HB5365 - 104th General Assembly
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| 1 | AMENDMENT TO HOUSE BILL 5365 | ||||||
| 2 | AMENDMENT NO. ______. Amend House Bill 5365 by replacing | ||||||
| 3 | everything after the enacting clause with the following: | ||||||
| 4 | "Section 5. The Supported Decision-Making Agreement Act is | ||||||
| 5 | amended by changing Sections 5, 10, 15, 30, 50, and 70 as | ||||||
| 6 | follows: | ||||||
| 7 | (755 ILCS 9/5) | ||||||
| 8 | Sec. 5. Purpose; interpretation. The purpose of this Act | ||||||
| 9 | is to protect vulnerable adults from exploitation by | ||||||
| 10 | recognizing recognize a less-restrictive alternative to | ||||||
| 11 | guardianship for adults with intellectual and developmental | ||||||
| 12 | disabilities who need support making assistance with decisions | ||||||
| 13 | regarding daily living and who, with proper support, retain | ||||||
| 14 | the capacity to make those decisions. Supported | ||||||
| 15 | decision-making is intended to provide individuals a way to | ||||||
| 16 | maintain autonomy and decision-making authority over their own | ||||||
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| 1 | lives by developing and maintaining voluntary supports to | ||||||
| 2 | assist them in understanding, making, communicating, and | ||||||
| 3 | implementing their own informed choices. | ||||||
| 4 | This Act shall be administered and interpreted in | ||||||
| 5 | accordance with the following principles: | ||||||
| 6 | (1) All adults, including adults with disabilities and | ||||||
| 7 | older adults, are presumed competent and to have the | ||||||
| 8 | capacity to make decisions regarding their day-to-day | ||||||
| 9 | health, safety, welfare, and social and financial affairs, | ||||||
| 10 | should be able to live in the manner they choose and to | ||||||
| 11 | accept or refuse support, assistance, or protection unless | ||||||
| 12 | otherwise determined through legal proceedings as long as | ||||||
| 13 | they do not harm others and are capable of making | ||||||
| 14 | decisions about those matters. | ||||||
| 15 | (2) All adults should be able to be informed about | ||||||
| 16 | and, to the best of their ability and with the supports | ||||||
| 17 | they choose, participate in decisions regarding daily | ||||||
| 18 | living and managing their affairs. | ||||||
| 19 | (3) Adults use a wide range of voluntary supports to | ||||||
| 20 | help them understand, make, and communicate their own | ||||||
| 21 | decisions. These voluntary arrangements should be | ||||||
| 22 | encouraged and recognized as a valid way for people to | ||||||
| 23 | strengthen their capacity and maintain their autonomy. | ||||||
| 24 | (4) All adults should receive the most effective yet | ||||||
| 25 | least restrictive and intrusive forms of support, | ||||||
| 26 | assistance, and protection when they are unable to care | ||||||
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| 1 | for themselves or manage their affairs alone. | ||||||
| 2 | (5) (4) The values, beliefs, wishes, cultural norms, | ||||||
| 3 | and traditions that the principal holds should be | ||||||
| 4 | respected. | ||||||
| 5 | (6) To safeguard vulnerable persons from exploitation, | ||||||
| 6 | a supported decision-making agreement: | ||||||
| 7 | (A) must include the specific areas for which the | ||||||
| 8 | supporter requests support; | ||||||
| 9 | (B) should be reviewed every 2 years; | ||||||
| 10 | (C) must include information about how to report | ||||||
| 11 | abuse, neglect, or exploitation of an adult with | ||||||
| 12 | disabilities; | ||||||
| 13 | (D) must allow an interested person to seek | ||||||
| 14 | suspension or revocation of a supported | ||||||
| 15 | decision-making agreement; | ||||||
| 16 | (E) must require a supporter to attest that the | ||||||
| 17 | supporter must complete training and is eligible to | ||||||
| 18 | serve as a supporter; | ||||||
| 19 | (F) is automatically terminated if a supporter | ||||||
| 20 | becomes disqualified; | ||||||
| 21 | (G) must contain the names and signatures of 2 | ||||||
| 22 | witnesses; and | ||||||
| 23 | (H) must include a statement that the supporter is | ||||||
