Rep. Patricia R. Bellock

Filed: 3/25/2014

 

 


 

 


 
09800HB5852ham001LRB098 17070 KTG 57422 a

1
AMENDMENT TO HOUSE BILL 5852

2    AMENDMENT NO. ______. Amend House Bill 5852 by replacing
3everything after the enacting clause with the following:
 
4    "Section 5. The Disabled Persons Rehabilitation Act is
5amended by adding Section 17.1 as follows:
 
6    (20 ILCS 2405/17.1 new)
7    Sec. 17.1. Home Care Consumer Bill of Rights.
8    (a) Definitions. As used in this Section:
9    "Home care consumer" or "consumer" means a person aged 60
10or older or a person with disabilities aged 18 through 59 who
11receives services in his or her home or community to promote
12independence and reduce the necessity for residence in a
13long-term care facility. These services may include the
14following:
15        (1) Home care services provided under this Act, the
16    Medicare program under Title XVIII of the Social Security

 

 

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1    Act, the Medicaid program under Title XIX of the Social
2    Security Act, or any other program funded by public or
3    private moneys.
4        (2) Home care services determined to be appropriate by
5    the Department.
6    "Home Care Consumer Bill of Rights" means, at a minimum,
7the rights set forth in subsections (b) through (g) and, in
8addition, any other rights established under subsection (h).
9    "Home care services" or "services" means home and
10community-based services to promote independence and reduce
11the necessity for residence in a long-term care facility,
12including personal care services designed to assist an
13individual in the activities of daily living such as bathing,
14exercising, personal grooming, and getting in and out of bed.
15    (b) Home care consumer's right to basic safety.
16        (1) A home care consumer has the right to be protected
17    from physical, sexual, mental, and verbal abuse, neglect,
18    and exploitation, including financial exploitation.
19        (2) A home care consumer has the right to be served by
20    providers who are properly trained and are providing home
21    care services within their scope of practice and the scope
22    of their certification or licensure by the State.
23        (3) A provider of home care services shall maintain the
24    confidentiality of all personal, financial, and medical
25    information of the home care consumers to whom it provides
26    services.

 

 

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1        (4) A provider of home care services shall respect the
2    personal property of the home care consumers to whom it
3    provides services. If a consumer reports a theft or loss of
4    personal property, the provider shall investigate and
5    shall report back to the consumer the results of the
6    investigation.
7    (c) Home care consumer's right to information.
8        (1) A home care consumer has the right to be informed
9    of the following by a provider of home care services within
10    2 weeks after starting to receive home care services:
11            (A) His or her rights under this Section.
12            (B) The entities the home care consumer may contact
13        if his or her rights are violated, including the name
14        and contact information for the Department of Human
15        Services and the Department on Aging and other State
16        and local agencies responsible for enforcing the Home
17        Care Consumer Bill of Rights.
18        (2) A home care consumer has the right to:
19            (A) be informed of (i) the cost of home care
20        services prior to receiving those services, (ii)
21        whether the cost of those services is covered under
22        health insurance, long-term care insurance, or other
23        private or public programs, and (iii) any charges the
24        consumer will be expected to pay; and
25            (B) be given advance notice of any changes to those
26        costs or services.

 

 

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1        (3) A home care consumer has the right to access
2    information about the availability of the home care
3    services provided in his or her community and has the right
4    to choose among home care services and providers of home
5    care services available in that community.
6    (d) Home care consumer's right to choice, participation,
7and self-determination.
8        (1) A home care consumer has the right to participate
9    in the planning of his or her home care services, including
10    making choices about aspects of his or her care and
11    services that are important to him or her, choosing
12    providers and schedules to the extent practicable,
13    receiving reasonable accommodation of his or her needs and
14    preferences, and involving anyone he or she chooses to
15    participate with him or her in that planning.
16        (2) A home care consumer has the right to be provided
17    with sufficient information to make informed decisions, to
18    be fully informed in advance about any proposed changes in
19    care and services, and to be involved in the
20    decision-making process regarding those changes.
21        (3) A home care consumer may refuse services and has
22    the right to receive an explanation of the consequences of
23    doing so.
24    (e) Home care consumer's right to dignity and
25individuality. A home care consumer has the right to receive
26care and services provided in a way that promotes his or her

 

 

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1dignity and individuality.
2    (f) Home care consumer's right to redress grievances.
3        (1) A home care consumer has the right to express
4    grievances about the quality of his or her home care
5    services, the number of hours of service, and any
6    violations of his or her rights under this Section. A home
7    care consumer has the right to receive prompt responses to
8    those concerns and to be informed about the entities the
9    consumer may contact to state those grievances in order to
10    have the grievances addressed in an appropriate and timely
11    manner and without retaliation.
12        (2) A home care consumer has the right to assert his or
13    her rights under this Section without retaliation.
14    (g) Home care consumer's right to fiduciary assistance. A
15home care consumer has the right to a fiduciary's assistance in
16securing the consumer's rights under this Section.
17    (h) Other rights. The Home Care Consumer Bill of Rights may
18include any other rights determined to be appropriate by the
19Department.
20    (i) The Department of Human Services and the Department on
21Aging shall develop a plan for enforcing the Home Care Consumer
22Bill of Rights. In developing the plan, the Departments shall
23establish and take into account best practices for enforcement
24of those rights. The Departments shall make those best
25practices available to the public through their official web
26sites. The plan shall include a description of how entities

 

 

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1with a role in protecting older adults aged 60 or older and
2persons with disabilities aged 18 through 59, such as home care
3services licensing agencies, adult protective services
4agencies, the Office of State Long Term Care Ombudsman, local
5law enforcement agencies, and other entities determined to be
6appropriate by the Departments, will coordinate activities to
7enforce the Home Care Consumer Bill of Rights.
 
