Sen. Suzy Glowiak

Filed: 4/2/2019

 

 


 

 


 
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1
AMENDMENT TO SENATE BILL 1726

2    AMENDMENT NO. ______. Amend Senate Bill 1726, AS AMENDED,
3by replacing everything after the enacting clause with the
4following:
 
5    "Section 5. The State Finance Act is amended by changing
6Section 5.180 as follows:
 
7    (30 ILCS 105/5.180)  (from Ch. 127, par. 141.180)
8    Sec. 5.180. The Alzheimer's Disease Support Research Fund.
9(Source: P.A. 84-1308.)
 
10    Section 10. The Alzheimer's Disease Assistance Act is
11amended by changing Section 6 and by adding Section 8 as
12follows:
 
13    (410 ILCS 405/6)  (from Ch. 111 1/2, par. 6956)
14    Sec. 6. Alzheimer's Disease ADA Advisory Committee.

 

 

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1    (a) There is created the Alzheimer's Disease Advisory
2Committee consisting of 23 voting members appointed by the
3Director of the Department, as well as 5 nonvoting members as
4hereinafter provided in this Section. The Director or his
5designee shall serve as one of the 23 voting members and as the
6Chairman of the Committee. Those appointed as voting members
7shall include persons who are experienced in research and the
8delivery of services to individuals with Alzheimer's disease or
9a related disorder and their families. Such members shall
10include:
11        (1) one individual from a statewide association
12    dedicated to Alzheimer's care, support, and research;
13        (2) one individual from a non-governmental statewide
14    organization that advocates for seniors;
15        (3) the Dementia Coordinator of the Illinois
16    Department of Public Health, or the Dementia Coordinator's
17    designee;
18        (4) one individual representing the Community Care
19    Program's Home and Community Services Division;
20        (5) one individual representing the Adult Protective
21    Services Unit;
22        (6) 3 individuals from Alzheimer's Disease Assistance
23    Centers;
24        (7) one individual from a statewide association
25    representing an adult day service organization;
26        (8) one individual from a statewide association

 

 

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1    representing home care providers;
2        (9) one individual from a statewide trade organization
3    representing the interests of physicians licensed to
4    practice medicine in all of its branches in Illinois;
5        (10) one individual representing long-term care
6    facilities licensed under the Nursing Home Care Act, an
7    assisted living establishment licensed under the Assisted
8    Living and Shared Housing Act, or supportive living
9    facilities;
10        (11) one individual from a statewide association
11    representing the interests of social workers;
12        (12) one individual representing Area Agencies on
13    Aging;
14        (13) the Medicaid Director of the Department of
15    Healthcare and Family Services, or the Medicaid Director's
16    designee;
17        (14) one individual from a statewide association
18    representing health education and promotion and public
19    health advocacy;
20        (15) one individual with medical or academic
21    experience with early onset Alzheimer's disease or related
22    disorders;
23        (16) one individual representing a statewide
24    association of registered nurses;
25        (17) one individual who is an active member of a
26    police, fire, or emergency response department;

 

 

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1        (18) 3 individuals who are family members or
2    representatives of individuals with Alzheimer's disease or
3    related disorders; and
4        (19) one individual from a licensed hospital. 3
5    physicians licensed to practice medicine in all of its
6    branches, one representative of a licensed hospital, one
7    registered nurse with a specialty in geriatric or dementia
8    care, one representative of a long term care facility under
9    the Nursing Home Care Act, one representative of a long
10    term care facility under the Assisted Living and Shared
11    Housing Act, one representative from a supportive living
12    facility specially serving individuals with dementia, one
13    representative of a home care agency serving individuals
14    with dementia, one representative of a hospice with a
15    specialty in palliative care for dementia, one
16    representative of an area agency on aging as defined by
17    Section 3.07 of the Illinois Act on the Aging, one
18    representative from a leading advocacy organization
19    serving individuals with Alzheimer's disease, one licensed
20    social worker, one representative of law enforcement, 2
21    individuals with early-stage Alzheimer's disease, 3 family
22    members or representatives of individuals with Alzheimer's
23    disease and related disorders, and 3 members of the general
24    public. Among the physician appointments shall be persons
25    with specialties in the fields of neurology, family
26    medicine, psychiatry and pharmacology. Among the general

 

 

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1    public members, at least 2 appointments shall include
2    persons 65 years of age or older.
3    (b) In addition to the 23 voting members, the Directors of
4the following State agencies or their designees who are
5qualified to represent each Department's programs and services
6for those with Alzheimer's disease or related disorders shall
7serve as nonvoting members: Department on Aging, Department of
8Healthcare and Family Services, Department of Public Health,
9Department of Human Services, and Guardianship and Advocacy
10Commission.
11    Each voting member appointed by the Director of Public
12Health shall serve for a term of 2 years, and until his
13successor is appointed and qualified. Members of the Committee
14shall not be compensated but shall be reimbursed for expenses
15actually incurred in the performance of their duties. No more
16than 12 voting members may be of the same political party.
17Vacancies shall be filled in the same manner as original
18appointments.
19    The Committee shall review all State programs and services
20provided by State agencies that are directed toward persons
21with Alzheimer's disease and related dementias, and by
22consensus recommend changes to improve the State's response to
23this serious health problem. Such recommendations shall be
24included in the State plan described in this Act.
25(Source: P.A. 97-768, eff. 1-1-13.)
 