| 24 | not authorized to make a decision for the principal. | ||||||
| 25 | (7) Under a supported decision-making agreement: | ||||||
| 26 | (A) the principal makes the decisions and retains | ||||||
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| 1 | all personal rights and autonomy; | ||||||
| 2 | (B) the principal chooses trusted individuals to | ||||||
| 3 | support them; and | ||||||
| 4 | (C) supporters advise the principal, provide | ||||||
| 5 | information, and help them understand the implications | ||||||
| 6 | of different choices, but they do not make the | ||||||
| 7 | decision. | ||||||
| 8 | (Source: P.A. 102-614, eff. 2-27-22.) | ||||||
| 9 | (755 ILCS 9/10) | ||||||
| 10 | Sec. 10. Definitions. As used in this Act: | ||||||
| 11 | "Adult" means a person who is at least 18 years of age. | ||||||
| 12 | "Everyday life decisions" means decisions that support | ||||||
| 13 | one's existence, including, but not limited to, decisions | ||||||
| 14 | regarding medical care and treatment, one's residence, work, | ||||||
| 15 | finances, and social life. | ||||||
| 16 | "Interested person" means the principal's spouse, parent, | ||||||
| 17 | or adult child; a governmental agency having regulatory | ||||||
| 18 | authority to protect the welfare of the principal; a service | ||||||
| 19 | provider as defined in the Guardianship and Advocacy Act; and | ||||||
| 20 | the principal's caregiver or another person who demonstrates | ||||||
| 21 | sufficient interest in the principal's welfare. | ||||||
| 22 | "Principal" means an adult who is not under plenary | ||||||
| 23 | guardianship and has not otherwise been declared by a | ||||||
| 24 | physician to lack decisional capacity and with intellectual or | ||||||
| 25 | developmental disabilities who seeks to enter, or has entered, | ||||||
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| 1 | into a supported decision-making agreement with a supporter | ||||||
| 2 | under this Act. | ||||||
| 3 | "Supported decision-making" means a process of supporting | ||||||
| 4 | and accommodating a principal to assist the principal in | ||||||
| 5 | making life decisions under a supported decision-making | ||||||
| 6 | agreement. | ||||||
| 7 | "Supported decision-making agreement" means an agreement | ||||||
| 8 | between a principal and a supporter under this Act that | ||||||
| 9 | identifies the life decisions that can be supported, which may | ||||||
| 10 | include, but are not limited to, decisions related to where | ||||||
| 11 | the principal wants to live, with whom the principal wants to | ||||||
| 12 | live, where the principal wants to work, and the services, | ||||||
| 13 | supports, or medical care the principal wants to receive | ||||||
| 14 | without impeding the self-determination of the principal. | ||||||
| 15 | "Supporter" means an adult who has entered into a | ||||||
| 16 | supported decision-making agreement with a principal under | ||||||
| 17 | this Act. | ||||||
| 18 | (Source: P.A. 102-614, eff. 2-27-22.) | ||||||
| 19 | (755 ILCS 9/15) | ||||||
| 20 | Sec. 15. Presumption of capability. | ||||||
| 21 | (a) All adults are presumed to be capable of making | ||||||
| 22 | decisions regarding daily living and to have capacity unless | ||||||
| 23 | otherwise determined by a court. A diagnosis of mental | ||||||
| 24 | illness, intellectual disability, or developmental disability, | ||||||
| 25 | of itself, does not void the presumption of capacity. | ||||||
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| 1 | (b) The manner in which an adult communicates with others | ||||||
| 2 | is not grounds for deciding that the adult is incapable of | ||||||
| 3 | managing the affairs of the adult. | ||||||
| 4 | (c) The execution of a supported decision-making agreement | ||||||
| 5 | may not be used as evidence of capacity or incapacity in any | ||||||
| 6 | civil or criminal proceeding; however, the existence of such | ||||||
| 7 | an agreement may be entered into evidence. The execution of a | ||||||
| 8 | supported decision-making agreement and does not preclude the | ||||||
| 9 | ability of the adult who has entered into a supported | ||||||
| 10 | decision-making agreement to act independently of the | ||||||
| 11 | agreement. | ||||||
