Full Text of HR0717 101st General Assembly
HR0717 101ST GENERAL ASSEMBLY |
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| 1 | | HOUSE RESOLUTION
| 2 | | WHEREAS, Hemophilia and related bleeding disorders are | 3 | | genetic conditions affecting thousands of
people in the State | 4 | | of Illinois; they are characterized by the absence of one of | 5 | | several clotting factors necessary
to control bleeding; the | 6 | | standard of care for the treatment of these disorders is to | 7 | | replace the absent
clotting factors necessary to control | 8 | | bleeding; and
| 9 | | WHEREAS, Without treatment, people with hemophilia and | 10 | | other related bleeding disorders face
frequent, spontaneous | 11 | | bleeding episodes in their joints, causing swelling in the | 12 | | joint, muscles, internal
organs, and brain; repeated bleeding | 13 | | episodes in joints result in chronic degenerative arthritic
| 14 | | conditions, which often lead to frequent hospitalizations, | 15 | | permanent disability, and chronic pain;
bleeding episodes | 16 | | involving internal organs and the brain can cause permanent | 17 | | damage, disability, and
even death; and
| 18 | | WHEREAS, Severe bleeding episodes result in lost time at | 19 | | work and school, decreased quality of life, and
the inability | 20 | | to perform basic living activities; and | 21 | | WHEREAS, With proper care and access to comprehensive | 22 | | medical resources, persons with hemophilia
and other related |
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| 1 | | bleeding disorders can control bleeding episodes and can lead | 2 | | productive lives; and | 3 | | WHEREAS, Visits to federally recognized Hemophilia | 4 | | Treatment Centers of Excellence reduce morbidity
and mortality | 5 | | significantly; and
| 6 | | WHEREAS, The State of Illinois is committed to proper care | 7 | | and treatment of children and adults with
hemophilia and other | 8 | | related bleeding disorders through previously enacted | 9 | | legislation; and
| 10 | | WHEREAS, Hemophilia and other related bleeding disorders | 11 | | and their complications are not well
understood by the general | 12 | | public; and
| 13 | | WHEREAS, The State of Illinois encourages efforts to | 14 | | promote the understanding of hemophilia and
other related | 15 | | bleeding disorders so that they are treated properly; | 16 | | therefore, be it
| 17 | | RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE | 18 | | HUNDRED FIRST GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that | 19 | | we commend Illinoisans participating in Bleeding Disorders | 20 | | Awareness Month and advocacy events in March 2020 and | 21 | | throughout the year; and be it further |
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| 1 | | RESOLVED, That suitable copies of this resolution be
| 2 | | presented to Chief Medical Officer of the Bleeding and Clotting | 3 | | Disorders Institute Michael Tarantino, M.D., the dedicated | 4 | | staff at the federally recognized Hemophilia Treatment Centers | 5 | | of Excellence in Illinois, and Bob Robinson and his team at the | 6 | | Bleeding Disorders Alliance of Illinois.
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