8    Section 10. The Older Adult Services Act is amended by
9adding Section 40 as follows:
 
10    (320 ILCS 42/40 new)
11    Sec. 40. Home Care Consumer Bill of Rights.
12    (a) Definitions. As used in this Section:
13    "Home care consumer" or "consumer" means a person aged 60
14or older or a person with disabilities aged 18 through 59 who
15receives services in his or her home or community to promote
16independence and reduce the necessity for residence in a
17long-term care facility. These services may include the
18following:
19        (1) Home care services provided under this Act, the
20    Medicare program under Title XVIII of the Social Security
21    Act, the Medicaid program under Title XIX of the Social
22    Security Act, or any other program funded by public or
23    private moneys.
24        (2) Home care services determined to be appropriate by

 

 

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1    the Department.
2    "Home Care Consumer Bill of Rights" means, at a minimum,
3the rights set forth in subsections (b) through (g) and, in
4addition, any other rights established under subsection (h).
5    "Home care services" or "services" means home and
6community-based services to promote independence and reduce
7the necessity for residence in a long-term care facility,
8including personal care services designed to assist an
9individual in the activities of daily living such as bathing,
10exercising, personal grooming, and getting in and out of bed.
11    (b) Home care consumer's right to basic safety.
12        (1) A home care consumer has the right to be protected
13    from physical, sexual, mental, and verbal abuse, neglect,
14    and exploitation, including financial exploitation.
15        (2) A home care consumer has the right to be served by
16    providers who are properly trained and are providing home
17    care services within their scope of practice and the scope
18    of their certification or licensure by the State.
19        (3) A provider of home care services shall maintain the
20    confidentiality of all personal, financial, and medical
21    information of the home care consumers to whom it provides
22    services.
23        (4) A provider of home care services shall respect the
24    personal property of the home care consumers to whom it
25    provides services. If a consumer reports a theft or loss of
26    personal property, the provider shall investigate and

 

 

09800HB5852ham001- 8 -LRB098 17070 KTG 57422 a

1    shall report back to the consumer the results of the
2    investigation.
3    (c) Home care consumer's right to information.
4        (1) A home care consumer has the right to be informed
5    of the following by a provider of home care services within
6    2 weeks after starting to receive home care services:
7            (A) His or her rights under this Section.
8            (B) The entities the home care consumer may contact
9        if his or her rights are violated, including the name
10        and contact information for the Department on Aging and
11        the Department of Human Services and other State and
12        local agencies responsible for enforcing the Home Care
13        Consumer Bill of Rights.
14        (2) A home care consumer has the right to:
15            (A) be informed of (i) the cost of home care
16        services prior to receiving those services, (ii)
17        whether the cost of those services is covered under
18        health insurance, long-term care insurance, or other
19        private or public programs, and (iii) any charges the
20        consumer will be expected to pay; and
21            (B) be given advance notice of any changes to those
22        costs or services.
23        (3) A home care consumer has the right to access
24    information about the availability of the home care
25    services provided in his or her community and has the right
26    to choose among home care services and providers of home

 

 

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1    care services available in that community.
2    (d) Home care consumer's right to choice, participation,
3and self-determination.
4        (1) A home care consumer has the right to participate
5    in the planning of his or her home care services, including
6    making choices about aspects of his or her care and
7    services that are important to him or her, choosing
8    providers and schedules to the extent practicable,
9    receiving reasonable accommodation of his or her needs and
10    preferences, and involving anyone he or she chooses to
11    participate with him or her in that planning.
12        (2) A home care consumer has the right to be provided
13    with sufficient information to make informed decisions, to
14    be fully informed in advance about any proposed changes in
15    care and services, and to be involved in the
16    decision-making process regarding those changes.
17        (3) A home care consumer may refuse services and has
18    the right to receive an explanation of the consequences of
19    doing so.
20    (e) Home care consumer's right to dignity and
21individuality. A home care consumer has the right to receive
22care and services provided in a way that promotes his or her
23dignity and individuality.
24    (f) Home care consumer's right to redress grievances.
25        (1) A home care consumer has the right to express
26    grievances about the quality of his or her home care

 

 

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1    services, the number of hours of service, and any
2    violations of his or her rights under this Section. A home
3    care consumer has the right to receive prompt responses to
4    those concerns and to be informed about the entities the
5    consumer may contact to state those grievances in order to
6    have the grievances addressed in an appropriate and timely
7    manner and without retaliation.
8        (2) A home care consumer has the right to assert his or
9    her rights under this Section without retaliation.
10    (g) Home care consumer's right to fiduciary assistance. A
11home care consumer has the right to a fiduciary's assistance in
12securing the consumer's rights under this Section.
13    (h) Other rights. The Home Care Consumer Bill of Rights may
14include any other rights determined to be appropriate by the
15Department.
16    (i) The Department on Aging and the Department of Human
17Services shall develop a plan for enforcing the Home Care
18Consumer Bill of Rights. In developing the plan, the
19Departments shall establish and take into account best
20practices for enforcement of those rights. The Departments
21shall make those best practices available to the public through
22their official web sites. The plan shall include a description
23of how entities with a role in protecting older adults aged 60
24or older and persons with disabilities aged 18 through 59, such
25as home care services licensing agencies, adult protective
26services agencies, the Office of State Long Term Care

 

 

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1Ombudsman, local law enforcement agencies, and other entities
2determined to be appropriate by the Departments, will
3coordinate activities to enforce the Home Care Consumer Bill of
4Rights.
 
5    Section 99. Effective date. This Act takes effect upon
6becoming law.".