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| | 103RD GENERAL ASSEMBLY
State of Illinois
2023 and 2024 HB2911 Introduced 2/16/2023, by Rep. Lakesia Collins SYNOPSIS AS INTRODUCED: |
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20 ILCS 105/4.04 | from Ch. 23, par. 6104.04 |
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Amends the Illinois Act on the Aging. In provisions concerning the Long Term Care Ombudsman Program, expands the definition of "access" to mean the right to inspect and copy (rather than inspect) the clinical and other records of a participant or resident, regardless of
age, with the express written consent of the
participant or resident. In provisions concerning access and visitation rights, provides that a long term care facility, supportive
living facility, assisted living establishment, and shared
housing establishment must permit representatives of the Office of State Long Term Care Ombudsman, with the permission of the resident or other specified persons, to examine and copy the resident's clinical and other records.
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| | A BILL FOR |
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1 | | AN ACT concerning State government.
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2 | | Be it enacted by the People of the State of Illinois,
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3 | | represented in the General Assembly:
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4 | | Section 5. The Illinois Act on the Aging is amended by |
5 | | changing Section 4.04 as follows:
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6 | | (20 ILCS 105/4.04) (from Ch. 23, par. 6104.04)
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7 | | Sec. 4.04. Long Term Care Ombudsman Program. The purpose |
8 | | of the Long Term Care Ombudsman Program is to ensure that older |
9 | | persons and persons with disabilities receive quality |
10 | | services. This is accomplished by providing advocacy services |
11 | | for residents of long term care facilities and participants |
12 | | receiving home care and community-based care. Managed care is |
13 | | increasingly becoming the vehicle for delivering health and |
14 | | long-term services and supports to seniors and persons with |
15 | | disabilities, including dual eligible participants. The |
16 | | additional ombudsman authority will allow advocacy services to |
17 | | be provided to Illinois participants for the first time and |
18 | | will produce a cost savings for the State of Illinois by |
19 | | supporting the rebalancing efforts of the Patient Protection |
20 | | and Affordable Care Act.
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21 | | (a) Long Term Care Ombudsman Program. The Department shall
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22 | | establish a Long Term Care Ombudsman Program, through the |
23 | | Office of State
Long Term Care Ombudsman ("the Office"), in |
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1 | | accordance with the provisions of
the Older Americans Act of |
2 | | 1965, as now or hereafter amended. The Long Term Care |
3 | | Ombudsman Program is authorized, subject to sufficient |
4 | | appropriations, to advocate on behalf of older persons and |
5 | | persons with disabilities residing in their own homes or |
6 | | community-based settings, relating to matters which may |
7 | | adversely affect the health, safety, welfare, or rights of |
8 | | such individuals.
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9 | | (b) Definitions. As used in this Section, unless the |
10 | | context requires
otherwise:
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11 | | (1) "Access" means the right to:
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12 | | (i) Enter any long term care facility or assisted |
13 | | living or shared
housing establishment or supportive |
14 | | living facility;
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15 | | (ii) Communicate privately and without restriction |
16 | | with any resident, regardless of age,
who consents to |
17 | | the communication;
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18 | | (iii) Seek consent to communicate privately and |
19 | | without restriction
with any participant or resident, |
20 | | regardless of age;
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21 | | (iv) Inspect and copy the clinical and other |
22 | | records of a participant or resident, regardless of |
23 | | age, with the
express written consent of the |
24 | | participant or resident;
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25 | | (v) Observe all areas of the long term care |
26 | | facility or supportive
living facilities, assisted |
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1 | | living or shared housing establishment except the
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2 | | living area of any resident who protests the |
3 | | observation; and
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4 | | (vi) Subject to permission of the participant or |
5 | | resident requesting services or his or her |
6 | | representative, enter a home or community-based |
7 | | setting. |
8 | | (2) "Long Term Care Facility" means (i) any facility |
9 | | as defined by Section
1-113 of the Nursing Home Care Act, |
10 | | as now or hereafter amended; (ii) any
skilled nursing |
11 | | facility or a nursing facility which meets the
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12 | | requirements of Section 1819(a), (b), (c), and (d) or |
13 | | Section 1919(a), (b),
(c), and (d) of the Social Security |
14 | | Act, as now or hereafter amended (42
U.S.C. 1395i-3(a), |
15 | | (b), (c), and (d) and 42 U.S.C. 1396r(a), (b), (c), and
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16 | | (d)); (iii) any facility as defined by Section 1-113 of |
17 | | the ID/DD Community Care Act, as now or hereafter amended; |
18 | | (iv) any facility as defined by Section 1-113 of MC/DD |
19 | | Act, as now or hereafter amended; and (v) any facility |
20 | | licensed under Section 4-105 or 4-201 of the Specialized |
21 | | Mental Health Rehabilitation Act of 2013, as now or |
22 | | hereafter amended.
