Full Text of HR1133 99th General Assembly
HR1133 99TH GENERAL ASSEMBLY |
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| 1 | | HOUSE RESOLUTION
| 2 | | WHEREAS, Peroxisome Biogenesis Disorder - Zellweger | 3 | | Spectrum Disorder ("PBD-ZSD" or simply "PBD") is
a rare genetic | 4 | | disorder that affects 1 in 50,000 births within the United | 5 | | States of America; and
| 6 | | WHEREAS, PBD causes life threatening symptoms for most | 7 | | infants and children who have the disease; and
| 8 | | WHEREAS, PBD results in poor muscle tone, hearing loss, | 9 | | vision loss, low bone density, seizures, liver and
kidney | 10 | | dysfunction, and developmental delays; and
| 11 | | WHEREAS, PBD causes a mutation in any of the 13 genes | 12 | | termed PEX genes; and | 13 | | WHEREAS, Max Chapman, born October 17, 2013 and a resident | 14 | | of Bloomington, was diagnosed with
PBD at the age of 14 months; | 15 | | with his loving heart, his cheerful disposition, and boundless | 16 | | personality he has inspired countless family members and | 17 | | friends in Central Illinois to spread awareness of this | 18 | | devastating disorder; and
| 19 | | WHEREAS, Max Chapman's parents, Corin and Todd Chapman, and | 20 | | his grandparents, Alan and Kathie Chapman and
Greg and Patty |
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| 1 | | Garbe, hope to create awareness for PBD by sharing Max's story | 2 | | through
blogging, social media, video, and fundraising events; | 3 | | and
| 4 | | WHEREAS, May 19, 2016 is the inaugural Tee it Up! For the | 5 | | GFPD Golf Outing at Illinois State University's
Weibring Golf | 6 | | Club to honor Max Chapman and to raise funds for The Global | 7 | | Foundation for Peroxisomal Disorders
(GFPD), in support of | 8 | | their mission to advocate for awareness of PBD and support new | 9 | | avenues for
medical research in the development of treatments | 10 | | and cures; therefore, be it
| 11 | | RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE | 12 | | NINETY-NINTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we | 13 | | recognize the plight of those fighting Peroxisome Biogenesis | 14 | | Disorder, such as Max Chapman, and its devastating effects; and | 15 | | be it further | 16 | | RESOLVED, That we urge more awareness be brought to the | 17 | | condition of PBD and the struggle to develop treatments and | 18 | | possibly a cure; and be it further
| 19 | | RESOLVED, That a suitable copy of this resolution be | 20 | | presented to Max Chapman as an expression of our esteem and | 21 | | respect.
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