Full Text of HB2535 103rd General Assembly
HB2535ham002 103RD GENERAL ASSEMBLY | Rep. Camille Y. Lilly Filed: 4/18/2024 | | 10300HB2535ham002 | | LRB103 29051 KTG 72568 a |
|
| 1 | | AMENDMENT TO HOUSE BILL 2535
| 2 | | AMENDMENT NO. ______. Amend House Bill 2535 by replacing | 3 | | everything after the enacting clause with the following: | 4 | | "Section 1. Short title. This Act may be cited as the | 5 | | Recognize, Assist, Include, Support, and Engage (RAISE) Family | 6 | | Caregivers Act. | 7 | | Section 5. Definitions. As used in this Act: | 8 | | (1) "Advisory Council" means the Family Caregiving | 9 | | Advisory Council. | 10 | | (2) "Family caregiver" means an adult family member or | 11 | | other individual who has a significant relationship with, and | 12 | | who provides a broad range of assistance to, an individual | 13 | | with a chronic or other health condition, disability, or | 14 | | functional limitation. | 15 | | (3) "Director" means the Director of Aging. | 16 | | (4) "Strategy" means the Family Caregiving Strategy. |
| | | 10300HB2535ham002 | - 2 - | LRB103 29051 KTG 72568 a |
|
| 1 | | Section 10. Family Caregiving Strategy. | 2 | | (a) In general. The Director, in consultation with the | 3 | | heads of other appropriate State agencies, shall develop | 4 | | jointly with the Advisory Council and other State agencies | 5 | | responsible for carrying out family caregiver programs, and | 6 | | make publicly available on the website of the Department on | 7 | | Aging, a Family Caregiving Strategy. | 8 | | (b) Contents. The Strategy shall identify recommended | 9 | | actions that State agencies, units of local government, | 10 | | communities, health care providers, long-term services and | 11 | | supports providers, and others are taking, or may take, to | 12 | | recognize and support family caregivers in a manner that | 13 | | reflects their diverse needs, including with respect to the | 14 | | following: | 15 | | (1) Promoting greater adoption of person-centered and | 16 | | family-centered care in all health and long-term services | 17 | | and supports settings, with the person receiving services | 18 | | and supports and the family caregiver (as appropriate) at | 19 | | the center of care teams. | 20 | | (2) Assessment and service planning (including care | 21 | | transitions and coordination) involving family caregivers | 22 | | and care recipients. | 23 | | (3) Information, education and training supports, | 24 | | referral, and care coordination, including with respect to | 25 | | hospice care, palliative care, and advance planning |
| | | 10300HB2535ham002 | - 3 - | LRB103 29051 KTG 72568 a |
|
| 1 | | services. | 2 | | (4) Respite options. | 3 | | (5) Financial security and workplace issues. | 4 | | (6) Delivering services based on the performance, | 5 | | mission, and purpose of a program while eliminating | 6 | | redundancies. | 7 | | (c) Duties of the Director. The Director, in carrying out | 8 | | subsection (a), shall oversee the following: | 9 | | (1) Collecting and making publicly available | 10 | | information submitted by the Advisory Council under | 11 | | subsection (d) of Section 15 to the Governor and the | 12 | | General Assembly, including evidence-based or promising | 13 | | practices and innovative models (both domestic and | 14 | | foreign) regarding the provision of care by family | 15 | | caregivers or support for family caregivers. | 16 | | (2) Coordinating and assessing existing State programs | 17 | | and activities to recognize and support family caregivers | 18 | | while ensuring maximum effectiveness and avoiding | 19 | | unnecessary duplication. | 20 | | (3) Providing technical assistance, as appropriate, | 21 | | such as disseminating identified best practices and | 22 | | information sharing based on reports provided under | 23 | | subsection (d) of Section 15, to State or local efforts to | 24 | | support family caregivers. | 25 | | (d) Initial strategy; updates. The Director shall: | 26 | | (1) not later than 18 months after the effective date |
| | | 10300HB2535ham002 | - 4 - | LRB103 29051 KTG 72568 a |
|
| 1 | | of this Act, develop, publish, and submit to the Governor | 2 | | and the General Assembly, an initial Strategy | 3 | | incorporating the items addressed in the Advisory | 4 | | Council's initial report under subsection (d) of Section | 5 | | 15 and other relevant information, including best | 6 | | practices, for recognizing and supporting family | 7 | | caregivers; and | 8 | | (2) biennially update, republish, and submit to the | 9 | | Governor and the General Assembly, taking into account the | 10 | | most recent annual report submitted under paragraph (1) of | 11 | | subsection (d) of Section 15: | 12 | | (A) to reflect new developments, challenges, | 13 | | opportunities, and solutions; and | 14 | | (B) to review progress based on recommendations | 15 | | for recognizing and supporting family caregivers in | 16 | | the Strategy and, based on the results of such review, | 17 | | recommend priority actions for improving the | 18 | | implementation of such recommendations, as | 19 | | appropriate. | 20 | | (e) Process for public input. The Director shall establish | 21 | | a process for public input to inform the development of, and | 22 | | updates to, the Strategy, including a process for the public | 23 | | to submit recommendations to the Advisory Council and an | 24 | | opportunity for public comment on the proposed Strategy. | 25 | | Section 15. Family Caregiving Advisory Council. |
| | | 10300HB2535ham002 | - 5 - | LRB103 29051 KTG 72568 a |
|
