HR0703 LRB093 19758 KEF 47577 r

1
HOUSE RESOLUTION

 
2     WHEREAS, Hemophilia is a genetic condition affecting
3 approximately 700 persons in the State of Illinois; hemophilia
4 is characterized by the absence of one of the several clotting
5 factors necessary to control bleeding; the standard care for
6 the treatment of hemophilia is to replace the absent clotting
7 factors necessary to control bleeding; and
 
8     WHEREAS, Without treatment, people with hemophilia face
9 frequent, spontaneous bleeding episodes in their joints
10 causing swelling in the joint, muscles, internal organs, and
11 brain; repeated bleeding episodes in joints result in a chronic
12 degenerative arthritic condition, which often leads to
13 frequent hospitalizations, permanent disability, and chronic
14 pain; bleeding episodes involving internal organs and the brain
15 can cause permanent damage, disability, and even death; and
 
16     WHEREAS, Severe bleeding episodes result in lost time at
17 work and school, decreased quality of life, and inability to
18 perform basic living activities; and
 
19     WHEREAS, With proper care and access to comprehensive
20 medical resources, persons with hemophilia can control
21 bleeding episodes and can lead productive lives; and
 
22     WHEREAS, The Medical and Scientific Advisory Committee of
23 the National Hemophilia Foundation recommends recombinant
24 factor products as the treatment of choice for persons with
25 hemophilia VIII and IX; and
 
26     WHEREAS, Visits to Hemophilia Treatment Centers reduced
27 morbidity by 60 percent; and
 
28     WHEREAS, The State of Illinois is committed to the proper
29 medical treatment of hemophilia; and
 

 

 

HR0703 - 2 - LRB093 19758 KEF 47577 r

1     WHEREAS, Hemophilia and its complications are not well
2 understood by the general public; and
 
3     WHEREAS, The State of Illinois encourages efforts to
4 promote the understanding of hemophilia so that it is treated
5 properly; therefore, be it
 
6     RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE
7 NINETY-THIRD GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that
8 March, 2004, and each March thereafter be designated Hemophilia
9 Awareness Month to enhance the understanding and proper
10 treatment of hemophilia and to encourage participation in
11 activities to support programs to properly treat hemophilia.