Full Text of HR0329 103rd General Assembly
HR0329 103RD GENERAL ASSEMBLY |
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| 1 | | HOUSE RESOLUTION
| 2 | | WHEREAS, The month of September each year is recognized as | 3 | | National Scarring Alopecia Awareness Month to increase | 4 | | knowledge and awareness of scarring alopecia; and
| 5 | | WHEREAS, Scarring (cicatricial) alopecia (hair loss) is | 6 | | still not well-known among patients and the public; many | 7 | | patients and the public do not know the difference between | 8 | | non-scarring alopecia and scarring alopecia; scarring alopecia | 9 | | encompasses a group of hair loss disorders that causes | 10 | | inflammation, and the hair follicles are irreversibly | 11 | | destroyed (permanently damaged) and replaced by fibrous | 12 | | tissue; there is no way to regrow the hair that is already lost | 13 | | and permanently damaged; and
| 14 | | WHEREAS, Within the alopecia population, the prevalence of | 15 | | scarring alopecia is believed to be approximately 7%, but not | 16 | | enough epidemiological studies have been performed to | 17 | | determine the incidence of scarring (cicatricial) alopecias; | 18 | | clinically, it is defined as one or more patches of permanent | 19 | | alopecia on the scalp; these may remain discrete or coalesce | 20 | | to produce a near total alopecia; within the patches, the skin | 21 | | is bald, smooth, and shiny, and pores are absent because of a | 22 | | complete loss of follicular openings; and
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| 1 | | WHEREAS, Scarring hair loss is a traumatizing experience | 2 | | and may negatively impact a hair loss patient's quality of | 3 | | life (QOL); permanent hair loss can be disfiguring and damage | 4 | | an affected individual's self-esteem; currently, there are not | 5 | | any approved Federal Drug Administration (FDA) drugs for | 6 | | scarring (cicatricial) alopecia patients, which often leaves | 7 | | patients feeling defeated and hopeless; and | 8 | | WHEREAS, Bringing awareness to this disease can help those | 9 | | experiencing scarring hair loss remain confident and positive, | 10 | | despite their condition; hair loss often carries a stigma that | 11 | | can only be dispelled with education and knowledge, and for | 12 | | many with this disease, the emotional aspect of living with | 13 | | hair loss can be the greatest challenge; and
| 14 | | WHEREAS, National Scarring Alopecia Awareness Month serves | 15 | | as a time to focus on educating hair stylists, medical | 16 | | professionals, undiagnosed patients, and the general | 17 | | population about this traumatic, scarring, and often painful | 18 | | disease; and
| 19 | | WHEREAS, National Scarring Alopecia Awareness Month serves | 20 | | as a spark to increase advocacy efforts for scarring alopecia | 21 | | patients and to underscore the importance of understanding | 22 | | this rare disease; therefore, be it
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| 1 | | RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE | 2 | | HUNDRED THIRD GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that | 3 | | we recognize the month of September 2023 as being National | 4 | | Scarring Alopecia Awareness Month; and be it further
| 5 | | RESOLVED, That a suitable copy of this resolution be | 6 | | presented to the Scarring Alopecia Foundation as a symbol of | 7 | | our respect and esteem.
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