Date	Chamber	Action
1/11/2011	House	Session Sine Die

Statutes Amended In Order of Appearance

New Act

210 ILCS 60/15

Synopsis As Introduced
Creates the Pediatric Palliative Care Act and amends the Hospice Program Licensing Act. Provides that the Department of Healthcare and Family Services shall develop a pediatric palliative care pilot program under which a qualifying child may receive community-based pediatric palliative care from a trained interdisciplinary team while continuing to pursue aggressive curative treatments for a potentially life-limiting medical condition under the benefits available under the Medicaid program. Provides that the Department shall apply for a federal waiver to conduct the program. Provides that a "qualifying child" for the pilot program is a child under the age of 18 years who is enrolled in the Medicaid program and suffers from a potentially life-limiting medical condition. Sets forth certain counties to be included in the pilot program. Requires a report to the General Assembly at the end of the 3-year pilot period. Provides for the review of pediatric palliative care issues by the Hospice and Palliative Care Advisory Board. Effective immediately.

Fiscal Note (Dept. of Healthcare & Family Services)

Although this legislation is effective immediately, it is not known how quickly a pilot program of this magnitude could be operational. Administrative costs relating to a potential waiver and additional staff necessary to provide case management services as required in this bill is estimated at $310,000 in FY 10. Any new hires would need to be approved through the budget process. Additional services expected to be provided under this waiver are estimated to add an additional $450 (per member per month) to current liability. For every 1,000 children included in this pilot, annual cost is estimated at $4.5 million.

Actions 

Date	Chamber	Action
2/20/2009	House	Filed with the Clerk by Rep. Julie Hamos
2/20/2009	House	First Reading
2/20/2009	House	Referred to Rules Committee
2/25/2009	House	Assigned to Human Services Committee
3/4/2009	House	Do Pass / Short Debate Human Services Committee; 007-000-000
3/4/2009	House	Placed on Calendar 2nd Reading - Short Debate
3/4/2009	House	Added Chief Co-Sponsor Rep. Patricia R. Bellock
3/16/2009	House	Added Co-Sponsor Rep. Sara Feigenholtz
3/24/2009	House	Fiscal Note Filed
3/26/2009	House	Added Chief Co-Sponsor Rep. Jack McGuire
4/1/2009	House	Second Reading - Short Debate
4/1/2009	House	Held on Calendar Order of Second Reading - Short Debate
4/3/2009	House	Rule 19(a) / Re-referred to Rules Committee
1/11/2011	House	Session Sine Die

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