the Illinois Sexually Transmissible |
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| Disease Control Act.
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| (dd) Information the disclosure of which is exempted |
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| under Section 30
of the Radon Industry Licensing Act.
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| (ee) Firm performance evaluations under Section 55 of |
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| the
Architectural, Engineering, and Land Surveying |
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| Qualifications Based
Selection Act.
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| (ff) Security portions of system safety program plans, |
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| investigation
reports, surveys, schedules, lists, data, or |
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| information compiled, collected,
or prepared by or for the |
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| Regional Transportation Authority under Section 2.11
of |
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| the Regional Transportation Authority Act or the St. Clair |
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| County Transit
District under the
Bi-State Transit Safety |
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| Act.
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| (gg) Information the disclosure of which is restricted |
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| and
exempted under Section 50 of the Illinois Prepaid |
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| Tuition Act.
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| (hh) Information the disclosure of which is
exempted |
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| under the State Officials and Employees Ethics Act.
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| (ii) Beginning July 1, 1999, information that would |
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| disclose
or might lead to the disclosure of
secret or |
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| confidential information, codes, algorithms, programs, or |
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| private
keys intended to be used to create electronic or |
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| digital signatures under the
Electronic Commerce Security |
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| Act.
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| (jj) Information contained in a local emergency energy |
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| plan submitted to
a municipality in accordance with a local |
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| emergency energy plan ordinance that
is adopted under |
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| Section 11-21.5-5 of the Illinois Municipal Code.
|
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| (kk) Information and data concerning the distribution |
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| of
surcharge moneys collected and remitted by wireless |
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| carriers under the Wireless
Emergency Telephone Safety |
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| Act.
|
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| (ll) Vulnerability assessments, security measures, and |
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| response policies
or plans that are designed to identify, |
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| prevent, or respond to potential
attacks upon a community's |
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| population or systems, facilities, or installations,
the |
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| destruction or contamination of which would constitute a |
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| clear and present
danger to the health or safety of the |
24 |
| community, but only to the extent that
disclosure could |
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| reasonably be expected to jeopardize the effectiveness of |
26 |
| the
measures or the safety of the personnel who implement |
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| them or the public.
Information exempt under this item may |
2 |
| include such things as details
pertaining to the |
3 |
| mobilization or deployment of personnel or equipment, to |
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| the
operation of communication systems or protocols, or to |
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| tactical operations.
|
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| (mm) Maps and other records regarding the location or |
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| security of a
utility's generation, transmission, |
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| distribution, storage, gathering,
treatment, or switching |
9 |
| facilities.
|
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| (nn) Law enforcement officer identification |
11 |
| information or
driver
identification
information compiled |
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| by a law enforcement agency or the Department of
|
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| Transportation
under Section 11-212 of the Illinois |
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| Vehicle Code.
|
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| (oo) Records and information provided to a residential
|
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| health care
facility resident sexual assault
and death |
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| review team or the Executive Council under the Abuse |
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| Prevention Review Team Act.
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| (pp) Information provided to the predatory lending |
20 |
| database created pursuant to Article 3 of the Residential |
21 |
| Real Property Disclosure Act, except to the extent |
22 |
| authorized under that Article.
|
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| (qq) Defense budgets and petitions for certification |
24 |
| of compensation and expenses for court appointed trial |
25 |
| counsel as provided under Sections 10 and 15 of the Capital |
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| Crimes Litigation Act. This subsection (qq) shall apply |
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| until the conclusion of the trial of the case, even if the |
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| prosecution chooses not to pursue the death penalty prior |
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| to trial or sentencing.
|
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| (rr) Information that is prohibited from being |
5 |
| disclosed under Section 4 of the Illinois Health and |
6 |
| Hazardous Substances Registry Act.
|
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| (2) This Section does not authorize withholding of |
8 |
| information or limit the
availability of records to the public, |
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| except as stated in this Section or
otherwise provided in this |
10 |
| Act.
