Illinois General Assembly - Full Text of SB1726
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Full Text of SB1726  101st General Assembly




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1    AN ACT concerning health.
2    Be it enacted by the People of the State of Illinois,
3represented in the General Assembly:
4    Section 5. The State Finance Act is amended by changing
5Section 5.180 as follows:
6    (30 ILCS 105/5.180)  (from Ch. 127, par. 141.180)
7    Sec. 5.180. The Alzheimer's Disease Research, Care, and
8Support Fund.
9(Source: P.A. 84-1308.)
10    Section 10. The Alzheimer's Disease Assistance Act is
11amended by changing Section 6 and by adding Section 8 as
13    (410 ILCS 405/6)  (from Ch. 111 1/2, par. 6956)
14    Sec. 6. Alzheimer's Disease ADA Advisory Committee.
15    (a) There is created the Alzheimer's Disease Advisory
16Committee consisting of 17 23 voting members appointed by the
17Director of the Department, as well as 5 nonvoting members as
18hereinafter provided in this Section. The Director or his
19designee shall serve as one of the 17 23 voting members and as
20the Chairman of the Committee. Those appointed as voting
21members shall include persons who are experienced in research



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1and the delivery of services to individuals with Alzheimer's
2disease or a related disorder and their families. Such members
3shall include:
4        (1) one individual from a statewide association
5    dedicated to Alzheimer's care, support, and research;
6        (2) one individual from a non-governmental statewide
7    organization that advocates for seniors;
8        (3) the Dementia Coordinator of the Illinois
9    Department of Public Health, or the Dementia Coordinator's
10    designee;
11        (4) one individual representing the Community Care
12    Program's Home and Community Services Division;
13        (5) one individual representing the Adult Protective
14    Services Unit;
15        (6) 3 individuals from Alzheimer's Disease Assistance
16    Centers;
17        (7) one individual from a statewide association
18    representing an adult day service organization;
19        (8) one individual from a statewide association
20    representing home care providers;
21        (9) one individual from a statewide trade organization
22    representing the interests of physicians licensed to
23    practice medicine in all of its branches in Illinois;
24        (10) one individual representing long-term care
25    facilities licensed under the Nursing Home Care Act, an
26    assisted living establishment licensed under the Assisted



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1    Living and Shared Housing Act, or supportive living
2    facilities;
3        (11) one individual from a statewide association
4    representing the interests of social workers;
5        (12) one individual representing Area Agencies on
6    Aging;
7        (13) the Medicaid Director of the Department of
8    Healthcare and Family Services, or the Medicaid Director's
9    designee;
10        (14) one individual from a statewide association
11    representing health education and promotion and public
12    health advocacy; and
13        (15) one individual with medical or academic
14    experience with early onset Alzheimer's disease or related
15    disorders. 3 physicians licensed to practice medicine in
16    all of its branches, one representative of a licensed
17    hospital, one registered nurse with a specialty in
18    geriatric or dementia care, one representative of a long
19    term care facility under the Nursing Home Care Act, one
20    representative of a long term care facility under the
21    Assisted Living and Shared Housing Act, one representative
22    from a supportive living facility specially serving
23    individuals with dementia, one representative of a home
24    care agency serving individuals with dementia, one
25    representative of a hospice with a specialty in palliative
26    care for dementia, one representative of an area agency on



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1    aging as defined by Section 3.07 of the Illinois Act on the
2    Aging, one representative from a leading advocacy
3    organization serving individuals with Alzheimer's disease,
4    one licensed social worker, one representative of law
5    enforcement, 2 individuals with early-stage Alzheimer's
6    disease, 3 family members or representatives of
7    individuals with Alzheimer's disease and related
8    disorders, and 3 members of the general public. Among the
9    physician appointments shall be persons with specialties
10    in the fields of neurology, family medicine, psychiatry and
11    pharmacology. Among the general public members, at least 2
12    appointments shall include persons 65 years of age or
13    older.
14    (b) In addition to the 17 23 voting members, the Directors
15of the following State agencies or their designees who are
16qualified to represent each Department's programs and services
17for those with Alzheimer's disease or related disorders shall
18serve as nonvoting members: Department on Aging, Department of
19Healthcare and Family Services, Department of Public Health,
20Department of Human Services, and Guardianship and Advocacy
22    Each voting member appointed by the Director of Public
23Health shall serve for a term of 2 years, and until his
24successor is appointed and qualified. Members of the Committee
25shall not be compensated but shall be reimbursed for expenses
26actually incurred in the performance of their duties. No more



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1than 12 voting members may be of the same political party.
2Vacancies shall be filled in the same manner as original
4    The Committee shall review all State programs and services
5provided by State agencies that are directed toward persons
6with Alzheimer's disease and related dementias, and by
7consensus recommend changes to improve the State's response to
8this serious health problem. Such recommendations shall be
9included in the State plan described in this Act.
10(Source: P.A. 97-768, eff. 1-1-13.)
11    (410 ILCS 405/8 new)
12    Sec. 8. Alzheimer's Disease Research, Care, and Support
13Fund; support. The Department, in coordination with the members
14of the Alzheimer's Disease Advisory Committee, shall make
15reasonable efforts to promote the Alzheimer's Disease
16Research, Care, and Support Fund during relevant times,
17including, but not limited to, periods of time when tax returns
18are typically received. Ways to promote the Fund include, but
19are not limited to, issuing press releases and posting on
20social media.
21    Section 15. The Alzheimer's Disease Research Act is amended
22by changing Sections 1, 2, 3, and by adding Sections 3.1, 3.2
23and 3.3 as follows:



