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Rep. Harry Osterman
Filed: 5/12/2009
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09600SB2043ham002 |
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LRB096 11169 DRJ 26473 a |
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| AMENDMENT TO SENATE BILL 2043
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| AMENDMENT NO. ______. Amend Senate Bill 2043 by replacing |
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| lines 10 through 26 on page 4 and lines 1 through 18 on page 5 |
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| with the following: |
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| "(c) The Department of Healthcare and Family Services |
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| (HFS), the Illinois Department of Public Health, the Illinois |
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| Department of Human Services, and the Division of Specialized |
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| Care for Children, University of Illinois at Chicago, with |
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| necessary support from the Department of Central Management |
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| Services, shall integrate into the medical data warehouse |
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| individual record level data owned by one of these agencies |
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| that pertains to maternal and child health, including the |
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| following data sets: |
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| (1) Vital Records as they relate to births, birth |
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| outcomes, and deaths. |
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| (2) Adverse Pregnancy Outcomes Reporting System |
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| (APORS). |
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| (3) Genetics/Newborn Screenings/SIDS. |
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LRB096 11169 DRJ 26473 a |
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| (4) Cornerstone (WIC, FCM, Teen Parents, |
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| Immunization). |
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| (5) HFS medical claims data. |
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| (6) I-CARE. |
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| (7) Children with Special Healthcare Needs Data. |
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| By September 1, 2009, the departments of Healthcare and |
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| Family Services, Public Health, and Human Services and the |
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| Division of Specialized Care for Children shall jointly prepare |
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| a work plan for fully integrating these data sets into the |
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| medical data warehouse. The work plan shall provide an overall |
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| project design, including defining a mutually acceptable |
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| transfer format for each discrete data set, the data update |
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| frequency, and a single method of data transfer for each data |
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| set. By October 1, 2009, the Department of Public Health shall |
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| grant to the Department of Healthcare and Family Services |
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| complete access to all vital records data. The Department of |
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| Public Health shall prepare a report detailing that this task |
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| has been accomplished and submit this report to the Commission |
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| on Government Forecasting and Accountability by October 15, |
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| 2009. By March 1, 2010, the data sets shall be completely |
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| loaded into the medical data warehouse. By July 1, 2010, data |
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| from the various sources shall be processed so as to be |
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| compatible with other data in the medical data warehouse and |
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| available for analysis in an integrated manner. |
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| With the cooperation of the other agencies, HFS shall |
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| submit status reports on the progress of these efforts to the |
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LRB096 11169 DRJ 26473 a |
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| Governor and the General Assembly no later than October 1, 2009 |
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| and April 1, 2010, with a final report due no later than |
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| November 1, 2010. |
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| On an ongoing basis, the 4 agencies shall review the |
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| feasibility of adding data from additional sources to the |
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| warehouse. Such review may take into account the cost |
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| effectiveness of adding the data, the utility of adding data |
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| that is not available as identifiable individual record level |
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| data, the requirements related to adding data owned by another |
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| entity or not available in electronic form, whether sharing of |
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| the data is otherwise prohibited by law and the resources |
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| required and available for effecting the addition. |
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| The departments shall use analysis of the data in the |
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| medical data warehouse to improve maternal and child health |
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| outcomes, and in particular improve birth outcomes, and to |
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| reduce racial health disparities in this area. |
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| All access and use of the data shall be in compliance with |
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| all applicable federal and State laws, regulations, and |
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| mandates. |
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| Notwithstanding anything in this Section, data |
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| incorporated into the data warehouse shall remain subject to |
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| the same provisions of law regarding confidentiality and use |
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| restrictions as they are subject to in the control of the |
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| contributing agency. The Department of Healthcare and Family |
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| Services shall develop measures to ensure that the interplay of |
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| the several data sets contributed to the data warehouse does |