Full Text of HJR0037 96th General Assembly
HJ0037 96TH GENERAL ASSEMBLY
|
|
|
HJ0037 |
|
LRB096 12026 GRL 23879 r |
|
| 1 |
| HOUSE JOINT RESOLUTION
| 2 |
| WHEREAS, Since 1949, the Hemophilia Foundation of Illinois | 3 |
| has worked to improve the quality of life for over 1,800 | 4 |
| Illinois residents and their families who are affected by | 5 |
| inherited bleeding disorders; and
| 6 |
| WHEREAS, Hemophilia is characterized by the absence of one | 7 |
| of the several clotting factors necessary to control bleeding, | 8 |
| with the standard care of treatment being the replacement of | 9 |
| absent clotting factors necessary to control the bleeding; and
| 10 |
| WHEREAS, In addition to serving people with hemophilia, the | 11 |
| Foundation also provides services to Illinois residents with | 12 |
| other types of bleeding disorders, including von Willebrand | 13 |
| disease, which inflicts 1-2% of the general population; and
| 14 |
| WHEREAS, Treatment for hemophilia requires regular | 15 |
| intravenous infusions; without treatment, people with | 16 |
| hemophilia face frequent, spontaneous bleeding episodes in | 17 |
| their joints, causing swelling in the joints, muscles, internal | 18 |
| organs, and brain; repeated bleeding episodes in joints results | 19 |
| in a chronic degenerative arthritic condition, which often | 20 |
| leads to frequent hospitalizations, permanent disability, and | 21 |
| chronic pain; bleeding episodes involving internal organs and | 22 |
| the brain can cause permanent damage, disability, and even |
|
|
|
HJ0037 |
- 2 - |
LRB096 12026 GRL 23879 r |
|
| 1 |
| death; severe bleeding episodes result in lost time at school | 2 |
| and/or work, decreased quality of life, and the inability to | 3 |
| perform basic living activities; and
| 4 |
| WHEREAS, With proper care and access to comprehensive | 5 |
| medical resources, people living with hemophilia can control | 6 |
| bleeding episodes and can lead productive lives; federally | 7 |
| funded hemophilia treatment centers provide comprehensive | 8 |
| medical care to persons with hemophilia, von Willebrand | 9 |
| disease, and other bleeding and clotting disorders; and
| 10 |
| WHEREAS, The Medical and Scientific Advisory Committee of | 11 |
| the National Hemophilia
Foundation recommends recombinant | 12 |
| factor products as the choice for persons with
Hemophilia VIII | 13 |
| and IX, the treatment of which is extremely costly; the | 14 |
| Foundation has made a difference in the lives of such people by | 15 |
| helping them with insurance questions, medical expenses, and | 16 |
| keeping them informed about advances in treatment; and
| 17 |
| WHEREAS, Although there is no cure for these genetic | 18 |
| disorders, the Hemophilia Foundation of Illinois supports | 19 |
| research in health care advancements to create safer blood | 20 |
| products, giving persons with these diseases the ability to | 21 |
| manage their condition and minimize chronic complications; and
| 22 |
| WHEREAS, Hemophilia and other inherited bleeding disorders |
|
|
|
HJ0037 |
- 3 - |
LRB096 12026 GRL 23879 r |
|
| 1 |
| are not well understood by the general public; and
| 2 |
| WHEREAS, Since 1972, Illinois has expressed its committed | 3 |
| to proper care and treatment of children and adults with | 4 |
| hemophilia and other related bleeding disorders through the | 5 |
| enactment of the Hemophilia Care Program, as well as the | 6 |
| recently reenacted Hemophilia Advisory Review Board in 2007; in | 7 |
| addition, the 2004 resolution designating March as Hemophilia | 8 |
| Awareness Month focused on enhancing the understanding and | 9 |
| proper treatment of hemophilia and to encourage participation | 10 |
| in activities to support programs to properly treat hemophilia; | 11 |
| and
| 12 |
| WHEREAS, Members of the Hemophilia Foundation of Illinois | 13 |
| and its extended community of supporters across the great state | 14 |
| of Illinois are celebrating Hemophilia Awareness Month by | 15 |
| visiting Springfield to participate in a Legislative Advocacy | 16 |
| Day at the Capitol on March 17, 2009; and
| 17 |
| WHEREAS, The Hemophilia Foundation of Illinois is | 18 |
| celebrating its 60th anniversary in 2009 to recognize its | 19 |
| efforts in providing education, advocacy, and consumer | 20 |
| services for the Illinois bleeding disorder community; | 21 |
| therefore, be it
| 22 |
| RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE |
|
|
|
HJ0037 |
- 4 - |
LRB096 12026 GRL 23879 r |
|
| 1 |
| NINETY-SIXTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, THE | 2 |
| SENATE CONCURRING HEREIN, that we applaud and honor the | 3 |
| Hemophilia Foundation of Illinois for its 60 years of | 4 |
| dedicated, outstanding service to the Illinois bleeding | 5 |
| disorder community; and be it further
| 6 |
| RESOLVED, That we once again recognize and commemorate the | 7 |
| month of March as Hemophilia Awareness Month in the State of | 8 |
| Illinois; and be it further | 9 |
| RESOLVED, That a suitable copy of this resolution be | 10 |
| delivered to the Hemophilia Foundation of Illinois as a symbol | 11 |
| of our respect and esteem.
|
|