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1    (410 ILCS 410/1)  (from Ch. 111 1/2, par. 6901)
2    Sec. 1. Short title. This Act shall be known and may be
3cited as the Alzheimer's Disease Research, Care, and Support
4Fund Act.
5(Source: P.A. 84-324.)
6    (410 ILCS 410/2)  (from Ch. 111 1/2, par. 6902)
7    Sec. 2. Contributions on tax returns. Each individual
8taxpayer required to file a return pursuant to the Illinois
9Income Tax Act desiring to contribute to the Alzheimer's
10Disease Research, Care, and Support Fund may do so by stating
11the amount of such contribution (not less than $1) on such
12return. This Section shall not apply to an amended return.
13(Source: P.A. 86-678.)
14    (410 ILCS 410/3)  (from Ch. 111 1/2, par. 6903)
15    Sec. 3. Alzheimer's Disease Research, Care, and Support
17    (a) There is created the Alzheimer's Disease Research,
18Care, and Support Fund, a special fund in the State Treasury.
19    (b) The Department of Public Health shall deposit any
20donations received for the grant program created pursuant to
21this Act in the Alzheimer's Disease Research, Care, and Support
23    (c) The General Assembly may appropriate moneys monies in
24the Alzheimer's Disease Research, Care, and Support Fund to the



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1Department of Public Health for the purpose of complying with
2the requirements under Section 4 of awarding grants pursuant to
3this Act.
4(Source: P.A. 84-1265.)
5    (410 ILCS 410/3.1 new)
6    Sec. 3.1. Dementia Coordinator.
7    (a) The full-time position of Dementia Coordinator is
8created within the Department of Public Health. The Dementia
9Coordinator shall be funded out of the Alzheimer's Disease
10Research, Care, and Support Fund. The Dementia Coordinator is
11responsible only for activities associated with and relevant to
12the successful implementation of the State of Illinois
13Alzheimer's Disease State Plan, including, but not limited to:
14        (1) coordinating quality dementia services in the
15    State to ensure dementia capability;
16        (2) using dementia-related data to coordinate with the
17    Department to improve public health outcomes;
18        (3) increasing awareness and creating
19    dementia-specific training;
20        (4) providing access to quality coordinated care for
21    individuals with dementia in the most integrated setting
22    available;
23        (5) establishing and maintaining relationships with
24    other agencies and organizations within the State in order
25    to meet the needs of the affected population and prevent



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1    duplication of services;
2        (6) identifying and managing grants to assist in the
3    funding of the position of Dementia Coordinator and other
4    programs and services to assist Illinois in becoming
5    dementia-capable;
6        (7) working with the Department's Behavioral Risk
7    Factor Surveillance System Coordinator and the Alzheimer's
8    Disease Advisory Committee in identifying available funds
9    to execute appropriate modules for critical data
10    collection and research, if and when necessary; moneys
11    appropriated to the Alzheimer's Disease Research, Care,
12    and Support Fund may be considered;
13        (8) building and maintaining effective working
14    relationships with other departments and organizations to
15    ensure coordination between and the support of dementia
16    services;
17        (9) maintaining and applying knowledge of current
18    developments and trends in the assigned area of expertise
19    by reading appropriate journals, books, and other
20    professional literature, and attending related
21    conferences, seminars, and trainings;
22        (10) providing support for the Alzheimer's Disease
23    Advisory Committee's activities, including co-drafting the
24    State plan; and
25        (11) compiling and publishing an annual report on the
26    state of dementia care in Illinois, including, but not



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1    limited to, the status of Illinois in becoming a
2    dementia-capable state.
3    (410 ILCS 410/3.2 new)
4    Sec. 3.2. Use of moneys in the Fund. Moneys in the
5Alzheimer's Disease Research, Care, and Support Fund shall be
6used by the Department of Public Health to cover costs
7associated with this Act, including, but not limited to, the
9        (1) salary and benefits for the full-time position of
10    Dementia Coordinator within the Department; and
11        (2) other expenses contingent with the
12    responsibilities of the Dementia Coordinator, including,
13    but not limited to, travel and professional development
14    opportunities.
15    (410 ILCS 410/3.3 new)
16    Sec. 3.3. Administrative support. The Department of Public
17Health shall be responsible for providing the Dementia
18Coordinator with work space, supplies, and other
19administrative office materials, as needed, through existing
20resources and not with moneys from the Alzheimer's Disease
21Research, Care, and Support Fund.
22    (410 ILCS 410/4 rep.)
23    Section 20. The Alzheimer's Disease Research Act is amended



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1by repealing Section 4.