Rep. Harry Osterman

Filed: 5/11/2009

 

 


 

 


 
09600SB2043ham001 LRB096 11169 DRJ 26456 a

1
AMENDMENT TO SENATE BILL 2043

2     AMENDMENT NO. ______. Amend Senate Bill 2043 by replacing
3 lines 10 through 26 on page 4 and lines 1 through 18 on page 5
4 with the following:
5     "(c) The Department of Healthcare and Family Services
6 (HFS), the Illinois Department of Public Health, the Illinois
7 Department of Human Services, and the Division of Specialized
8 Care for Children, University of Illinois at Chicago, with
9 necessary support from the Department of Central Management
10 Services, shall integrate into the medical data warehouse
11 individual record level data owned by one of these agencies
12 that pertains to maternal and child health, including the
13 following data sets:
14         (1) Vital Records as they relate to births, birth
15     outcomes, and deaths.
16         (2) Adverse Pregnancy Outcomes Reporting System
17     (APORS).
18         (3) Genetics/Newborn Screenings/SIDS.

 

 

09600SB2043ham001 - 2 - LRB096 11169 DRJ 26456 a

1         (4) Cornerstone (WIC, FCM, Teen Parents,
2     Immunization).
3         (5) HFS medical claims data.
4         (6) I-CARE.
5         (7) Children with Special Healthcare Needs Data.
6     By September 1, 2009, the departments of Healthcare and
7 Family Services, Public Health, and Human Services and the
8 Division of Specialized Care for Children shall jointly prepare
9 a work plan for fully integrating these data sets into the
10 medical data warehouse. The work plan shall provide an overall
11 project design, including defining a mutually acceptable
12 transfer format for each discrete data set, the data update
13 frequency, and a single method of data transfer for each data
14 set. By March 1, 2010, the data sets shall be loaded into the
15 medical data warehouse. By October 1, 2010, data from the
16 various sources shall be processed so as to be compatible with
17 other data in the medical data warehouse and available for
18 analysis in an integrated manner.
19     With the cooperation of the other agencies, HFS shall
20 submit status reports on the progress of these efforts to the
21 Governor and the General Assembly no later than October 1, 2009
22 and April 1, 2010, with a final report due no later than
23 November 1, 2010.
24     On an ongoing basis, the 4 agencies shall review the
25 feasibility of adding data from additional sources to the
26 warehouse. The review may take into account the cost

 

 

09600SB2043ham001 - 3 - LRB096 11169 DRJ 26456 a

1 effectiveness of adding the data, the utility of adding data
2 that is not available as identifiable individual record level
3 data, the requirements related to adding data owned by another
4 entity or not available in electronic form, whether sharing of
5 the data is otherwise prohibited by law, and the resources
6 required and available for effecting the addition.
7     The departments shall use analysis of the data in the
8 medical data warehouse to improve maternal and child health
9 outcomes, and in particular improve birth outcomes, and to
10 reduce racial health disparities in this area.
11     All access and use of the data shall be in compliance with
12 all applicable federal and State laws, regulations, and
13 mandates.
14     Notwithstanding anything in this Section, data
15 incorporated into the data warehouse shall remain subject to
16 the same provisions of law regarding confidentiality and use
17 restrictions as they are subject to in the control of the
18 contributing agency. The Department of Healthcare and Family
19 Services shall develop measures to ensure that the interplay of
20 the several data sets contributed to the data warehouse does
21 not lead to the use or release of data from the data warehouse
22 that would not otherwise be subject to use or release under
23 State or federal law.".