Full Text of HB5925 98th General Assembly
HB5925enr 98TH GENERAL ASSEMBLY |
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| 1 | | AN ACT concerning health.
| 2 | | Be it enacted by the People of the State of Illinois,
| 3 | | represented in the General Assembly:
| 4 | | Section 1. The Illinois Health Information Exchange and | 5 | | Technology Act is amended by changing Section 40 as follows: | 6 | | (20 ILCS 3860/40) | 7 | | (Section scheduled to be repealed on January 1, 2021)
| 8 | | Sec. 40. Reliance on data. Any health care provider who | 9 | | relies in good faith upon any information provided through the | 10 | | ILHIE in his, her, or its treatment of a patient shall be | 11 | | immune from criminal or civil liability or professional | 12 | | discipline arising from any damages caused by such good faith | 13 | | reliance. This immunity does not apply to acts or omissions | 14 | | constituting gross negligence or reckless, wanton, or | 15 | | intentional misconduct. Notwithstanding this provision, the | 16 | | Authority does not waive any immunities provided under State or | 17 | | federal law.
| 18 | | (Source: P.A. 96-1331, eff. 7-27-10.) | 19 | | Section 5. The Illinois Clinical Laboratory and Blood Bank | 20 | | Act is amended by adding Sections 2-134, 2-135, 2-136, and | 21 | | 2-137 and by changing Section 7-102 as follows: |
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| 1 | | (210 ILCS 25/2-134 new) | 2 | | Sec. 2-134. Health care operations. "Health care | 3 | | operations" has the meaning ascribed to it under HIPAA, as | 4 | | specified in 45 CFR 164.501. | 5 | | (210 ILCS 25/2-135 new) | 6 | | Sec. 2-135. HIPAA. "HIPAA" means the Health Insurance | 7 | | Portability and Accountability Act of 1996, Public Law 104-191, | 8 | | as amended by the Health Information and Technology for | 9 | | Economic and Clinical Health Act of 2009, Public Law 111-05, | 10 | | and any subsequent amendments thereto and any regulations | 11 | | promulgated thereunder. | 12 | | (210 ILCS 25/2-136 new) | 13 | | Sec. 2-136. Payment. "Payment" has the meaning ascribed to | 14 | | it under HIPAA, as specified in 45 CFR 164.501. | 15 | | (210 ILCS 25/2-137 new) | 16 | | Sec. 2-137. Treatment. "Treatment" has the meaning | 17 | | ascribed to it under HIPAA, as specified in 45 CFR 164.501.
| 18 | | (210 ILCS 25/7-102) (from Ch. 111 1/2, par. 627-102)
| 19 | | Sec. 7-102. Reports of test results. | 20 | | (a) Clinical laboratory test results may be reported or | 21 | | transmitted to: | 22 | | (1) the licensed physician or other authorized person |
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| 1 | | who requested the test, their designee, or both; | 2 | | (2) any health care provider who is providing treatment | 3 | | to the patient; | 4 | | (3) an electronic health information exchange for the | 5 | | purposes of transmitting, using, or disclosing clinical | 6 | | laboratory test results in any manner required or permitted | 7 | | by HIPAA. The result of a test shall be reported
directly | 8 | | to the licensed physician or other authorized person who | 9 | | requested it.
| 10 | | (b) No interpretation, diagnosis , or prognosis or | 11 | | suggested treatment shall appear
on the laboratory report form , | 12 | | except that a report made by a physician licensed
to practice | 13 | | medicine in Illinois, a dentist licensed in Illinois, or an | 14 | | optometrist licensed in Illinois may
include such information. | 15 | | (c) Nothing in this Act prohibits the sharing of | 16 | | information as authorized in Section 2.1 of the Department of | 17 | | Public Health Act.
| 18 | | (Source: P.A. 98-185, eff. 1-1-14.)
| 19 | | Section 7. The Medical Patient Rights Act is amended by | 20 | | changing Section 3 as follows:
| 21 | | (410 ILCS 50/3) (from Ch. 111 1/2, par. 5403)
| 22 | | Sec. 3. The following rights are hereby established:
| 23 | | (a) The right of each patient to care consistent with sound | 24 | | nursing and
medical practices, to be informed of the name of |
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| 1 | | the physician responsible
for coordinating his or her care, to | 2 | | receive information concerning his or
her condition and | 3 | | proposed treatment, to refuse any treatment to the extent
| 4 | | permitted by law, and to privacy and confidentiality of records | 5 | | except as
otherwise provided by law.