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23 | | (2.5) "Assisted living establishment" and "shared |
24 | | housing establishment"
have the meanings given those terms |
25 | | in Section 10 of the Assisted Living and
Shared Housing |
26 | | Act.
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1 | | (2.7) "Supportive living facility" means a facility |
2 | | established under
Section 5-5.01a of the Illinois Public |
3 | | Aid Code.
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4 | | (2.8) "Community-based setting" means any place of |
5 | | abode other than an individual's private home. |
6 | | (3) "State Long Term Care Ombudsman" means any person |
7 | | employed by the
Department to fulfill
the requirements of |
8 | | the Office of State Long Term Care Ombudsman as
required |
9 | | under the Older Americans Act of 1965, as now or hereafter |
10 | | amended,
and Departmental policy.
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11 | | (3.1) "Ombudsman" means any designated representative |
12 | | of the State Long Term Care Ombudsman Program; provided |
13 | | that the representative, whether he is
paid for or |
14 | | volunteers his ombudsman services, shall be qualified and
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15 | | designated by the Office to perform the duties of an |
16 | | ombudsman as specified by
the Department in rules and in |
17 | | accordance with the provisions of
the Older Americans Act |
18 | | of 1965, as now or hereafter amended.
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19 | | (4) "Participant" means an older person aged 60 or |
20 | | over or an adult with a disability aged 18 through 59 who |
21 | | is eligible for services under any of the following: |
22 | | (i) A medical assistance waiver administered by |
23 | | the State. |
24 | | (ii) A managed care organization providing care |
25 | | coordination and other services to seniors and persons |
26 | | with disabilities. |
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1 | | (5) "Resident" means an older person aged 60 or over |
2 | | or an adult with a disability aged 18 through 59 who |
3 | | resides in a long-term care facility. |
4 | | (c) Ombudsman; rules. The Office of State Long Term Care |
5 | | Ombudsman shall
be composed of at least one full-time |
6 | | ombudsman and shall include a system of
designated regional |
7 | | long term care ombudsman programs. Each regional program
shall |
8 | | be designated by the State Long Term Care Ombudsman as a |
9 | | subdivision of
the Office and any representative of a regional |
10 | | program shall be treated as a
representative of the Office.
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11 | | The Department, in consultation with the Office, shall |
12 | | promulgate
administrative rules in accordance with the |
13 | | provisions of the Older Americans
Act of 1965, as now or |
14 | | hereafter amended, to establish the responsibilities of
the |
15 | | Department and the Office of State Long Term Care Ombudsman |
16 | | and the
designated regional Ombudsman programs. The |
17 | | administrative rules shall include
the responsibility of the |
18 | | Office and designated regional programs to
investigate and |
19 | | resolve complaints made by or on behalf of residents of long
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20 | | term care facilities, supportive living facilities, and |
21 | | assisted living and
shared housing establishments, and |
22 | | participants residing in their own homes or community-based |
23 | | settings, including the option to serve residents and |
24 | | participants under the age of 60, relating to actions, |
25 | | inaction, or
decisions of providers, or their representatives, |
26 | | of such
facilities and establishments, of public agencies, or |
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1 | | of social services agencies,
which may adversely affect the |
2 | | health, safety, welfare, or rights of such
residents and |
3 | | participants. The Office and designated regional programs may |
4 | | represent all residents and participants, but are not required |
5 | | by this Act to represent persons under 60 years of age, except |
6 | | to the extent required by federal law.
When necessary and |
7 | | appropriate, representatives of the Office shall refer
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8 | | complaints to the appropriate regulatory State agency.
The |
9 | | Department, in consultation with the Office, shall cooperate |
10 | | with the
Department of Human Services and other State agencies |
11 | | in providing information and training to
designated regional |
12 | | long term care ombudsman programs about the appropriate
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13 | | assessment and treatment (including information about |
14 | | appropriate supportive
services, treatment options, and |
15 | | assessment of rehabilitation potential) of the participants |
16 | | they serve. |
17 | | The State Long Term Care Ombudsman and all other |
18 | | ombudsmen, as defined in paragraph (3.1) of subsection (b) |
19 | | must submit to background checks under the Health Care Worker |
20 | | Background Check Act and receive training, as prescribed by |
21 | | the Illinois Department on Aging, before visiting facilities, |
22 | | private homes, or community-based settings. The training must |
23 | | include information specific to assisted living |
24 | | establishments, supportive living facilities, shared housing |
25 | | establishments, private homes, and community-based settings |
26 | | and to the rights of residents and participants guaranteed |
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1 | | under the corresponding Acts and administrative rules.
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2 | | (c-5) Consumer Choice Information Reports. The Office |
3 | | shall: |
4 | | (1) In collaboration with the Attorney General, create |
5 | | a Consumer Choice Information Report form to be completed |
6 | | by all licensed long term care facilities to aid |
7 | | Illinoisans and their families in making informed choices |
8 | | about long term care. The Office shall create a Consumer |
9 | | Choice Information Report for each type of licensed long |
10 | | term care facility. The Office shall collaborate with the |
11 | | Attorney General and the Department of Human Services to |
12 | | create a Consumer Choice Information Report form for |
13 | | facilities licensed under the ID/DD Community Care Act or |
14 | | the MC/DD Act. |
15 | | (2) Develop a database of Consumer Choice Information |
16 | | Reports completed by licensed long term care facilities |
17 | | that includes information in the following consumer |
18 | | categories: |
19 | | (A) Medical Care, Services, and Treatment. |
20 | | (B) Special Services and Amenities. |
21 | | (C) Staffing. |
22 | | (D) Facility Statistics and Resident Demographics. |
23 | | (E) Ownership and Administration. |
24 | | (F) Safety and Security. |
25 | | (G) Meals and Nutrition. |
26 | | (H) Rooms, Furnishings, and Equipment. |
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1 | | (I) Family, Volunteer, and Visitation Provisions. |
2 | | (3) Make this information accessible to the public, |
3 | | including on the Internet by means of a hyperlink on the |
4 | | Office's World Wide Web home page. Information about |
5 | | facilities licensed under the ID/DD Community Care Act or |
6 | | the MC/DD Act shall be made accessible to the public by the |
7 | | Department of Human Services, including on the Internet by |
8 | | means of a hyperlink on the Department of Human Services' |
9 | | "For Customers" website. |
10 | | (4) Have the authority, with the Attorney General, to |
11 | | verify that information provided by a facility is |
12 | | accurate. |
13 | | (5) Request a new report from any licensed facility |
14 | | whenever it deems necessary.
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15 | | (6) Include in the Office's Consumer Choice
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16 | | Information Report for each type of licensed long term |
17 | | care
facility additional information on each licensed long |
18 | | term
care facility in the State of Illinois, including
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19 | | information regarding each facility's compliance with the
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20 | | relevant State and federal statutes, rules, and standards;
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21 | | customer satisfaction surveys; and information generated
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22 | | from quality measures developed by the Centers for |
23 | | Medicare
and Medicaid Services. |
24 | | (d) Access and visitation rights.
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25 | | (1) In accordance with subparagraphs (A) and (E) of |
26 | | paragraph (3) of
subsection (c) of Section 1819
and |
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1 | | subparagraphs (A) and (E) of paragraph (3) of subsection |
2 | | (c) of Section
1919 of the Social Security Act, as now or |
3 | | hereafter amended (42 U.S.C.
1395i-3 (c)(3)(A) and (E) and |
4 | | 42 U.S.C. 1396r (c)(3)(A) and (E)), and
Section
712 of the |
5 | | Older Americans Act of 1965, as now or hereafter
amended |
6 | | (42 U.S.C. 3058f), a long term care facility, supportive |
7 | | living
facility, assisted living
establishment, and shared |
8 | | housing establishment must:
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9 | | (i) permit immediate access to any resident, |
10 | | regardless of age, by a designated
ombudsman;
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11 | | (ii) permit representatives of the Office, with |
12 | | the permission of the resident, the
resident's legal |
13 | | representative , or the resident's legal guardian, to |
14 | | examine and copy a resident's
clinical and other |
15 | | records, regardless of the age of the resident, and if |
16 | | a resident is unable to consent to such
review, and has |
17 | | no legal guardian, permit representatives of the |
18 | | Office
appropriate access, as defined by the |
19 | | Department, in consultation with the
Office, in |
20 | | administrative rules, to the resident's records; and
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21 | | (iii) permit a representative of the Program to |
22 | | communicate privately and without restriction with any |
23 | | participant who consents to the communication |
24 | | regardless of the consent of, or withholding of |
25 | | consent by, a legal guardian or an agent named in a |
26 | | power of attorney executed by the participant. |
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1 | | (2) Each long term care facility, supportive living |
2 | | facility, assisted
living establishment, and
shared |
3 | | housing establishment shall display, in multiple, |
4 | | conspicuous
public places within the facility accessible |
5 | | to both visitors and residents and
in an easily readable |
6 | | format, the address and phone number of the Office of the
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7 | | Long Term Care Ombudsman, in a manner prescribed by the |
8 | | Office.
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9 | | (e) Immunity. An ombudsman or any representative of the |
10 | | Office participating
in the good faith performance of his or |
11 | | her official duties
shall have immunity from any liability |
12 | | (civil, criminal or otherwise) in
any proceedings (civil, |
13 | | criminal or otherwise) brought as a consequence of
the |
14 | | performance of his official duties.
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15 | | (f) Business offenses.
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16 | | (1) No person shall:
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17 | | (i) Intentionally prevent, interfere with, or |
18 | | attempt to impede in any
way any representative of the |
19 | | Office in the performance of his
official
duties under |
20 | | this Act and the Older Americans Act of 1965; or
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21 | | (ii) Intentionally retaliate, discriminate |
22 | | against, or effect reprisals
against any long term |
23 | | care facility resident or employee for contacting or
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24 | | providing information to any representative of the |
25 | | Office.
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26 | | (2) A violation of this Section is a business offense, |
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1 | | punishable by a
fine not to exceed $501.
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2 | | (3) The State Long Term Care Ombudsman shall
notify |
3 | | the State's Attorney of the
county in which the long term |
4 | | care facility, supportive living facility, or
assisted |
5 | | living or shared housing establishment is located,
or the |
6 | | Attorney General, of any violations of this Section.
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7 | | (g) Confidentiality of records and identities. The |
8 | | Department shall
establish procedures for the disclosure by |
9 | | the State Ombudsman or the regional
ombudsmen
entities of |
10 | | files maintained by the program. The procedures shall provide |
11 | | that
the files and records may be disclosed only at the |
12 | | discretion of the State Long
Term Care
Ombudsman or the person |
13 | | designated by the State Ombudsman to disclose the files
and |
14 | | records, and the procedures shall prohibit the disclosure of |
15 | | the identity
of any complainant, resident, participant, |
16 | | witness, or employee of a long term care provider
unless:
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17 | | (1) the complainant, resident, participant, witness, |
18 | | or employee of a long term care
provider or his or her |
19 | | legal representative consents to the disclosure and the
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20 | | consent is in writing;
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21 | | (2) the complainant, resident, participant, witness, |
22 | | or employee of a long term care
provider gives consent |
23 | | orally; and the consent is documented contemporaneously
in |
24 | | writing in
accordance with such requirements as the |
25 | | Department shall establish; or
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26 | | (3) the disclosure is required by court order.
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1 | | (h) Legal representation. The Attorney General shall
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2 | | provide legal representation to any representative of the |
3 | | Office
against
whom suit or other legal action is brought in |
4 | | connection with the
performance of the representative's |
5 | | official duties, in accordance with the
State Employee |
6 | | Indemnification Act.
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7 | | (i) Treatment by prayer and spiritual means. Nothing in |
8 | | this Act shall
be construed to authorize or require the |
9 | | medical supervision, regulation
or control of remedial care or |
10 | | treatment of any resident in a long term
care facility |
11 | | operated exclusively by and for members or adherents of any
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12 | | church or religious denomination the tenets and practices of |
13 | | which include
reliance solely upon spiritual means through |
14 | | prayer for healing.
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15 | | (j) The Long Term Care Ombudsman Fund is created as a |
16 | | special fund in the State treasury to receive moneys for the |
17 | | express purposes of this Section. All interest earned on |
18 | | moneys in the fund shall be credited to the fund. Moneys |
19 | | contained in the fund shall be used to support the purposes of |
20 | | this Section. |
21 | | (k) Each Regional Ombudsman may, in accordance with rules |
22 | | promulgated by the Office, establish a multi-disciplinary team |
23 | | to act in an advisory role for the purpose of providing |
24 | | professional knowledge and expertise in handling complex |
25 | | abuse, neglect, and advocacy issues involving participants. |
26 | | Each multi-disciplinary team may consist of one or more |
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1 | | volunteer representatives from any combination of at least 7 |
2 | | members from the following professions: banking or finance; |
3 | | disability care; health care; pharmacology; law; law |
4 | | enforcement; emergency responder; mental health care; clergy; |
5 | | coroner or medical examiner; substance abuse; domestic |
6 | | violence; sexual assault; or other related fields. To support |
7 | | multi-disciplinary teams in this role, law enforcement |
8 | | agencies and coroners or medical examiners shall supply |
9 | | records as may be requested in particular cases. The Regional |
10 | | Ombudsman, or his or her designee, of the area in which the |
11 | | multi-disciplinary team is created shall be the facilitator of |
12 | | the multi-disciplinary team. |
13 | | (Source: P.A. 102-1033, eff. 1-1-23 .)
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