SB1461 94TH GENERAL ASSEMBLY

LRB094 10048 RXD 40306 b

94TH GENERAL ASSEMBLY
State of Illinois
2005 and 2006
SB1461

Introduced 2/23/2005, by Sen. Donne E. Trotter

SYNOPSIS AS INTRODUCED:

20 ILCS 2310/2310-339 new

Amends the Department of Public Health Powers and Duties Law of the Civil Administrative Code of Illinois. Provides that the Department of Public Health, subject to appropriation or other available funding, shall conduct a program to promote awareness, testing, diagnosis and treatment of chronic kidney disease. Establishes a Chronic Kidney Disease Awareness, Testing, Diagnosis and Treatment Program in the Department of Public Health. Provides that the Program shall apply to certain persons and entities. Provides that administrative costs of the Department shall not exceed 10% of the funds allocated to the Program. Provides that indirect costs of the entities funded by the Program shall not exceed 12%. Provides that the Department or any entity funded by the Program shall collect personal and medical information necessary to administer the Program from any individual applying for services under the Program.

FISCAL NOTE ACT MAY APPLY

A BILL FOR

AN ACT concerning State government.

Be it enacted by the People of the State of Illinois, represented in the General Assembly:

Section 5. The Department of Public Health Powers and Duties Law of the Civil Administrative Code of Illinois is amended by adding Section 2310-339 as follows:

(20 ILCS 2310/2310-339 new)

Sec. 2310-339. Chronic Kidney Disease Program.

(a) The Department, subject to appropriation or other available funding, shall conduct a program to promote awareness, testing, diagnosis and treatment of chronic kidney disease. The program may include, but is not not limited to:

(1) Dissemination of information regarding the incidence of chronic kidney disease, the risk factors associated with chronic kidney disease, and the benefits of early testing, diagnosis and treatment of chronic kidney disease.

(2) Promotion information and counseling about treatment options.

(3) Establishment and promotion of referral services and testing programs.

(4) Development and dissemination, through print and broadcast media, of public service announcements that publicize the importance of awareness, testing, diagnosis and treatment of chronic kidney disease.

(b) Subject to appropriation or other available funding, a Chronic Kidney Disease Awareness, Testing, Diagnosis and Treatment Program shall be established by the Department of Public Health.

(1) The Program shall apply to the following persons and entities:

(A) Uninsured and underinsured persons 50 years of age and older.

(B) Uninsured and underinsured persons over the age of 50 who have a family history of kidney disease or have been diagnosed with diabetes or hypertension upon the advice of a physician or upon the request of the patient.

(C) Non-profit organizations providing assistance to persons described under subparagraphs (A) and (B) of this paragraph (1).

(2) Any entity funded by the Program shall coordinate with other local providers of chronic kidney disease testing, diagnostic, follow-up, education, and advocacy services to avoid duplication of effort. Any entity funded by the Program shall comply with any applicable State and federal standards regarding chronic kidney disease testing.

(3) Administrative costs of the Department shall not exceed 10% of the funds allocated to the Program. Indirect costs of the entities funded by this Program shall not exceed 12%. The Department shall define "indirect costs" in accordance with applicable State and federal law.

(4) Any entity funded by the Program shall collect data and maintain records that are determined by the Department to be necessary to facilitate the Department's ability to monitor and evaluate the effectiveness of the entities and the Program. Commencing with the Program's second year of operation, the Department shall submit an annual report to the General Assembly and the Governor. The report shall describe the activities and effectiveness of the Program and shall include, but is not limited to, the following types of information regarding those persons served by the Program: (i) the number, (ii) the ethnic, geographic, and age breakdown, (iii) the stages of progression, and (iv) the diagnostic and treatment status.

(5) The Department or any entity funded by the Program shall collect personal and medical information necessary to administer the Program from any individual applying for services under the Program. The information shall be confidential and shall not be disclosed other than for purposes directly connected with the administration of the Program or as otherwise provided by law or pursuant to prior written consent of the subject of the information.

(6) The Department or any entity funded by the Program may disclose the confidential information to medical personnel and fiscal intermediaries of the State to the extent necessary to administer the Program, and to other State public health agencies or medical researchers if the confidential information is necessary to carry out the duties of those agencies or researchers in the investigation, control, or surveillance of chronic kidney disease.

(c) The Department shall adopt rules to implement the Program in accordance with the Illinois Administrative Procedure Act.