| 6 | | (b) The right of each patient, regardless of source of | 7 | | payment, to examine
and receive a reasonable explanation of his | 8 | | total bill for services rendered
by his physician or health | 9 | | care provider, including the itemized charges
for specific | 10 | | services received. Each physician or health care provider
shall | 11 | | be responsible only for a reasonable explanation of those | 12 | | specific
services provided by such physician or health care | 13 | | provider.
| 14 | | (c) In the event an insurance company or health services | 15 | | corporation cancels
or refuses to renew an individual policy or | 16 | | plan, the insured patient shall
be entitled to timely, prior | 17 | | notice of the termination of such policy or plan.
| 18 | | An insurance company or health services corporation that | 19 | | requires any
insured patient or applicant for new or continued | 20 | | insurance or coverage to
be tested for infection with human | 21 | | immunodeficiency virus (HIV) or any
other identified causative | 22 | | agent of acquired immunodeficiency syndrome
(AIDS) shall (1) | 23 | | give the patient or applicant prior written notice of such
| 24 | | requirement, (2) proceed with such testing only upon the | 25 | | written
authorization of the applicant or patient, and (3) keep | 26 | | the results of such
testing confidential. Notice of an adverse |
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| 1 | | underwriting or coverage
decision may be given to any | 2 | | appropriately interested party, but the
insurer may only | 3 | | disclose the test result itself to a physician designated
by | 4 | | the applicant or patient, and any such disclosure shall be in a | 5 | | manner
that assures confidentiality.
| 6 | | The Department of Insurance shall enforce the provisions of | 7 | | this subsection.
| 8 | | (d) The right of each patient to privacy and | 9 | | confidentiality in health
care. Each physician, health care | 10 | | provider, health services corporation and
insurance company | 11 | | shall refrain from disclosing the nature or details of
services | 12 | | provided to patients, except that such information may be | 13 | | disclosed : (1) to the
patient, (2) to the party making | 14 | | treatment decisions if the patient is incapable
of making | 15 | | decisions regarding the health services provided, (3) for those | 16 | | parties
directly involved with providing treatment in | 17 | | accordance with 45 CFR 164.501 and 164.506, (4) for to the | 18 | | patient or processing the
payment in accordance with 45 CFR | 19 | | 164.501 and 164.506, (5) to for that treatment, those parties | 20 | | responsible for peer review,
utilization review , and quality | 21 | | assurance, (6) for health care operations in accordance with 45 | 22 | | CFR 164.501 and 164.506, (7) to and those parties required to
| 23 | | be notified under the Abused and Neglected Child Reporting Act | 24 | | or , the
Illinois Sexually Transmissible Disease Control Act , or | 25 | | (8) as where otherwise permitted,
authorized , or required by | 26 | | State or federal law. This right may be waived in writing by |
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| 1 | | the
patient or the patient's guardian or legal representative , | 2 | | but a physician or other health care
provider may not condition | 3 | | the provision of services on the patient's , or
guardian's , or | 4 | | legal representative's agreement to sign such a waiver. In the | 5 | | interest of public health, safety, and welfare, patient | 6 | | information, including, but not limited to, health | 7 | | information, demographic information, and information about | 8 | | the services provided to patients, may be transmitted to or | 9 | | through a health information exchange, as that term is defined | 10 | | in Section 2 of the Mental Health and Developmental | 11 | | Disabilities Confidentiality Act, in accordance with the | 12 | | disclosures permitted pursuant to this Section. Patients shall | 13 | | be provided the opportunity to opt out of their health | 14 | | information being transmitted to or through a health | 15 | | information exchange in accordance with the regulations, | 16 | | standards, or contractual obligations adopted by the Illinois | 17 | | Health Information Exchange Authority in accordance with | 18 | | Section 9.6 of the Mental Health and Developmental Disabilities | 19 | | Confidentiality Act, Section 9.6 of the AIDS Confidentiality | 20 | | Act, or Section 31.8 of the Genetic Information Privacy Act, as | 21 | | applicable. In the case of a patient choosing to opt out of | 22 | | having his or her information available on an HIE, nothing in | 23 | | this Act shall cause the physician or health care provider to | 24 | | be liable for the release of a patient's health information by | 25 | | other entities that may possess such information, including, | 26 | | but not limited to, other health professionals, providers, |
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| 1 | | laboratories, pharmacies, hospitals, ambulatory surgical | 2 | | centers, and nursing homes.