| 12 | (Source: P.A. 102-614, eff. 2-27-22.) | ||||||
| 13 | (755 ILCS 9/30) | ||||||
| 14 | Sec. 30. Supporter duties. | ||||||
| 15 | (a) Except as otherwise provided by a supported | ||||||
| 16 | decision-making agreement, a supporter may: | ||||||
| 17 | (1) Assist the principal in understanding information, | ||||||
| 18 | options, responsibilities, and consequences of the life | ||||||
| 19 | decisions of the principal, including those decisions | ||||||
| 20 | related to the affairs or support services of the | ||||||
| 21 | principal. | ||||||
| 22 | (2) Help the principal access, obtain, and understand | ||||||
| 23 | any information that is relevant to any given life | ||||||
| 24 | decision, including a medical, psychological, financial, | ||||||
| 25 | or educational decision, or any treatment records or | ||||||
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| 1 | records necessary to manage the affairs or support | ||||||
| 2 | services of the principal. | ||||||
| 3 | (3) Assist the principal in finding, obtaining, making | ||||||
| 4 | appointments for, and implementing the support services or | ||||||
| 5 | plans for support services of the principal. | ||||||
| 6 | (4) Help the principal monitor information about the | ||||||
| 7 | affairs or support services of the principal, including | ||||||
| 8 | keeping track of future necessary or recommended services. | ||||||
| 9 | (5) Ascertain the wishes and decisions of the | ||||||
| 10 | principal in order to advocate that the wishes and | ||||||
| 11 | decisions of an individual with disabilities are | ||||||
| 12 | implemented. | ||||||
| 13 | (b) A supporter shall act with the care, competence, and | ||||||
| 14 | diligence ordinarily exercised by an individual in a similar | ||||||
| 15 | circumstance, with due regard to the possession of, or lack | ||||||
| 16 | of, special skills or expertise. | ||||||
| 17 | (c) A supporter shall complete the seek training developed | ||||||
| 18 | by the Guardianship and Advocacy Commission and education | ||||||
| 19 | regarding the responsibilities and limitations of the | ||||||
| 20 | supporter role within 45 days of signing the consent to act as | ||||||
| 21 | a supporter. The Guardianship and Advocacy Commission shall | ||||||
| 22 | provide public information about this Act and the supporter | ||||||
| 23 | role, responsibilities, and limitations. | ||||||
| 24 | The Guardianship and Advocacy Commission shall develop | ||||||
| 25 | training and education materials for both principals and | ||||||
| 26 | supporters, including, but not limited to, sample agreements | ||||||
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| 1 | that will be posted on the website of the Commission along with | ||||||
| 2 | public awareness materials. | ||||||
| 3 | (Source: P.A. 102-614, eff. 2-27-22.) | ||||||
| 4 | (755 ILCS 9/50) | ||||||
| 5 | Sec. 50. Agreement instrument. | ||||||
| 6 | (a) A supported decision-making agreement must be written | ||||||
| 7 | in plain language and include the following: | ||||||
| 8 | (1) a list of the areas in which both the principal | ||||||
| 9 | requests support and the supporter agrees to provide | ||||||
| 10 | support; | ||||||
| 11 | (2) the supporter's agreement that the supporter is | ||||||
| 12 | not disqualified from acting under Section 20 of this Act; | ||||||
| 13 | (3) the supporter's agreement that the supporter will | ||||||
| 14 | complete the training required by subsection (c) of | ||||||
| 15 | Section 30 of this Act; | ||||||
| 16 | (4) a statement that a supporter is not authorized to | ||||||
| 17 | make a decision for the principal; and | ||||||
| 18 | (5) information about how to report suspicion that an | ||||||
| 19 | adult with a disability is being abused, neglected, or | ||||||
| 20 | exploited by the supporter. | ||||||
| 21 | (b) A supported decision-making agreement must be signed | ||||||
| 22 | by the principal and each supporter. The principal may use | ||||||
| 23 | reasonable modifications, such as assistive technology or | ||||||
| 24 | physical assistance, to sign the agreement. | ||||||
| 25 | (c) A supported decision-making agreement should be | ||||||
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| 1 | reviewed by the principal and all supporters every 2 years and | ||||||
