Full Text of SR0549 100th General Assembly
SR0549 100TH GENERAL ASSEMBLY |
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| 1 | | SENATE RESOLUTION
| 2 | | WHEREAS, Cystinuria occurs in individuals in which a rare | 3 | | genetic
defect prevents the body from regulating amino acid
| 4 | | concentrations, subsequently leading to elevated levels of | 5 | | cystine
and the formation of cystine stones in the kidney, | 6 | | ureter, and
bladder; and
| 7 | | WHEREAS, The American Urological Association recognizes
| 8 | | Cystinuria as the most common monogenic kidney stone disorder; | 9 | | and
| 10 | | WHEREAS, The majority of Cystinuria patients start to | 11 | | suffer from
chronic cystine stone formation before the age of | 12 | | 20; and | 13 | | WHEREAS, Cystinuria patients often endure episodes of | 14 | | debilitating
pain (typically known as renal colic), nausea, | 15 | | vomiting, and
recurrent urinary tract infections; and | 16 | | WHEREAS, The majority of Cystinuria patients will require | 17 | | numerous
stone removal procedures and surgeries; and | 18 | | WHEREAS, Studies have demonstrated Cystinuria patients | 19 | | have worse
health related quality of life than the general | 20 | | population,
specifically in areas of general health, bodily |
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| 1 | | pain, and mental
health; and | 2 | | WHEREAS, Cystinuria patients may suffer from life | 3 | | threatening
complications, such as hypertension, renal | 4 | | insufficiency, end stage
renal disease, and the need for a | 5 | | kidney transplant; and | 6 | | WHEREAS, The majority of Cystinuria patients forming | 7 | | recurrent
stones will develop some form of chronic kidney | 8 | | disease in their
lifetime; and | 9 | | WHEREAS, There is no cure for Cystinuria, treatment options
| 10 | | significantly reduce medically necessary surgeries and some
| 11 | | patients can live a stone-free life; and | 12 | | WHEREAS, Cystinuria can be diagnosed from analysis of a | 13 | | 24-hour urine
test; and | 14 | | WHEREAS, Detection may be improved by increased education | 15 | | and
screening, as many patients do not receive a diagnosis | 16 | | until after
enduring one or more stone episodes; and | 17 | | WHEREAS, Early diagnosis is important to the long-term | 18 | | management
of a Cystinuria, which can potentially limit | 19 | | permanent kidney
damage and persevere maximal kidney function; | 20 | | and |
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| 1 | | WHEREAS, One in every 10,000 Americans are believed to be
| 2 | | genetically at risk for Cystinuria; and
| 3 | | WHEREAS, Cystinuria has been documented as a leading risk | 4 | | factor
for one of the top most common forms of kidney stones; | 5 | | and
| 6 | | WHEREAS, Kidney stone experts cite the economic burden in | 7 | | the
United States for providing care for individuals, of | 8 | | working age,
with kidney stones to be $5.3 billion dollars in | 9 | | the year 2000; and
| 10 | | WHEREAS, Doctors at Southern Illinois University's School | 11 | | of
Medicine have world-leading expertise on Cystinuria; | 12 | | therefore, be it
| 13 | | RESOLVED, BY THE SENATE OF THE ONE HUNDREDTH GENERAL | 14 | | ASSEMBLY OF THE STATE OF ILLINOIS, that we recognize June 24, | 15 | | 2017 as "National Cystinuria Awareness
Day"; and be it further | 16 | | RESOLVED, That we encourage steps be taken to raise | 17 | | awareness of and increase public knowledge about
Cystinuria, to | 18 | | inform all people in Illinois about the
dangers of Cystinuria; | 19 | | to disseminate information on the importance of early diagnosis | 20 | | and management of Cystinuria patients; and to support research |
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| 1 | | funding of Cystinuria at Illinois medical
research centers to | 2 | | improve screening and treatment for
Cystinuria, to support | 3 | | efforts that may improve the quality of
life for Cystinuria | 4 | | patients, and to develop a cure for Cystinuria;
and be it | 5 | | further | 6 | | RESOLVED, That we call on the people of Illinois, interest | 7 | | groups, and affected
persons to promote awareness of | 8 | | Cystinuria, to take an active role in the fight against this | 9 | | devastating
disease, and
to observe National Cystinuria | 10 | | Awareness Day with
appropriate ceremonies and activities.
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