Full Text of HR0246 096th General Assembly
HR0246 96TH GENERAL ASSEMBLY
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HR0246 |
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| HOUSE RESOLUTION
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| WHEREAS, Neurofibromatosis is a genetic disorder that | 3 |
| causes growths and tumors to form on nerves; neurofibromatosis | 4 |
| is one of the most common genetic disorders, approximately one | 5 |
| in every 3,000 babies born has neurofibromatosis; | 6 |
| neurofibromatosis occurs in both genders, and all ethnic groups | 7 |
| equally; and
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| WHEREAS, There are two types of neurofibromatosis: Type 1 | 9 |
| is a form of neurofibromatosis that can be inherited from a | 10 |
| parent or be a spontaneous mutation and affects a gene on | 11 |
| chromosome 17; people with this type of neurofibromatosis | 12 |
| generally have brown oval or circular spots on the skin called | 13 |
| cafe-au-lait spots and freckles under the arm or in the groin | 14 |
| area; they also have benign soft tumors or lumps under the skin | 15 |
| called neurofibroma; and
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| WHEREAS, Neurofibromatosis Type 1 often causes learning | 17 |
| difficulties in children, and can also affect physical growth; | 18 |
| tumors may form along nerves anywhere in the body; and it can | 19 |
| cause atrophy, pseudarthrosis, scoliosis, plexiform | 20 |
| neurofibroma, bright spots on the brain, optic glioma, | 21 |
| depression, executive function issues, and other psychological | 22 |
| issues; and
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HR0246 |
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| WHEREAS, Neurofibromatosis Type 2 is also inherited or a | 2 |
| spontaneous mutation caused by a change in a gene on chromosome | 3 |
| 22; neurofibromatosis Type 2 is sometimes referred to as | 4 |
| central neurofibromatosis or bilateral acoustic neuroma; | 5 |
| neurofibromatosis Type 2 affects nerves next to the brain or | 6 |
| spinal chord and can cause serious disabilities;
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| WHEREAS, People with neurofibromatosis Type 2 have tumors | 8 |
| that affect hearing and balance, and they can have tumors that | 9 |
| push on the brain or spinal chord, as well as tumors along the | 10 |
| peripheral nerves; these problems can cause weakness and | 11 |
| seizures; and | 12 |
| WHEREAS, Neurofibromatosis Inc. Midwest is a network that | 13 |
| provides information on neurofibromatosis, makes referrals to | 14 |
| local medical resources, sponsors national and local | 15 |
| conferences for neurofibromatosis families, as well as other | 16 |
| services; their mission is to create a community of support for | 17 |
| individuals and families affected by neurofibromatosis; and
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| WHEREAS, May is National Neurofibromatosis Month; Great | 19 |
| Steps for Neurofibromatosis 2009 will take place at the | 20 |
| Naperville Riverwalk on Saturday, June 6, 2009 and in Effingham | 21 |
| on June 20, 2009; therefore, be it
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| RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE |
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| NINETY-SIXTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we | 2 |
| proclaim May of 2009 as Neurofibromatosis Month in the State of | 3 |
| Illinois; and be it further
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| RESOLVED, That a suitable copy of this resolution be | 5 |
| presented to Neurofibromatosis Inc. Midwest as a symbol of our | 6 |
| respect.
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