97TH GENERAL ASSEMBLY
State of Illinois
2011 and 2012
HB4593

 

Introduced 2/1/2012, by Rep. Patricia R. Bellock

 

SYNOPSIS AS INTRODUCED:
 
410 ILCS 250/3  from Ch. 111 1/2, par. 2103

    Amends the Developmental Disability Prevention Act. Provides that the standards related to staffing resources, including, but not limited to, medical and nursing resources, that are implemented through rulemaking after September 1, 2011 shall not exceed current, nationally-recognized, evidence-based practices. Provides that all rulemaking shall recognize and adequately address the needs and resources particular to the locality, institution, workforce availability, outcomes, and other variations impacting patient access to care, as reflected in the hospital's letter of agreement with its Administrative Perinatal Center.


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A BILL FOR

 

HB4593LRB097 18321 RPM 63547 b

1    AN ACT concerning public health.
 
2    Be it enacted by the People of the State of Illinois,
3represented in the General Assembly:
 
4    Section 5. The Developmental Disability Prevention Act is
5amended by changing Section 3 as follows:
 
6    (410 ILCS 250/3)  (from Ch. 111 1/2, par. 2103)
7    Sec. 3. By January 1, 1974, the Department, in conjunction
8with its appropriate advisory planning committee, shall
9develop standards for all levels of hospital perinatal care to
10include regional perinatal centers. Such standards shall
11recognize and correlate with the Hospital Licensing Act
12approved July 1, 1953, as amended. Standards related to
13staffing resources, including, but not limited to, medical and
14nursing resources, that are implemented through rulemaking
15after September 1, 2011 shall not exceed current,
16nationally-recognized, evidence-based practices. All
17rulemaking shall recognize and adequately address the needs and
18resources particular to the locality, institution, workforce
19availability, outcomes, and other variations impacting patient
20access to care, as reflected in the hospital's letter of
21agreement with its Administrative Perinatal Center. The
22standards shall assure that:
23    (a) facilities are equipped and prepared to stabilize

 

 

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1infants prior to transport;
2    (b) coordination exists between general maternity care and
3perinatal centers;
4    (c) unexpected complications during delivery can be
5properly managed;
6    (d) all high risk pregnancies and childbirths are reviewed
7at each hospital or maternity center to determine if such
8children are born with a handicapping condition or
9developmental disability that threatens life or development;
10    (e) procedures are implemented to identify and report to
11the Department all births of children with handicapping
12conditions or developmental disabilities that threaten life or
13development;
14    (f) children identified as having a handicapping condition
15or developmental disability that threatens life or development
16are promptly evaluated in consultation with designated
17regional perinatal centers and referred, when appropriate, to
18such centers, or to other medical specialty services, as
19approved by the Department and in accordance with the level of
20perinatal care authorized for each hospital or maternity care
21center for the proper management and treatment of such
22condition or disability;
23    (g) hospital or maternity centers conduct postnatal
24reviews of all perinatal deaths as well as reviews of the
25births of children born with handicapping conditions or
26developmental disabilities that threaten life or development,

 

 

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1utilizing criteria of case selection developed by such
2hospitals or maternity centers, or the appropriate medical
3staff committees thereof, in order to determine the
4appropriateness of diagnosis and treatment and the adequacy of
5procedures to prevent such disabilities or the loss of life;
6    (h) high risk mothers and their spouses are provided
7information, referral and counseling services to ensure
8informed consent to the treatment of children born with
9handicapping conditions or developmental disabilities;
10    (i) parents and families are provided information,
11referral and counseling services to assist in obtaining
12habilitation, rehabilitation and special education services
13for children born with handicapping conditions or
14developmental disabilities, so that such children have an
15opportunity to realize full potential. Such standards shall
16include, but not be limited to, the establishment of procedures
17for notification of the appropriate State and local educational
18service agencies regarding children who may require evaluation
19and assessment under such agencies;
20    (j) consultation when indicated is provided for and
21available. Perinatal centers shall provide care for the high
22risk expectant mother who may deliver a distressed or disabled
23infant. Such centers shall also provide intensive care to the
24high risk newborn whose life or physical well-being is in
25jeopardy. Standards shall include the availability of: 1
26trained personnel; 2 trained neonatal nursing staff; 3 x-ray

 

 

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1and laboratory equipment available on a 24-hour basis; 4 infant
2monitoring equipment; 5 transportation of mothers and/or
3infants; 6 genetic services; 7 surgical and cardiology
4consultation; and 8 other support services as may be required.
5    The standards under this Section shall be established by
6rules and regulations of the Department. Such standards shall
7be deemed sufficient for the purposes of this Act if they
8require the perinatal care facilities to submit plans or enter
9into agreements with the Department which adequately address
10the requirements of paragraphs (a) through (j) above.
11(Source: P.A. 84-1308.)