|
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| (Source: P.A. 93-43, eff. 7-1-03; 93-209, eff. 7-18-03; 93-237, |
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| eff. 7-22-03; 93-325, eff. 7-23-03, 93-422, eff. 8-5-03; |
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| 93-577, eff. 8-21-03; 93-617, eff. 12-9-03; 94-280, eff. |
14 |
| 1-1-06; 94-508, eff. 1-1-06; 94-664, eff. 1-1-06; 94-931, eff. |
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| 6-26-06; 94-953, eff. 6-27-06; 94-1055, eff. 1-1-07; revised |
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| 8-3-06.)
|
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| Section 10. The Illinois Health and Hazardous Substances |
18 |
| Registry Act is amended by adding Section 9.1 and by changing |
19 |
| Sections 3, 4, 9, and 12 as follows:
|
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| (410 ILCS 525/3) (from Ch. 111 1/2, par. 6703)
|
21 |
| Sec. 3. For the purposes of this Act, unless the context |
22 |
| requires otherwise:
|
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| (a) "Department" means the Illinois Department of Public |
24 |
| Health.
|
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| (b) "Director" means the Director of the Illinois |
2 |
| Department of Public
Health.
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| (c) "Council" means the Health and Hazardous Substances |
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| Coordinating
Council created by this Act.
|
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| (d) "Registry" means the Illinois Health and Hazardous |
6 |
| Substances Registry
established by the Department of Public |
7 |
| Health under
Section 6 of this Act.
|
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| (e) "Cancer" means all malignant neoplasms, regardless of |
9 |
| the tissue of
origin, including malignant lymphoma and |
10 |
| leukemia.
|
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| (f) "Cancer incidence" means a medical diagnosis of cancer, |
12 |
| consisting
of a record of cases of cancer and specified cases |
13 |
| of tumorous or
precancerous diseases which occur in Illinois, |
14 |
| and such other information
concerning these cases as the |
15 |
| Department deems necessary or appropriate in
order to conduct |
16 |
| thorough and complete epidemiological surveys of cancer
and |
17 |
| cancer-related diseases in Illinois.
|
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| (g) "Occupational disease" includes but is not limited to |
19 |
| all occupational
diseases covered by the Workers' Occupational |
20 |
| Diseases Act.
|
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| (h) "Hazardous substances" means a hazardous substance as |
22 |
| defined in the
Environmental Protection Act.
|
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| (i) "Hazardous substances incident" includes but is not |
24 |
| limited to a
spill, fire, or accident involving hazardous |
25 |
| substances, illegal disposal,
transportation, or use of |
26 |
| hazardous substances, and complaints or permit
violations |
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HB3446 Engrossed |
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LRB095 08750 KBJ 28934 b |
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| involving hazardous substances.
|
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| (j) "Company profile" includes but is not limited to the |
3 |
| name of any
company operating in the State
of Illinois which |
4 |
| generates, uses, disposes of or transports hazardous
|
5 |
| substances, identification of the types of permits issued in |
6 |
| such company's
name relating to transactions involving |
7 |
| hazardous substances, inventory of
hazardous substances |
8 |
| handled by such company, and the manner in which such
hazardous |
9 |
| substances are used, disposed of, or transported by the |
10 |
| company.
|
11 |
| (k) "Hazardous nuclear material" means (1) any source or |
12 |
| special
nuclear material intended for use or used as an energy |
13 |
| source in a
production or utilization facility as defined in |
14 |
| Sec. 11.v. or 11.cc. of
the federal Atomic Energy Act of 1954 |
15 |
| as amended; (2) any fuel which has
been discharged from such a |
16 |
| facility following irradiation, the constituent
elements of |
17 |
| which have not been separated by reprocessing; or (3) any
|
18 |
| by-product material resulting from operation of such a |
19 |
| facility.
|
20 |
| (l)
(1) "Adverse pregnancy outcome" includes but is not |
21 |
| limited to
birth defects, fetal loss, infant mortality, low |
22 |
| birth weight, selected
life-threatening conditions, and other |
23 |
| developmental disabilities as
defined by the Department.