| 3 | | (Source: P.A. 86-895; 86-902; 86-1028; 87-334.)
| 4 | | Section 10. The AIDS Confidentiality Act is amended by | 5 | | changing Sections 2, 3, 9, 10, and 16 and by adding Sections | 6 | | 9.1, 9.2, 9.3, 9.4, 9.4a, 9.6, 9.7, 9.8, 9.9, and 9.10 as | 7 | | follows:
| 8 | | (410 ILCS 305/2) (from Ch. 111 1/2, par. 7302)
| 9 | | Sec. 2. The General Assembly finds that:
| 10 | | (1) The use of tests designed to reveal a condition | 11 | | indicative of Human
Immunodeficiency Virus (HIV) infection can | 12 | | be a valuable
tool in protecting
the public health.
| 13 | | (2) Despite existing laws, regulations and professional | 14 | | standards which
require or promote the informed, voluntary and | 15 | | confidential use of tests
designed to reveal HIV infection, | 16 | | many members of the public are deterred
from seeking such | 17 | | testing because they misunderstand the nature of the test
or | 18 | | fear that test results or other health information that reveals | 19 | | their HIV status will be disclosed without their consent.
| 20 | | (3) The public health will be served by facilitating | 21 | | informed,
voluntary and confidential use of tests designed to | 22 | | reveal HIV infection and appropriately protecting the health | 23 | | information privacy of patients who are HIV-positive .
| 24 | | (4) The public health will also be served by expanding the |
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| 1 | | availability of informed, voluntary, and confidential HIV | 2 | | testing and treatment and making HIV testing a routine part of | 3 | | general medical care, as recommended by the United States | 4 | | Centers for Disease Control and Prevention.
| 5 | | (5) The use of electronic health record systems and the | 6 | | exchange of electronic patient records, both paper and | 7 | | electronic, through secure means, including through secure | 8 | | health information exchanges, should be encouraged to improve | 9 | | patient health care and care coordination, facilitate public | 10 | | health reporting, and control health care costs, among other | 11 | | purposes. | 12 | | (6) Limiting the use or disclosure of, and requests for, | 13 | | protected health information to the minimum necessary to | 14 | | accomplish an intended purpose, when being transmitted by or on | 15 | | behalf of a covered entity under HIPAA, is a key component of | 16 | | health information privacy. The disclosure of HIV-related | 17 | | information, when allowed by this Act, shall be performed in | 18 | | accordance with the minimum necessary standard when required | 19 | | under HIPAA. | 20 | | (Source: P.A. 95-7, eff. 6-1-08 .)
| 21 | | (410 ILCS 305/3) (from Ch. 111 1/2, par. 7303)
| 22 | | Sec. 3. When used in this Act:
| 23 | | (a) "AIDS" means acquired immunodeficiency syndrome. | 24 | | (b) "Authority" means the Illinois Health Information | 25 | | Exchange Authority established pursuant to the Illinois Health |
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| 1 | | Information Exchange and Technology Act. | 2 | | (c) "Business associate" has the meaning ascribed to it | 3 | | under HIPAA, as specified in 45 CFR 160.103. | 4 | | (d) "Covered entity" has the meaning ascribed to it under | 5 | | HIPAA, as specified in 45 CFR 160.103. | 6 | | (e) "De-identified information" means health information | 7 | | that is not individually identifiable as described under HIPAA, | 8 | | as specified in 45 CFR 164.514(b). | 9 | | (f) (a) "Department" means the Illinois Department of | 10 | | Public Health or its designated agents .
| 11 | | (g) "Disclosure" has the meaning ascribed to it under | 12 | | HIPAA, as specified in 45 CFR 160.103. | 13 | | (h) "Health care operations" has the meaning ascribed to it | 14 | | under HIPAA, as specified in 45 CFR 164.501. | 15 | | (i) "Health care professional" means (i) a licensed | 16 | | physician, (ii) a
physician assistant
to whom the physician | 17 | | assistant's supervising physician has delegated the
provision | 18 | | of AIDS and
HIV-related health services, (iii) an advanced | 19 | | practice registered nurse who
has a written
collaborative | 20 | | agreement with a collaborating physician which authorizes the
| 21 | | provision of AIDS
and HIV-related health services, (iv) a | 22 | | licensed dentist, (v) a licensed podiatric physician, or (vi) | 23 | | an
individual certified to provide HIV testing and counseling | 24 | | by a state or local
public health
department. | 25 | | (j) "Health care provider" has the meaning ascribed to it | 26 | | under HIPAA, as specified in 45 CFR 160.103. |
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| 1 | | (b) "AIDS" means acquired immunodeficiency syndrome.
