Full Text of HR0917 96th General Assembly
HR0917 96TH GENERAL ASSEMBLY
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| HOUSE RESOLUTION
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| WHEREAS, Prader-Willi syndrome is a complex genetic | 3 |
| disorder that occurs in approximately 1 out of every 15,000 | 4 |
| births, and is the most commonly known genetic cause of | 5 |
| life-threatening obesity; and
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| WHEREAS, Prader-Willi syndrome affects males and females | 7 |
| with equal frequency and affects all races and ethnicities; and | 8 |
| WHEREAS, Prader-Willi syndrome causes an extreme and | 9 |
| insatiable appetite, often resulting in morbid obesity, which | 10 |
| is the major cause of death for individuals with the syndrome; | 11 |
| and
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| WHEREAS, Prader-Willi syndrome also causes cognitive and | 13 |
| learning disabilities, and behavioral difficulties, such as | 14 |
| obsessive-compulsive disorder and difficulty controlling | 15 |
| emotions;
and | 16 |
| WHEREAS, The hunger, metabolic, and behavioral | 17 |
| characteristics of Prader-Willi syndrome force affected | 18 |
| individuals to require constant and lifelong supervision in a | 19 |
| controlled environment; and | 20 |
| WHEREAS, Studies have shown that there is a high morbidity |
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| and mortality rate for individuals with Prader-Willi syndrome;
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| and | 3 |
| WHEREAS, There is no known cure for Prader-Willi syndrome;
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| and | 5 |
| WHEREAS, Early diagnosis of Prader-Willi syndrome allows | 6 |
| families to access treatment, intervention services, and | 7 |
| support from health professionals, advocacy organizations, and | 8 |
| other families who are dealing with the syndrome;
and | 9 |
| WHEREAS, Recently discovered treatments, such as human | 10 |
| growth hormone, are improving the quality of life for | 11 |
| individuals with the syndrome and offer new hope to families, | 12 |
| but many difficult symptoms associated with Prader-Willi | 13 |
| syndrome remain untreated;
and | 14 |
| WHEREAS, Increased research into Prader-Willi syndrome can | 15 |
| lead to a better understanding of the disorder, more effective | 16 |
| treatments, and an eventual cure for Prader-Willi syndrome;
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| WHEREAS, Increased research into Prader-Willi syndrome is | 18 |
| likely to improve our understanding of common public health | 19 |
| concerns, including childhood obesity and mental health; and
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| WHEREAS, Advocacy organizations have designated May as |
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| National Prader-Willi Syndrome Awareness Month; therefore, be | 2 |
| it
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| RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE | 4 |
| NINETY-SIXTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we
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| support raising awareness and educating the public about | 6 |
| Prader-Willi syndrome;
applaud the efforts of advocates and | 7 |
| organizations that encourage awareness, promote research, and | 8 |
| provide education, support, and hope to those impacted by | 9 |
| Prader-Willi syndrome;
recognize the commitment of parents, | 10 |
| families, researchers, health professionals, and others | 11 |
| dedicated to finding an effective treatment and eventual cure | 12 |
| for Prader-Willi syndrome;
support increased funding for | 13 |
| research into the causes, treatment, and cure for Prader-Willi | 14 |
| syndrome; and
expresses support for the designation of a | 15 |
| Prader-Willi Syndrome Awareness Month in the State of Illinois.
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