| 2 | updated, as needed, in the same manner as an initial supported | ||||||
| 3 | decision-making agreement is executed. | ||||||
| 4 | (d) A supported decision-making agreement is valid if it | ||||||
| 5 | substantially follows the following form: | ||||||
| 6 | "SUPPORTED DECISION-MAKING AGREEMENT | ||||||
| 7 | Important Information for the Supporter: Duties | ||||||
| 8 | If you agree to provide support to the principal, you have | ||||||
| 9 | a duty to: | ||||||
| 10 | (1) act in good faith; | ||||||
| 11 | (2) act within the authority granted in this | ||||||
| 12 | agreement; | ||||||
| 13 | (3) act loyally and without self-interest; and | ||||||
| 14 | (4) avoid conflicts of interest; and . | ||||||
| 15 | (5) complete the training required in Section 30 of | ||||||
| 16 | the Supported Decision-Making Agreement Act. | ||||||
| 17 | Appointment of Supporter | ||||||
| 18 | I, (insert principal's name), make this agreement of my | ||||||
| 19 | own free will. | ||||||
| 20 | I agree and designate that the following individual is my | ||||||
| 21 | supporter: | ||||||
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| 1 | Name: ............................................... | ||||||
| 2 | Address: ............................................ | ||||||
| 3 | Phone Number: ....................................... | ||||||
| 4 | Email Address: .......................................... | ||||||
| 5 | My supporter is to help me make decisions for myself and | ||||||
| 6 | may help me with making everyday life decisions relating to | ||||||
| 7 | the following: | ||||||
| 8 | (Yes/No) obtaining food, clothing, and shelter. | ||||||
| 9 | (Yes/No) taking care of my physical and emotional | ||||||
| 10 | health. | ||||||
| 11 | (Yes/No) managing my financial affairs. | ||||||
| 12 | (Yes/No) applying for public benefits. | ||||||
| 13 | (Yes/No) helping me find work. | ||||||
| 14 | (Yes/No) assisting with residential services. | ||||||
| 15 | (Yes/No) helping me with school. | ||||||
| 16 | (Yes/No) helping me advocate for myself. | ||||||
| 17 | My supporter is not allowed to make decisions for me. To | ||||||
| 18 | help me with my decisions, my supporter may: | ||||||
| 19 | (1) help me access, collect, or obtain information | ||||||
| 20 | that is relevant to a decision, including medical, | ||||||
| 21 | psychological, financial, educational, housing, and | ||||||
| 22 | treatment records; | ||||||
| 23 | (2) help me understand my options so that I can make an | ||||||
| 24 | informed decision; and | ||||||
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| 1 | (3) help me communicate my decision to appropriate | ||||||
| 2 | persons. | ||||||
| 3 | I want my supporter to have: | ||||||
| 4 | (Yes/No) A release allowing my supporter to see | ||||||
| 5 | protected health information under the Health Insurance | ||||||
| 6 | Portability and Accountability Act of 1996 is attached. | ||||||
| 7 | (Yes/No) A release allowing my supporter to see | ||||||
| 8 | confidential information under the Mental Health and | ||||||
| 9 | Developmental Disabilities Confidentiality Act is | ||||||
| 10 | attached. | ||||||
| 11 | (Yes/No) A release allowing my supporter to see | ||||||
| 12 | educational records under the Family Educational Rights | ||||||
| 13 | and Privacy Act of 1974 and the Illinois School Records | ||||||
| 14 | Act is attached. | ||||||
| 15 | (Yes/No) A release allowing my supporter to see | ||||||
| 16 | substance abuse records under Confidentiality of Alcohol | ||||||
| 17 | and Drug Abuse Patient Records regulations is attached. | ||||||
| 18 | This supported decision-making agreement is effective | ||||||
| 19 | immediately and will continue until (insert date) or until the | ||||||
| 20 | agreement is terminated by my supporter or me or by operation | ||||||
| 21 | of law. | ||||||
| 22 | Signed this .... day of ........, 20.... | ||||||
| 23 | (Signature of Principal) (Printed name of principal) | ||||||
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| 1 | Consent of Supporter | ||||||
| 2 | I, (name of supporter), consent to act as a supporter | ||||||
| 3 | under this agreement. | ||||||
