093_HB2608ham002
LRB093 06999 DRJ 13895 a
1 AMENDMENT TO HOUSE BILL 2608
2 AMENDMENT NO. . Amend House Bill 2608, AS AMENDED,
3 in Section 10, subsection (a), after the last line of
4 paragraph (10), by inserting the following:
5 "(11) The right to confidentiality of records.
6 Homeless shelters shall obtain a voluntary written
7 release from a homeless person prior to disclosing any
8 personal information regarding the homeless person,
9 including, but not limited to, name, social security
10 number, and birth date, except in aggregate form. The
11 right to confidentiality of records includes the
12 dissemination of materials to other agencies, either
13 private or public. The homeless person shall be given the
14 option of whether to release records via informed
15 consent, based on guidelines from the Office of Human
16 Research Protections, United States Department of Health
17 and Human Services, including:
18 (A) the expected duration of the subject's
19 participation;
20 (B) an explanation of whom to contact for
21 answers to pertinent questions about the research
22 and research subjects' rights, and whom to contact
23 in the event of a research-related injury to the
24 subject;
-2- LRB093 06999 DRJ 13895 a
1 (C) a statement that participation in
2 releasing records is voluntary, refusal to
3 participate will involve no penalty or loss of
4 benefits to which the subject is otherwise entitled,
5 and the subject may discontinue participation in the
6 record release at any time without penalty or loss
7 of benefits to which the subject is otherwise
8 entitled;
9 (D) a description of any reasonably
10 foreseeable risks or discomforts to the subject; and
11 (E) a statement describing the extent, if any,
12 to which confidentiality of records identifying the
13 subject will be maintained.".