Full Text of HR1118 100th General Assembly
HR1118 100TH GENERAL ASSEMBLY |
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| 1 | | HOUSE RESOLUTION
| 2 | | WHEREAS, Peroxisome Biogenesis Disorder - Zellweger | 3 | | Spectrum Disorder (PBD-ZSD or simply PBD) is
a rare genetic | 4 | | disorder that affects 1 in 50,000 births within the United | 5 | | States of America; and
| 6 | | WHEREAS, PBD causes life threatening symptoms for most | 7 | | infants and children who have the disease; and
| 8 | | WHEREAS, PBD results in poor muscle tone, hearing loss, | 9 | | vision loss, low bone density, seizures, liver and
kidney | 10 | | dysfunction, and developmental delays; and
| 11 | | WHEREAS, PBD causes a mutation in any of the 13 genes | 12 | | termed PEX genes; and | 13 | | WHEREAS, Max Chapman, born October 17, 2013, a resident of | 14 | | Bloomington, was diagnosed with
PBD at the age of 14 months; | 15 | | with his loving heart, his cheerful disposition, and boundless | 16 | | personality,
Max has inspired countless family and friends in | 17 | | Central Illinois to spread awareness of this devastating
| 18 | | disorder; and
| 19 | | WHEREAS, Max's parents, Corin and Todd Chapman, and his | 20 | | grandparents, Alan and Kathie Chapman and
Greg and Patty Garbe, |
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| 1 | | create awareness for PBD by sharing Max and his story | 2 | | unselfishly through
blogging, social media, video, and | 3 | | fundraising events; and
| 4 | | WHEREAS, May 18 and 19, 2018 is the third annual Tee it Up! | 5 | | For the GFPD golf outing at Illinois State
University's | 6 | | Weibring Golf Club to honor Max and raise funds for The Global | 7 | | Foundation for Peroxisomal
Disorders (GFPD) in support of their | 8 | | mission to advocate for awareness of PBD and support new
| 9 | | avenues for medical research in the development of treatments | 10 | | and cures; therefore, be it
| 11 | | RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE | 12 | | HUNDREDTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we | 13 | | urge awareness of peroxisomal disorders and encourage support | 14 | | for medical research in the development of new treatments and | 15 | | cures; and be it further
| 16 | | RESOLVED, That suitable copies of this resolution be | 17 | | presented to The Global Foundation for Peroxisomal
Disorders, | 18 | | Max Chapman, Max's parents, and Max's grandparents.
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