| 4 | (Signature of supporter) (Printed name of supporter) | ||||||
| 5 | (Witness 1 signature) (Printed name of witness 1) | ||||||
| 6 | (Witness 2 signature) (Printed name of witness 2) | ||||||
| 7 | WARNING: PROTECTION FOR THE ADULT WITH A DISABILITY | ||||||
| 8 | IF A PERSON WHO RECEIVES A COPY OF THIS AGREEMENT OR IS AWARE | ||||||
| 9 | OF THE EXISTENCE OF THIS AGREEMENT HAS CAUSE TO BELIEVE THAT | ||||||
| 10 | THE ADULT WITH A DISABILITY IS BEING ABUSED, NEGLECTED, OR | ||||||
| 11 | EXPLOITED BY THE SUPPORTER, THE PERSON SHALL REPORT THE | ||||||
| 12 | ALLEGED ABUSE, NEGLECT, OR EXPLOITATION TO THE ADULT | ||||||
| 13 | PROTECTIVE SERVICES HOTLINE: 1-866-800-1409, 1-888-206-1327 | ||||||
| 14 | (TTY)." | ||||||
| 15 | This form is not intended to exclude other forms or | ||||||
| 16 | agreements that identify the principal, supporter, and types | ||||||
| 17 | of supports. | ||||||
| 18 | (Source: P.A. 102-614, eff. 2-27-22.) | ||||||
| 19 | (755 ILCS 9/70) | ||||||
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| 1 | Sec. 70. Term of agreement; revocation. | ||||||
| 2 | (a) A supported decision-making agreement extends until | ||||||
| 3 | terminated by either party or by the terms of the agreement. | ||||||
| 4 | (b) A supported decision-making agreement is terminated | ||||||
| 5 | if: | ||||||
| 6 | (1) the Office of Inspector General or Adult | ||||||
| 7 | Protective Services substantiated an allegation of abuse | ||||||
| 8 | or neglect by the supporter; or | ||||||
| 9 | (2) there is a restraining order against the supporter | ||||||
| 10 | by or on behalf of the principal; . | ||||||
| 11 | (3) all supporters become disqualified from acting as | ||||||
| 12 | a supporter under Section 20 of this Act; | ||||||
| 13 | (4) the principal revokes the agreement; | ||||||
| 14 | (5) the supporter resigns; or | ||||||
| 15 | (6) the agreement includes a termination date. | ||||||
| 16 | (b-5) A supported decision-making agreement is suspended | ||||||
| 17 | while: | ||||||
| 18 | (1) the conditions of Section 15 of the Health Care | ||||||
| 19 | Surrogate Act are met; | ||||||
| 20 | (2) a medical or psychological evaluation has | ||||||
| 21 | concluded the principal lacks decisional capacity but a | ||||||
| 22 | subsequent evaluation has not yet found the principal's | ||||||
| 23 | decisional capacity restored; or | ||||||
| 24 | (3) the agency established in a durable power of | ||||||
| 25 | attorney has begun but not yet terminated. | ||||||
| 26 | (c) A principal may revoke his or her supported | ||||||
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| 1 | decision-making agreement and invalidate the supported | ||||||
| 2 | decision-making agreement at any time by: | ||||||
| 3 | (1) canceling or destroying the supported | ||||||
| 4 | decision-making agreement or directing another in the | ||||||
| 5 | presence of the principal to destroy the decision-making | ||||||
| 6 | agreement; | ||||||
| 7 | (2) executing a statement, in writing, that is signed | ||||||
| 8 | and dated by the principal, expressing his or her intent | ||||||
| 9 | to revoke the supported decision-making agreement; or | ||||||
| 10 | (3) verbally expressing the intent of the principal to | ||||||
| 11 | revoke the supported decision-making agreement in the | ||||||
| 12 | presence of 2 witnesses. | ||||||
| 13 | (d) Unless the supported decision-making agreement | ||||||
| 14 | provides a different method for the resignation of the | ||||||
| 15 | supporter support, a supporter may resign by giving written | ||||||
| 16 | notice to the principal. | ||||||
| 17 | (d-5) A supporter must give written notice to the | ||||||
| 18 | principal if the supporter becomes disqualified from acting as | ||||||
| 19 | a supporter under Section 20 of this Act. | ||||||
| 20 | (e) The last signed agreement holds. | ||||||
| 21 | (f) Upon the filing of a petition by an interested person, | ||||||
| 22 | a court may suspend or terminate a supported decision-making | ||||||
| 23 | agreement if necessary to ensure the well-being and safety of | ||||||
| 24 | the principal. Proceedings under this subsection may be | ||||||
| 25 | commenced in the county where the principal resides. | ||||||
| 26 | (Source: P.A. 102-614, eff. 2-27-22.)". | ||||||