|
24 |
| (m) "News medium" means any newspaper or other periodical |
25 |
| issued at regular intervals, whether in print or electronic |
26 |
| format, and having a general circulation; a news service, |
|
|
|
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|
1 |
| whether in print or electronic format; a radio station, a |
2 |
| television station; a television network; a community antenna |
3 |
| television service; and any person or corporation engaged in |
4 |
| the making of news reels or other motion picture news for |
5 |
| public showing. |
6 |
| (n) "Researcher" means an individual who is affiliated with |
7 |
| or supported by universities, academic centers, research |
8 |
| institutions, hospitals, and governmental entities who conduct |
9 |
| scientific research or investigation on human diseases.
|
10 |
| (Source: P.A. 85-831.)
|
11 |
| (410 ILCS 525/4) (from Ch. 111 1/2, par. 6704)
|
12 |
| Sec. 4. (a) There is created the Health and Hazardous |
13 |
| Substances
Coordinating Council, to be comprised of the |
14 |
| following persons ex officio
or their designees: Dean of the |
15 |
| School of Public Health of the University of
Illinois, Director |
16 |
| of Natural Resources, Director of Public
Health, Director of |
17 |
| Labor, Director of Agriculture, Director of the
Environmental |
18 |
| Protection Agency and the Director of Nuclear Safety.
|
19 |
| The University of Illinois School of Public Health shall |
20 |
| advise the
Department in the design, function and utilization |
21 |
| of the Registry.
|
22 |
| (b) To facilitate the collection of cancer incidence |
23 |
| information, the
Department, in consultation with the Advisory |
24 |
| Board of Cancer Control,
shall have the authority to require |
25 |
| hospitals, laboratories or other
facilities to report |
|
|
|
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|
1 |
| incidences of cancer and other specified tumorous and
|
2 |
| precancerous diseases to the Department, and to require the |
3 |
| submission of
such other information pertaining to or in |
4 |
| connection with such reported
cases as the Department deems |
5 |
| necessary or appropriate for the purposes of
this Act. The |
6 |
| Department may promulgate rules or regulations specifying
the |
7 |
| hospitals, laboratories or other facilities which are required |
8 |
| to
submit information pursuant to this Section, the types of |
9 |
| information
required to be submitted, methods of submitting |
10 |
| such information and any
other detail deemed by the Department |
11 |
| to be necessary or appropriate for
administration of this Act. |
12 |
| Nothing in this Act shall be construed to
compel any individual |
13 |
| to submit to a medical examination or supervision.
|
14 |
| (c) The Director shall by rule or regulation establish |
15 |
| standards or
guidelines for ensuring the protection of |
16 |
| information made confidential or
privileged under law.
|
17 |
| (d) The identity, or any group of facts that tends to lead |
18 |
| to
the
identity, of any person whose condition or treatment is |
19 |
| submitted to the
Illinois Health and Hazardous Substances |
20 |
| Registry is confidential and shall
not be open to public |
21 |
| inspection or dissemination and is exempt from disclosure under |
22 |
| Section 7 of the Freedom of Information Act. The following data |
23 |
| elements, alone or in combination, are confidential, shall not |
24 |
| be open to public inspection or dissemination, and are exempt |
25 |
| from disclosure under Section 7 of the Freedom of Information |
26 |
| Act: name, social security number, street address, email |
|
|
|
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|
1 |
| address, telephone number, fax number, medical record number, |
2 |
| certificate/license number, reporting source (unless permitted |
3 |
| by the reporting facility), age (unless aggregated for 5 or |
4 |
| more years, ZIP code (unless aggregated for 5 or more years), |
5 |
| and diagnosis date (unless aggregated for one or more years for |
6 |
| the entire State or for 3 or more years for a single county) .
|
7 |
| Facts that tend to lead to the identity of a person include the |
8 |
| following:
name, social security number, address, and any other |
9 |
| data element that, by
itself or in combination with one or more |
10 |
| other data elements,
tends to identify any person. The identity |
11 |
| of any person or persons claimed
to be derived from cancer |
12 |
| registry data is not admissible in evidence, and no
court shall |
13 |
| require information to be produced in discovery if it |
14 |
| determines
that the information tends to lead to the identity |
15 |
| of any person.
