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HR0246 |
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LRB096 11693 KXB 23638 r |
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| HOUSE RESOLUTION
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| WHEREAS, Neurofibromatosis is a genetic disorder that |
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| causes growths and tumors to form on nerves; neurofibromatosis |
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| is one of the most common genetic disorders, approximately one |
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| in every 3,000 babies born has neurofibromatosis; |
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| neurofibromatosis occurs in both genders, and all ethnic groups |
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| equally; and
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| WHEREAS, There are two types of neurofibromatosis: Type 1 |
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| is a form of neurofibromatosis that can be inherited from a |
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| parent or be a spontaneous mutation and affects a gene on |
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| chromosome 17; people with this type of neurofibromatosis |
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| generally have brown oval or circular spots on the skin called |
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| cafe-au-lait spots and freckles under the arm or in the groin |
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| area; they also have benign soft tumors or lumps under the skin |
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| called neurofibroma; and
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| WHEREAS, Neurofibromatosis Type 1 often causes learning |
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| difficulties in children, and can also affect physical growth; |
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| tumors may form along nerves anywhere in the body; and it can |
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| cause atrophy, pseudarthrosis, scoliosis, plexiform |
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| neurofibroma, bright spots on the brain, optic glioma, |
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| depression, executive function issues, and other psychological |
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| issues; and
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HR0246 |
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LRB096 11693 KXB 23638 r |
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| WHEREAS, Neurofibromatosis Type 2 is also inherited or a |
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| spontaneous mutation caused by a change in a gene on chromosome |
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| 22; neurofibromatosis Type 2 is sometimes referred to as |
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| central neurofibromatosis or bilateral acoustic neuroma; |
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| neurofibromatosis Type 2 affects nerves next to the brain or |
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| spinal chord and can cause serious disabilities;
and
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| WHEREAS, People with neurofibromatosis Type 2 have tumors |
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| that affect hearing and balance, and they can have tumors that |
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| push on the brain or spinal chord, as well as tumors along the |
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| peripheral nerves; these problems can cause weakness and |
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| seizures; and
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| WHEREAS, Neurofibromatosis Inc. Midwest is a network that |
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| provides information on neurofibromatosis, makes referrals to |
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| local medical resources, sponsors national and local |
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| conferences for neurofibromatosis families, as well as other |
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| services; their mission is to create a community of support for |
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| individuals and families affected by neurofibromatosis; and
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| WHEREAS, May is National Neurofibromatosis Month; Great |
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| Steps for Neurofibromatosis 2009 will take place at the |
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| Naperville Riverwalk on Saturday, June 6, 2009 and in Effingham |
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| on June 20, 2009; therefore, be it
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| RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE |