Sen. Bill Cunningham

Filed: 5/25/2024

 

 


 

 


 
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1
AMENDMENT TO HOUSE BILL 4317

2    AMENDMENT NO. ______. Amend House Bill 4317 by replacing
3everything after the enacting clause with the following:
 
4    "Section 5. The Genetic Information Privacy Act is amended
5by changing Section 25 as follows:
 
6    (410 ILCS 513/25)
7    Sec. 25. Use of genetic testing information by employers.
8    (a) An employer, employment agency, labor organization,
9and licensing agency shall treat genetic testing and genetic
10information in such a manner that is consistent with the
11requirements of federal law, including but not limited to the
12Genetic Information Nondiscrimination Act of 2008, the
13Americans with Disabilities Act, Title VII of the Civil Rights
14Act of 1964, the Family and Medical Leave Act of 1993, the
15Occupational Safety and Health Act of 1970, the Federal Mine
16Safety and Health Act of 1977, or the Atomic Energy Act of

 

 

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11954.
2    (b) An employer may release genetic testing information
3only in accordance with this Act.
4    (c) An employer, employment agency, labor organization,
5and licensing agency shall not directly or indirectly do any
6of the following:
7        (1) except as set forth in subsection (f-5), solicit,
8    request, require or purchase genetic testing or genetic
9    information of a person or a family member of the person,
10    or administer a genetic test to a person or a family member
11    of the person as a condition of employment, preemployment
12    application, labor organization membership, or licensure;
13        (2) affect the terms, conditions, or privileges of
14    employment, preemployment application, labor organization
15    membership, or licensure, or terminate the employment,
16    labor organization membership, or licensure of any person
17    because of genetic testing or genetic information with
18    respect to the employee or family member, or information
19    about a request for or the receipt of genetic testing by
20    such employee or family member of such employee;
21        (3) limit, segregate, or classify employees in any way
22    that would deprive or tend to deprive any employee of
23    employment opportunities or otherwise adversely affect the
24    status of the employee as an employee because of genetic
25    testing or genetic information with respect to the
26    employee or a family member, or information about a

 

 

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1    request for or the receipt of genetic testing or genetic
2    information by such employee or family member of such
3    employee; and
4        (4) retaliate through discharge or in any other manner
5    against any person alleging a violation of this Act or
6    participating in any manner in a proceeding under this
7    Act.
8    (d) An agreement between a person and an employer,
9prospective employer, employment agency, labor organization,
10or licensing agency, or its employees, agents, or members
11offering the person employment, labor organization membership,
12licensure, or any pay or benefit in return for taking a genetic
13test is prohibited.
14    (e) An employer shall not use genetic information or
15genetic testing in furtherance of a workplace wellness program
16benefiting employees unless (1) health or genetic services are
17offered by the employer, (2) the employee provides written
18authorization in accordance with Section 30 of this Act, (3)
19only the employee or family member if the family member is
20receiving genetic services and the licensed health care
21professional or licensed genetic counselor involved in
22providing such services receive individually identifiable
23information concerning the results of such services, and (4)
24any individually identifiable information is only available
25for purposes of such services and shall not be disclosed to the
26employer except in aggregate terms that do not disclose the

 

 

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1identity of specific employees. An employer shall not penalize
2an employee who does not disclose his or her genetic
3information or does not choose to participate in a program
4requiring disclosure of the employee's genetic information.
5    (f) Nothing in this Act shall be construed to prohibit
6genetic testing of an employee who requests a genetic test and
7who provides written authorization, in accordance with Section
830 of this Act, from taking a genetic test for the purpose of
9initiating a workers' compensation claim under the Workers'
10Compensation Act.
11    (f-5) Nothing in this Act shall be construed to prohibit
12an employer or potential employer from requiring a job
13candidate or existing employee to participate in a
14pre-employment physical examination or an employment-related
15physical examination, including an examination that asks
16questions regarding familial medical background or genetic
17information, so long as:
18        (1) the job candidate or employee has consented, in
19    writing, to participate in such physical examination; and
20        (2) no genetic information is provided or made
21    available to the employer or potential employer or used by
22    the employer or potential employer to make any
23    employment-related decisions other than to determine an
24    employee's or job candidate's fitness to work or ability
25    to perform the required job duties.
26    Not later than 6 months after the effective date of this

 

 

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1amendatory Act of the 103rd General Assembly, if a
2pre-employment physical examination or employment-related
3physical examination will collect genetic information, a
4consent form that clearly and in plain language explains the
5rights of an individual under this Act, including this
6Section, must be provided by the employer or potential
7employer in writing and signed by the individual.
8    (g) A purchase of commercially and publicly available
9documents, including newspapers, magazines, periodicals, and
10books but not including medical databases or court records or
11inadvertently requesting family medical history by an
12employer, employment agency, labor organization, and licensing
13agency does not violate this Act.
14    (h) Nothing in this Act shall be construed to prohibit an
15employer that conducts DNA analysis for law enforcement
16purposes as a forensic laboratory and that includes such
17analysis in the Combined DNA Index System pursuant to the
18federal Violent Crime Control and Law Enforcement Act of 1994
19from requesting or requiring genetic testing or genetic
20information of such employer's employees, but only to the
21extent that such genetic testing or genetic information is
22used for analysis of DNA identification markers for quality
23control to detect sample contamination.
24    (i) Nothing in this Act shall be construed to prohibit an
25employer from requesting or requiring genetic information to
26be used for genetic monitoring of the biological effects of

 

 

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1toxic substances in the workplace, but only if (1) the
2employer provides written notice of the genetic monitoring to
3the employee; (2) the employee provides written authorization
4under Section 30 of this Act or the genetic monitoring is
5required by federal or State law; (3) the employee is informed
6of individual monitoring results; (4) the monitoring is in
7compliance with any federal genetic monitoring regulations or
8State genetic monitoring regulations under the authority of
9the federal Occupational Safety and Health Act of 1970; and
10(5) the employer, excluding any health care provider, health
11care professional, or health facility that is involved in the
12genetic monitoring program, receives the results of the
13monitoring only in aggregate terms that do not disclose the
14identity of specific employees.
15    (j) Despite lawful acquisition of genetic testing or
16genetic information under subsections (e) through (i) of this
17Section, an employer, employment agency, labor organization,
18and licensing agency still may not use or disclose the genetic
19test or genetic information in violation of this Act.
20    (k) Except as provided in subsections (e), (f), (h), and
21(i) of this Section, a person shall not knowingly sell to or
22interpret for an employer, employment agency, labor
23organization, or licensing agency, or its employees, agents,
24or members, a genetic test of an employee, labor organization
25member, or license holder, or of a prospective employee,
26member, or license holder.

 

 

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1(Source: P.A. 100-396, eff. 1-1-18.)
 
2    Section 99. Effective date. This Act takes effect upon
3becoming law.".