Rep. Harry Osterman
Filed: 5/11/2009
 
 

 




 

 		












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AMENDMENT TO SENATE BILL 2043




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    AMENDMENT NO. ______. Amend Senate Bill 2043 by replacing 
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lines 10 through 26 on page 4 and lines 1 through 18 on page 5 
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with the following:
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    "(c) The Department of Healthcare and Family Services 
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(HFS), the Illinois Department of Public Health, the Illinois 
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Department of Human Services, and the Division of Specialized 
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Care for Children, University of Illinois at Chicago, with 
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necessary support from the Department of Central Management 
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Services, shall integrate into the medical data warehouse 
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individual record level data owned by one of these agencies 
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that pertains to maternal and child health, including the 
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following data sets:
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        (1)  Vital Records as they relate to births, birth 
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    outcomes, and deaths.
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        (2)  Adverse Pregnancy Outcomes Reporting System  
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    (APORS).
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        (3)  Genetics/Newborn Screenings/SIDS.
 


 






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        (4)  Cornerstone (WIC, FCM, Teen Parents, 
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    Immunization).
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        (5)  HFS medical claims data.
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        (6)  I-CARE.
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        (7)  Children with Special Healthcare Needs Data.
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    By September 1, 2009, the departments of Healthcare and 
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Family Services, Public Health, and Human Services and the 
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Division of Specialized Care for Children shall jointly prepare 
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a work plan for fully integrating these data sets into the 
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medical data warehouse.  The work plan shall provide an overall 
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project design, including defining a mutually acceptable 
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transfer format for each discrete data set, the data update 
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frequency, and a single method of data transfer for each data 
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set.  By March 1, 2010, the data sets shall be loaded into the 
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medical data warehouse.  By October 1, 2010, data from the 
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various sources shall be processed so as to be compatible with 
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other data in the medical data warehouse and available for 
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analysis in an integrated manner.
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    With the cooperation of the other agencies, HFS shall 
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submit status reports on the progress of these efforts to the 
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Governor and the General Assembly no later than October 1, 2009 
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and April 1, 2010, with a final report due no later than 
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November 1, 2010.
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    On an ongoing basis, the 4 agencies shall review the 
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feasibility of adding data from additional sources to the 
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warehouse.  The review may take into account the cost 
 


 






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effectiveness of adding the data, the utility of adding data 
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that is not available as identifiable individual record level 
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data, the requirements related to adding data owned by another 
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entity or not available in electronic form, whether sharing of 
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the data is otherwise prohibited by law, and the resources 
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required and available for effecting the addition.
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    The departments shall use analysis of the data in the 
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medical data warehouse to improve maternal and child health 
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outcomes, and in particular improve birth outcomes, and to 
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reduce racial health disparities in this area.
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    All access and use of the data shall be in compliance with 
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all applicable federal and State laws, regulations, and 
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mandates.
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    Notwithstanding anything in this Section, data 
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incorporated into the data warehouse shall remain subject to 
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the same provisions of law regarding confidentiality and use 
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restrictions as they are subject to in the control of the 
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contributing agency. The Department of Healthcare and Family 
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Services shall develop measures to ensure that the interplay of 
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the several data sets contributed to the data warehouse does 
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not lead to the use or release of data from the data warehouse 
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that would not otherwise be subject to use or release under 
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State or federal law.".