| 2 | | (c) "HIV" means the Human Immunodeficiency Virus or
any | 3 | | other identified causative agent of AIDS.
| 4 | | (d) "Informed consent" means a written or verbal
agreement | 5 | | by the subject of a test or the subject's
legally authorized | 6 | | representative without undue inducement or any element
of | 7 | | force, fraud, deceit, duress or other form of constraint or | 8 | | coercion,
which entails at least the following pre-test | 9 | | information:
| 10 | | (1) a fair explanation of the test, including its | 11 | | purpose, potential
uses, limitations and the meaning of its | 12 | | results; and
| 13 | | (2) a fair explanation of the procedures to be | 14 | | followed, including the
voluntary nature of the test, the | 15 | | right to withdraw consent to the testing
process at any | 16 | | time, the right to anonymity to the extent provided by law
| 17 | | with respect to participation in the test and disclosure of | 18 | | test results,
and the right to confidential treatment of
| 19 | | information identifying the subject of the test and the | 20 | | results of the
test, to the extent provided by law.
| 21 | | Pre-test information may be provided in writing, verbally, | 22 | | or by video, electronic, or other means. The subject must be | 23 | | offered an opportunity to ask questions about the HIV test and | 24 | | decline testing. Nothing in this Act shall prohibit a health | 25 | | care provider from combining a form used to obtain informed | 26 | | consent for HIV testing with forms used to obtain written |
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| 1 | | consent for general medical care or any other medical test or | 2 | | procedure provided that the forms make it clear that the | 3 | | subject may consent to general medical care, tests, or medical | 4 | | procedures without being required to consent to HIV testing and | 5 | | clearly explain how the subject may opt-out of HIV testing.
| 6 | | (k) (e) "Health facility" means a hospital, nursing home, | 7 | | blood bank, blood
center, sperm bank, or other health care | 8 | | institution, including any "health
facility" as that term is | 9 | | defined in the Illinois Finance Authority
Act.
| 10 | | (l) "Health information exchange" or "HIE" means a health | 11 | | information exchange or health information organization that | 12 | | oversees and governs the electronic exchange of health | 13 | | information that (i) is established pursuant to the Illinois | 14 | | Health Information Exchange and Technology Act, or any | 15 | | subsequent amendments thereto, and any administrative rules | 16 | | adopted thereunder; (ii) has established a data sharing | 17 | | arrangement with the Authority; or (iii) as of August 16, 2013, | 18 | | was designated by the Authority Board as a member of, or was | 19 | | represented on, the Authority Board's Regional Health | 20 | | Information Exchange Workgroup; provided that such designation
| 21 | | shall not require the establishment of a data sharing | 22 | | arrangement or other participation with the Illinois Health
| 23 | | Information Exchange or the payment of any fee. In certain | 24 | | circumstances, in accordance with HIPAA, an HIE will be a | 25 | | business associate. | 26 | | (m) "Health oversight agency" has the meaning ascribed to |
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| 1 | | it under HIPAA, as specified in 45 CFR 164.501. | 2 | | (n) "HIPAA" means the Health Insurance Portability and | 3 | | Accountability Act of 1996, Public Law 104-191, as amended by | 4 | | the Health Information Technology for Economic and Clinical | 5 | | Health Act of 2009, Public Law 111-05, and any subsequent | 6 | | amendments thereto and any regulations promulgated thereunder. | 7 | | (o) "HIV" means the human immunodeficiency virus. | 8 | | (p) "HIV-related information" means the identity of a | 9 | | person upon whom an HIV test is performed, the results of an | 10 | | HIV test, as well as diagnosis, treatment, and prescription | 11 | | information that reveals a patient is HIV-positive, including | 12 | | such information contained in a limited data set. "HIV-related | 13 | | information" does not include information that has been | 14 | | de-identified in accordance with HIPAA. | 15 | | (q) "Informed consent" means a written or verbal
agreement | 16 | | by the subject of a test or the subject's
legally authorized | 17 | | representative without undue inducement or any element
