Full Text of SR1452 098th General Assembly
SR1452 98TH GENERAL ASSEMBLY |
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| 1 | | SENATE RESOLUTION
| 2 | | WHEREAS, Few people know of mitochondrial disease, yet
| 3 | | every 30 minutes a child is born who will develop this disease | 4 | | by
the age of 10; and
| 5 | | WHEREAS, There is no cure for mitochondrial disease; and | 6 | | WHEREAS, Mitochondrial disease is often misdiagnosed; and | 7 | | WHEREAS, Mitochondrial disease occurs when mitochondria
| 8 | | inside of cells, which are responsible for creating more than | 9 | | 90% of
the energy needed by the body to sustain life and | 10 | | support growth,
fail to carry out their primary functions; and | 11 | | WHEREAS, When mitochondria fail, less energy is
generated | 12 | | within the cell; and | 13 | | WHEREAS, If this process is repeated throughout the body,
| 14 | | whole systems begin to fail, and the person's life is severely | 15 | | compromised; and | 16 | | WHEREAS, The disease primarily affects children; and | 17 | | WHEREAS, Diseases of the mitochondria appear to cause the
| 18 | | most damage to cells of the brain, heart, liver, skeletal |
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| 1 | | muscles,
kidneys, and the endocrine and respiratory systems; | 2 | | and
| 3 | | WHEREAS, Common symptoms include muscle weakness and
pain, | 4 | | gastrointestinal disorders, poor growth, cardiac disease, | 5 | | liver disease, diabetes, respiratory problems, seizures, | 6 | | visual and hearing
problems, and susceptibility to infection; | 7 | | and
| 8 | | WHEREAS, Because so little is known about the disease, | 9 | | there
are only a few hospitals in the world that offer | 10 | | treatment, causing
affected families to travel regularly or | 11 | | even relocate to receive
treatment; and
| 12 | | WHEREAS, Mitochondrial disease is progressive, likely
| 13 | | terminal, and requires a high level of care and extremely | 14 | | expensive
medical treatment that often exceeds covered | 15 | | insurance benefits,
creating great financial burdens on | 16 | | affected families; and
| 17 | | WHEREAS, The 3rd week of September is observed globally
as | 18 | | Mitochondrial Disease Awareness Week; therefore, be it
| 19 | | RESOLVED, BY THE SENATE OF THE NINETY-EIGHTH GENERAL | 20 | | ASSEMBLY OF THE STATE OF ILLINOIS, that we designate the 3rd | 21 | | week of September 2014 as Mitochondrial Disease Awareness Week |
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| 1 | | in the State of Illinois; and be it further
| 2 | | RESOLVED, That suitable copies of this resolution be | 3 | | presented to the United Mitochondrial Disease Foundation | 4 | | (UMDF) and the Chicago Area Chapter of the UMDF.
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