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| 1 | HOUSE RESOLUTION
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| 2 | WHEREAS, Peroxisome Biogenesis Disorder - Zellweger | ||||||
| 3 | Spectrum Disorder ("PBD-ZSD" or simply "PBD") is
a rare genetic | ||||||
| 4 | disorder that affects 1 in 50,000 births within the United | ||||||
| 5 | States of America; and
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| 6 | WHEREAS, PBD causes life threatening symptoms for most | ||||||
| 7 | infants and children who have the disease; and
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| 8 | WHEREAS, PBD results in poor muscle tone, hearing loss, | ||||||
| 9 | vision loss, low bone density, seizures, liver and
kidney | ||||||
| 10 | dysfunction, and developmental delays; and
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| 11 | WHEREAS, PBD causes a mutation in any of the 13 genes | ||||||
| 12 | termed PEX genes; and | ||||||
| 13 | WHEREAS, Max Chapman, born October 17, 2013 and a resident | ||||||
| 14 | of Bloomington, was diagnosed with
PBD at the age of 14 months; | ||||||
| 15 | with his loving heart, his cheerful disposition, and boundless | ||||||
| 16 | personality he has inspired countless family members and | ||||||
| 17 | friends in Central Illinois to spread awareness of this | ||||||
| 18 | devastating disorder; and
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| 19 | WHEREAS, Max Chapman's parents, Corin and Todd Chapman, and | ||||||
| 20 | his grandparents, Alan and Kathie Chapman and
Greg and Patty | ||||||
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| 1 | Garbe, hope to create awareness for PBD by sharing Max's story | ||||||
| 2 | through
blogging, social media, video, and fundraising events; | ||||||
| 3 | and
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| 4 | WHEREAS, May 19, 2016 is the inaugural Tee it Up! For the | ||||||
| 5 | GFPD Golf Outing at Illinois State University's
Weibring Golf | ||||||
| 6 | Club to honor Max Chapman and to raise funds for The Global | ||||||
| 7 | Foundation for Peroxisomal Disorders
(GFPD), in support of | ||||||
| 8 | their mission to advocate for awareness of PBD and support new | ||||||
| 9 | avenues for
medical research in the development of treatments | ||||||
| 10 | and cures; therefore, be it
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| 11 | RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE | ||||||
| 12 | NINETY-NINTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we | ||||||
| 13 | recognize the plight of those fighting Peroxisome Biogenesis | ||||||
| 14 | Disorder, such as Max Chapman, and its devastating effects; and | ||||||
| 15 | be it further | ||||||
| 16 | RESOLVED, That we urge more awareness be brought to the | ||||||
| 17 | condition of PBD and the struggle to develop treatments and | ||||||
| 18 | possibly a cure; and be it further
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| 19 | RESOLVED, That a suitable copy of this resolution be | ||||||
| 20 | presented to Max Chapman as an expression of our esteem and | ||||||
| 21 | respect.
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