| 1 | | (a) Convening. The Director shall convene a Family | 2 | | Caregiving Advisory Council to advise and provide | 3 | | recommendations, including identified best practices, to the | 4 | | Director on recognizing and supporting family caregivers. | 5 | | (b) Membership. | 6 | | (1) In general. The members of the Advisory Council | 7 | | shall consist of: | 8 | | (A) the appointed members under paragraph (2); and | 9 | | (B) the State members under paragraph (3). | 10 | | (2) Appointed members. In addition to the State | 11 | | members under paragraph (3), the Director shall appoint | 12 | | not more than 20 voting members of the Advisory Council | 13 | | who are not representatives of State departments or | 14 | | agencies and who shall include at least one representative | 15 | | of each of the following: | 16 | | (A) Family caregivers. | 17 | | (B) Older adults with needs for long-term services | 18 | | and supports. | 19 | | (C) Individuals with disabilities. | 20 | | (D) Health care and social service providers. | 21 | | (E) Long-term services and supports providers. | 22 | | (F) Employers. | 23 | | (G) Paraprofessional workers. | 24 | | (H) State and local officials. | 25 | | (I) Accreditation bodies. | 26 | | (J) Veterans. |
| | | 10300HB2535ham002 | - 6 - | LRB103 29051 KTG 72568 a |
|
| 1 | | (K) Area Agencies on Aging. | 2 | | (L) Non-profit organizations representing adults | 3 | | 50 years of age and older. | 4 | | (M) Care Coordination Units. | 5 | | (N) State Long-Term Care Ombudsman. | 6 | | (O) As appropriate, other experts and advocacy | 7 | | organizations engaged in family caregiving. | 8 | | (3) State members. The State members of the Advisory | 9 | | Council, who shall be nonvoting members, shall consist of | 10 | | the following: | 11 | | (A) The Director of Healthcare and Family Services | 12 | | or his or her designee. | 13 | | (B) The Secretary of Human Services or his or her | 14 | | designee who has experience in both aging and | 15 | | disability. | 16 | | (C) The Director of Veterans' Affairs or his or | 17 | | her designee. | 18 | | (D) The heads of other State departments or | 19 | | agencies (or their designees), including relevant | 20 | | departments or agencies that oversee labor and | 21 | | workforce, economic, government financial policies, | 22 | | community service, and other impacted populations, as | 23 | | appointed by the Director. | 24 | | (4) Diverse representation. The Director shall ensure | 25 | | that the membership of the Advisory Council reflects the | 26 | | diversity of family caregivers and individuals receiving |
| | | 10300HB2535ham002 | - 7 - | LRB103 29051 KTG 72568 a |
|
| 1 | | services and supports. | 2 | | (c) Meetings. The Advisory Council shall meet quarterly in | 3 | | person or virtually during the one-year period beginning on | 4 | | the effective date of this Act and at least 3 times during each | 5 | | year thereafter. Meetings of the Advisory Council shall be | 6 | | open to the public. | 7 | | (d) Advisory Council annual reports. | 8 | | (1) In general. Not later than 12 months after the | 9 | | effective date of this Act, and annually thereafter, the | 10 | | Advisory Council shall submit to the Governor and the | 11 | | General Assembly, and make publicly available on the | 12 | | website of the Department on Aging, a report concerning | 13 | | the development, maintenance, and updating of the | 14 | | Strategy, including a description of the outcomes of the | 15 | | recommendations and any priorities included in the initial | 16 | | report in accordance with paragraph (2), as appropriate. | 17 | | (2) Initial report. The Advisory Council's initial | 18 | | report under paragraph (1) shall include: | 19 | | (A) an inventory and assessment of all | 20 | | State-funded efforts to recognize and support family | 21 | | caregivers and the outcomes of such efforts, including | 22 | | analyses of the extent to which State-funded efforts | 23 | | are reaching family caregivers and gaps in such | 24 | | efforts; | 25 | | (B) recommendations: | 26 | | (i) to improve and better coordinate State |
| | | 10300HB2535ham002 | - 8 - | LRB103 29051 KTG 72568 a |
|
| 1 | | programs and activities to recognize and support | 2 | | family caregivers, as well as opportunities to | 3 | | improve the coordination of such State programs | 4 | | and activities with programs administered by units | 5 | | of local government; and | 6 | | (ii) to effectively deliver services based on | 7 | | the performance, mission, and purpose of a program | 8 | | while eliminating redundancies, avoiding | 9 | | unnecessary duplication and overlap, and ensuring | 10 | | the needs of family caregivers are met; | 11 | | (C) the identification of challenges faced by | 12 | | family caregivers, including financial, health, and | 13 | | other challenges, and existing approaches to address | 14 | | such challenges; | 15 | | (D) an evaluation of how family caregiving impacts | 16 | | the Medicare program, the Medical Assistance program | 17 | | under Article V of the Illinois Public Aid Code, and | 18 | | other State programs. | 19 | | (e) All requirements of this Act shall be met as part of | 20 | | the Department on Aging's overall strategic multi-agency State | 21 | | plan, including reporting requirements. | 22 | | Section 20. Funding. No additional funds are authorized to | 23 | | be appropriated to carry out this Act. This Act shall be | 24 | | carried out using funds otherwise authorized. |
| | | 10300HB2535ham002 | - 9 - | LRB103 29051 KTG 72568 a |
|
| 1 | | Section 25. Termination. The authority and obligations | 2 | | established by this Act shall terminate on the date that is 3 | 3 | | years after the effective date of this Act. | 4 | | Section 30. Repealer. This Act is repealed 3 years after | 5 | | the effective date of this Act.". |
|