 

 

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1    (410 ILCS 405/8 new)
2    Sec. 8. Alzheimer's Disease Support Fund; support. The
3Department, in coordination with the members of the Alzheimer's
4Disease Advisory Committee, shall make reasonable efforts to
5promote the Alzheimer's Disease Support Fund during relevant
6times, including, but not limited to, periods of time when tax
7returns are typically received. Ways to promote the Fund
8include, but are not limited to, issuing press releases and
9posting on social media.
 
10    Section 15. The Alzheimer's Disease Research Act is amended
11by changing Sections 1, 2, 3, and by adding Sections 3.1, 3.2
12and 3.3 as follows:
 
13    (410 ILCS 410/1)  (from Ch. 111 1/2, par. 6901)
14    Sec. 1. Short title. This Act shall be known and may be
15cited as the Alzheimer's Disease Support Research Act.
16(Source: P.A. 84-324.)
 
17    (410 ILCS 410/2)  (from Ch. 111 1/2, par. 6902)
18    Sec. 2. Contributions on tax returns. Each individual
19taxpayer required to file a return pursuant to the Illinois
20Income Tax Act desiring to contribute to the Alzheimer's
21Disease Support Research Fund may do so by stating the amount
22of such contribution (not less than $1) on such return. This
23Section shall not apply to an amended return.

 

 

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1(Source: P.A. 86-678.)
 
2    (410 ILCS 410/3)  (from Ch. 111 1/2, par. 6903)
3    Sec. 3. Alzheimer's Disease Support Fund.
4    (a) There is created the Alzheimer's Disease Support
5Research Fund, a special fund in the State Treasury.
6    (b) The Department of Public Health shall deposit any
7donations received under for the grant program created pursuant
8to this Act in the Alzheimer's Disease Support Research Fund.
9    (c) The General Assembly may appropriate moneys monies in
10the Alzheimer's Disease Support Research Fund to the Department
11of Public Health for the purpose of complying with the
12requirements under Section 3.1 of awarding grants pursuant to
13this Act.
14(Source: P.A. 84-1265.)
 
15    (410 ILCS 410/3.1 new)
16    Sec. 3.1. Dementia Coordinator.
17    (a) On or before October 1, 2020, the full-time position of
18Dementia Coordinator shall be created within the Department of
19Public Health. The Dementia Coordinator shall be funded out of
20the Alzheimer's Disease Support Fund. The Dementia Coordinator
21is responsible only for activities associated with and relevant
22to the successful implementation of the State of Illinois
23Alzheimer's Disease State Plan, including, but not limited to:
24        (1) coordinating quality dementia services in the

 

 

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1    State to ensure dementia capability;
2        (2) using dementia-related data to coordinate with the
3    Department to improve public health outcomes;
4        (3) increasing awareness and creating
5    dementia-specific training;
6        (4) providing access to quality coordinated care for
7    individuals with dementia in the most integrated setting
8    available;
9        (5) establishing and maintaining relationships with
10    other agencies and organizations within the State in order
11    to meet the needs of the affected population and prevent
12    duplication of services;
13        (6) identifying and managing grants to assist in the
14    funding of the position of Dementia Coordinator and other
15    programs and services to assist Illinois in becoming
16    dementia-capable;
17        (7) working with the Department's Behavioral Risk
18    Factor Surveillance System Coordinator and the Alzheimer's
19    Disease Advisory Committee in identifying available funds
20    to execute appropriate modules for critical data
21    collection and research, if and when necessary; moneys
22    appropriated to the Alzheimer's Disease Support Fund may be
23    considered;
24        (8) building and maintaining effective working
25    relationships with other departments and organizations to
26    ensure coordination between and the support of dementia

 

 

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1    services;
2        (9) maintaining and applying knowledge of current
3    developments and trends in the assigned area of expertise
4    by reading appropriate journals, books, and other
5    professional literature, and attending related
6    conferences, seminars, and trainings;
7        (10) providing support for the Alzheimer's Disease
8    Advisory Committee's activities, including co-drafting the
9    State plan; and
10        (11) compiling and publishing an annual report on the
11    state of dementia care in Illinois, including, but not
12    limited to, the status of Illinois in becoming a
13    dementia-capable state.
 
14    (410 ILCS 410/3.2 new)
15    Sec. 3.2. Use of moneys in the Fund. Moneys in the
16Alzheimer's Disease Support Fund shall be used by the
17Department of Public Health to cover costs associated with this
18Act, including, but not limited to, the following:
19        (1) salary and benefits for the full-time position of
20    Dementia Coordinator within the Department;
21        (2) other expenses contingent with the
22    responsibilities of the Dementia Coordinator, including,
23    but not limited to, travel and professional development
24    opportunities;
25        (3) the purchase of modules for the Department's

 

 

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1    Behavioral Risk Factor Surveillance System; and
2        (4) support for public outreach and training efforts
3    under this Act.
 
4    (410 ILCS 410/3.3 new)
5    Sec. 3.3. Administrative support. The Department of Public
6Health shall be responsible for providing the Dementia
7Coordinator with work space, supplies, and other
8administrative office materials, as needed, through existing
9resources and not with moneys from the Alzheimer's Disease
10Support Fund.
 
11    (410 ILCS 410/4 rep.)
12    Section 20. The Alzheimer's Disease Research Act is amended
13by repealing Section 4.".