Information for
specific research purposes may |
16 |
| be released in accordance with procedures
established by the |
17 |
| Department.
Except as provided by rule, and as part of an |
18 |
| epidemiologic
investigation, an officer or employee of the |
19 |
| Department may interview a
patient named in a report made under |
20 |
| this Act, or relatives of any such
patient, only with the |
21 |
| express written consent of the patient.
|
22 |
| (e) Hospitals, laboratories, other facilities or |
23 |
| physicians shall not be
held liable for the release of |
24 |
| information or confidential data to the
Department in |
25 |
| accordance with this Act. The Department shall protect any
|
26 |
| information made confidential or privileged under law.
|
|
|
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|
1 |
| (Source: P.A. 89-445, eff. 2-7-96; 90-607, eff. 6-30-98.)
|
2 |
| (410 ILCS 525/9) (from Ch. 111 1/2, par. 6709)
|
3 |
| Sec. 9. The Department shall utilize the Registry to |
4 |
| conduct research
on the relationships between hazardous |
5 |
| substances, hazardous nuclear
materials, and public health |
6 |
| issues. In consultation with the Council, the
Director shall |
7 |
| establish guidelines for determining the specific questions
|
8 |
| and areas to be researched. The guidelines shall specifically |
9 |
| include the
question of the potential public health |
10 |
| significance of an increase in
cancer incidence. Upon the |
11 |
| approval of the Council, the information
contained in the |
12 |
| Registry shall be available to other State agencies
wishing to |
13 |
| conduct research on these issues. Upon review and approval of |
14 |
| an appropriate Institutional Review Board (IRB) or its |
15 |
| equivalent on protection of human subjects in research, the |
16 |
| Department shall release data to researchers for purposes of |
17 |
| medical and scientific research consistent with the |
18 |
| fundamental purposes of the Registry.
|
19 |
| (Source: P.A. 85-1218.)
|
20 |
| (410 ILCS 525/9.1 new)
|
21 |
| Sec. 9.1. Release of data to news media. Upon review and |
22 |
| approval of an appropriate Institutional Review Board (IRB) or |
23 |
| its equivalent on protection of human subjects in research, the |
24 |
| Department shall release data not otherwise available for |
|
|
|
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|
1 |
| release under the Freedom of Information Act to news media for |
2 |
| purposes of public interest research consistent with the |
3 |
| fundamental purposes of the Registry.
|
4 |
| (410 ILCS 525/12) (from Ch. 111 1/2, par. 6712)
|
5 |
| Sec. 12. All information contained in the Registry, as well |
6 |
| as all
reports issued by the Department, including the annual |
7 |
| report, shall be
made available to the public upon request; |
8 |
| provided, however, nothing in
this Act permits public |
9 |
| disclosure of any information made confidential or
privileged |
10 |
| pursuant to this Act or any other statute. Identification or |
11 |
| contact of individuals from public reports or data released |
12 |
| under the Freedom of Information Act is prohibited. The |
13 |
| Director may, by
rule,
establish fees to be charged to persons |
14 |
| or organizations other than State
agencies for requested |
15 |
| summaries or analyses of data which are not
otherwise included |
16 |
| in an annual report. The fees shall not be more than
the cost |
17 |
| to the Department of supplying the requested information. The |
18 |
| Department shall make available on its web site |
19 |
| non-confidential public use databases for easy and direct |
20 |
| access and download by the public.
|
21 |
| (Source: P.A. 90-607, eff. 6-30-98.)
|
22 |
| Section 99. Effective date. This Act takes effect July 1, |
23 |
| 2007.
|