Full Text of HB0480 94th General Assembly
HB0480ham001 94TH GENERAL ASSEMBLY
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Human Services Committee
Filed: 2/17/2005
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| AMENDMENT TO HOUSE BILL 480
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| AMENDMENT NO. ______. Amend House Bill 480 by replacing the | 3 |
| title with the following:
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| "AN ACT concerning public health, which may be referred to | 5 |
| as Adamin and Ryan's Law."; and | 6 |
| by replacing everything after the enacting clause with the | 7 |
| following:
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| "Section 1. Short title. This Act may be cited as the | 9 |
| Newborn Eye Pathology Screening Act. | 10 |
| Section 5. Policy and legislative findings. | 11 |
| (a) It is the policy of the State of Illinois to make every | 12 |
| effort to detect pediatric congenital ocular abnormalities | 13 |
| that lead to premature death, blindness, or vision impairment | 14 |
| unless treated soon after birth.
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| (b) The General Assembly finds and declares the following:
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| (1) Treatable congenital ocular diseases occur | 17 |
| frequently and require increased early detection efforts.
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| (2) Early detection significantly enhances the ability | 19 |
| to prevent serious damage from congenital abnormalities of | 20 |
| the eye which, left undetected and untreated, may result in | 21 |
| blinding or life-threatening diseases, or both. Examples | 22 |
| of such disorders include retinoblastoma, congenital | 23 |
| cataracts, and persistent hyperplastic primary vitreous. |
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| Other congenital anomalies, including colobomas, vascular | 2 |
| retinal anomalies, and congenital retinal folds, can be | 3 |
| treated by patching the good eye to prevent dense amblyopia | 4 |
| if detected early. | 5 |
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(3) Retinoblastoma is a childhood cancer arising in | 6 |
| immature retinal cells inside the eye and accounts for | 7 |
| approximately 13% of all cancers in infants. Most children | 8 |
| are diagnosed before 2 1/2 years of age. When | 9 |
| retinoblastoma affects both eyes, the average age of | 10 |
| diagnosis is 12 months.
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| (4) Increased emphasis on optimal examination methods, | 12 |
| such as dilation of the eye with eye drops, may facilitate | 13 |
| detection of the abnormal disease process inside the eye of | 14 |
| the newborn. An abnormal screen will facilitate timely | 15 |
| referral to an appropriately licensed health care provider | 16 |
| acting within his or her scope of practice for diagnosis | 17 |
| and to an ophthalmologist for treatment.
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| (5) Early detection and referral of an abnormal red | 19 |
| reflex pupillary screen would allow early diagnosis of | 20 |
| congenital cataract or retinoblastoma which, if recognized | 21 |
| and treated as soon as possible after birth, could cause | 22 |
| little long-term disability.
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| (6) Early diagnosis and intervention can reduce the | 24 |
| number of visually impaired citizens and reduce the amount | 25 |
| of public expenditures for health care, special education, | 26 |
| and related services.
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| Section 10. Newborn Eye Pathology Screening Advisory | 28 |
| Committee. | 29 |
| (a) By January 1, 2006, the Department of Human Services | 30 |
| shall organize a Newborn Eye Pathology Screening Advisory | 31 |
| Committee and appoint members of the Advisory Committee, | 32 |
| including, but not limited to, the following:
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| (1) Two ophthalmologists with backgrounds in or |
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| knowledge of providing services to infants with | 2 |
| retinoblastoma, one from the Chicago metropolitan area and | 3 |
| one from the southern counties of Illinois. | 4 |
| (2) A pediatric ophthalmologist who sees general | 5 |
| pediatric patients and is a designee of the American | 6 |
| Association for Pediatric Ophthalmology and Strabismus.
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| (3) An academic pediatrician with a background in or | 8 |
| knowledge of infant eye pathology screening.
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| (4) Two parents representing families with child | 10 |
| blindness or other ocular abnormalities affecting vision, | 11 |
| one from the Chicago metropolitan area and one from the | 12 |
| southern counties of Illinois.
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| (5) A community pediatrician with a background in or | 14 |
| experience with the routine instillation of dilating eye | 15 |
| drops as part of the red reflex screening.
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| (6) A nurse with a background in or knowledge of the | 17 |
| current Department's program for instillation of eye drops | 18 |
| to prevent conjunctivitis.
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| (7) A retinal specialist with research experience in | 20 |
| detecting the signs of treatable congenital eye disease.
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| (8) An optometrist with a background in or experience | 22 |
| with pupil dilation in infants and red reflex screening for | 23 |
| intraocular pathology.
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| (b) The Advisory Committee members shall serve without | 25 |
| compensation, but shall be reimbursed for necessary travel | 26 |
| expenses incurred in the performance of their duties.
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| (c) The duties of the Advisory Committee shall be to do all | 28 |
| of the following: | 29 |
| (1) Develop and conduct training for hospitals | 30 |
| implementing newborn hearing screening. | 31 |
| (2) Develop a referral system for early intervention | 32 |
| services for those infants diagnosed with a congenital | 33 |
| abnormality of the eye. | 34 |
| (3) Develop educational and informational materials |
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| for hospital personnel, health care professionals, and | 2 |
| parents on appropriate follow-up procedures for infants | 3 |
| diagnosed with a congenital abnormality of the eye. | 4 |
| (4) Monitor any reports made available to the State | 5 |
| with respect to the eye pathology screening status of all | 6 |
| newborns. | 7 |
| (5) Review administrative rules and make | 8 |
| recommendations to the Department regarding the rules. | 9 |
| Section 20. Protocol; required screening. | 10 |
| (a) By January 1, 2006, the Department shall adopt the | 11 |
| protocol developed by the American Academy of Pediatrics to | 12 |
| optimally detect the presence of treatable causes of blindness | 13 |
| in infants by 2 months of age. | 14 |
| (b) After January 1, 2006, all hospitals shall conduct eye | 15 |
| screenings of all newborns prior to discharge. | 16 |
| (c) Any screening examination recommended pursuant to | 17 |
| subsection (a) of this Section or required pursuant to | 18 |
| subsection (b) of this Section shall not be conducted on a | 19 |
| newborn if a parent or guardian of the newborn objects to the | 20 |
| examination on the grounds that the examination conflicts with | 21 |
| the religious beliefs or practices of the parent or guardian.
A | 22 |
| written statement of the objection shall be presented to the | 23 |
| physician or other person whose duty it is to administer and | 24 |
| report the screening under the provisions of this Act. | 25 |
| (d) Nothing in this Section shall be construed to supersede | 26 |
| the clinical judgment of the licensed health care provider.
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| Section 25. Department of Public Health. | 28 |
| (a) Hospitals shall report information about each child | 29 |
| with a positive eye screening result to the Illinois Department | 30 |
| of Public Health. | 31 |
| (b) The Illinois Department of Public Health shall maintain | 32 |
| a registry of cases of positive eye screening results, |
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| including information needed for the purpose of follow-up | 2 |
| service. | 3 |
| Section 30. Rules. The Department of Human Services shall | 4 |
| adopt rules necessary to implement this Act. | 5 |
| Section 99. Effective date. This Act takes effect July 1, | 6 |
| 2005.".
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