Rep. Harry Osterman

Filed: 5/12/2009

 

 


 

 


 
09600SB2043ham002 LRB096 11169 DRJ 26473 a

1
AMENDMENT TO SENATE BILL 2043

2     AMENDMENT NO. ______. Amend Senate Bill 2043 by replacing
3 lines 10 through 26 on page 4 and lines 1 through 18 on page 5
4 with the following:
5     "(c) The Department of Healthcare and Family Services
6 (HFS), the Illinois Department of Public Health, the Illinois
7 Department of Human Services, and the Division of Specialized
8 Care for Children, University of Illinois at Chicago, with
9 necessary support from the Department of Central Management
10 Services, shall integrate into the medical data warehouse
11 individual record level data owned by one of these agencies
12 that pertains to maternal and child health, including the
13 following data sets:
14         (1) Vital Records as they relate to births, birth
15     outcomes, and deaths.
16         (2) Adverse Pregnancy Outcomes Reporting System
17     (APORS).
18         (3) Genetics/Newborn Screenings/SIDS.

 

 

09600SB2043ham002 - 2 - LRB096 11169 DRJ 26473 a

1         (4) Cornerstone (WIC, FCM, Teen Parents,
2     Immunization).
3         (5) HFS medical claims data.
4         (6) I-CARE.
5         (7) Children with Special Healthcare Needs Data.
6     By September 1, 2009, the departments of Healthcare and
7 Family Services, Public Health, and Human Services and the
8 Division of Specialized Care for Children shall jointly prepare
9 a work plan for fully integrating these data sets into the
10 medical data warehouse. The work plan shall provide an overall
11 project design, including defining a mutually acceptable
12 transfer format for each discrete data set, the data update
13 frequency, and a single method of data transfer for each data
14 set. By October 1, 2009, the Department of Public Health shall
15 grant to the Department of Healthcare and Family Services
16 complete access to all vital records data. The Department of
17 Public Health shall prepare a report detailing that this task
18 has been accomplished and submit this report to the Commission
19 on Government Forecasting and Accountability by October 15,
20 2009. By March 1, 2010, the data sets shall be completely
21 loaded into the medical data warehouse. By July 1, 2010, data
22 from the various sources shall be processed so as to be
23 compatible with other data in the medical data warehouse and
24 available for analysis in an integrated manner.
25     With the cooperation of the other agencies, HFS shall
26 submit status reports on the progress of these efforts to the

 

 

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1 Governor and the General Assembly no later than October 1, 2009
2 and April 1, 2010, with a final report due no later than
3 November 1, 2010.
4     On an ongoing basis, the 4 agencies shall review the
5 feasibility of adding data from additional sources to the
6 warehouse. Such review may take into account the cost
7 effectiveness of adding the data, the utility of adding data
8 that is not available as identifiable individual record level
9 data, the requirements related to adding data owned by another
10 entity or not available in electronic form, whether sharing of
11 the data is otherwise prohibited by law and the resources
12 required and available for effecting the addition.
13     The departments shall use analysis of the data in the
14 medical data warehouse to improve maternal and child health
15 outcomes, and in particular improve birth outcomes, and to
16 reduce racial health disparities in this area.
17     All access and use of the data shall be in compliance with
18 all applicable federal and State laws, regulations, and
19 mandates.
20     Notwithstanding anything in this Section, data
21 incorporated into the data warehouse shall remain subject to
22 the same provisions of law regarding confidentiality and use
23 restrictions as they are subject to in the control of the
24 contributing agency. The Department of Healthcare and Family
25 Services shall develop measures to ensure that the interplay of
26 the several data sets contributed to the data warehouse does

 

 

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1 not lead to the use or release of data from the data warehouse
2 that would not otherwise be subject to use or release under
3 State or federal law.".