of | 18 | | force, fraud, deceit, duress, or other form of constraint or | 19 | | coercion,
which entails at least the following pre-test | 20 | | information: | 21 | | (1) a fair explanation of the test, including its | 22 | | purpose, potential
uses, limitations, and the meaning of | 23 | | its results; | 24 | | (2) a fair explanation of the procedures to be | 25 | | followed, including the
voluntary nature of the test, the | 26 | | right to withdraw consent to the testing
process at any |
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| 1 | | time, the right to anonymity to the extent provided by law
| 2 | | with respect to participation in the test and disclosure of | 3 | | test results,
and the right to confidential treatment of
| 4 | | information identifying the subject of the test and the | 5 | | results of the
test, to the extent provided by law; and | 6 | | (3) where the person providing informed consent is a | 7 | | participant in an HIE, a fair explanation that the results | 8 | | of the patient's HIV test will be accessible through an HIE | 9 | | and meaningful disclosure of the patient's opt-out right | 10 | | under Section 9.6 of this Act. | 11 | | Pre-test information may be provided in writing, verbally, | 12 | | or by video, electronic, or other means. The subject must be | 13 | | offered an opportunity to ask questions about the HIV test and | 14 | | decline testing. Nothing in this Act shall prohibit a health | 15 | | care provider or health care professional from combining a form | 16 | | used to obtain informed consent for HIV testing with forms used | 17 | | to obtain written consent for general medical care or any other | 18 | | medical test or procedure provided that the forms make it clear | 19 | | that the subject may consent to general medical care, tests, or | 20 | | medical procedures without being required to consent to HIV | 21 | | testing and clearly explain how the subject may opt out of HIV | 22 | | testing. | 23 | | (r) "Limited data set" has the meaning ascribed to it under | 24 | | HIPAA, as described in 45 CFR 164.514(e)(2). | 25 | | (s) "Minimum necessary" means the HIPAA standard for using, | 26 | | disclosing, and requesting protected health information found |
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| 1 | | in 45 CFR 164.502(b) and 164.514(d). | 2 | | (t) "Organized health care arrangement" has the meaning | 3 | | ascribed to it under HIPAA, as specified in 45 CFR 160.103. | 4 | | (u) "Patient safety activities" has the meaning ascribed to | 5 | | it under 42 CFR 3.20. | 6 | | (v) "Payment" has the meaning ascribed to it under HIPAA, | 7 | | as specified in 45 CFR 164.501. | 8 | | (w) "Person" includes any natural person, partnership, | 9 | | association, joint venture, trust, governmental entity, public | 10 | | or private corporation, health facility, or other legal entity. | 11 | | (x) "Protected health information" has the meaning | 12 | | ascribed to it under HIPAA, as specified in 45 CFR 160.103. | 13 | | (y) "Research" has the meaning ascribed to it under HIPAA, | 14 | | as specified in 45 CFR 164.501. | 15 | | (z) "State agency" means an instrumentality of the State of | 16 | | Illinois and any instrumentality of another state that, | 17 | | pursuant to applicable law or a written undertaking with an | 18 | | instrumentality of the State of Illinois, is bound to protect | 19 | | the privacy of HIV-related information of Illinois persons. | 20 | | (f) "Health care provider" means any health care | 21 | | professional, nurse,
paramedic,
psychologist or other person | 22 | | providing medical, nursing, psychological, or
other health | 23 | | care services of any kind.
| 24 | | (f-5) "Health care professional" means (i) a licensed | 25 | | physician, (ii) a
physician assistant
to whom the physician | 26 | | assistant's supervising physician has delegated the
provision |
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| 1 | | of AIDS and
HIV-related health services, (iii) an advanced | 2 | | practice registered nurse who
has a written
collaborative | 3 | | agreement with a collaborating physician which authorizes the
| 4 | | provision of AIDS
and HIV-related health services, (iv) a | 5 | | licensed dentist, (v) a licensed podiatric physician, or (vi) | 6 | | an
individual certified to provide HIV testing and counseling | 7 | | by a state or local
public health
department.
| 8 | | (aa) (g) "Test" or "HIV test" means a test to determine the | 9 | | presence of the
antibody or antigen to HIV, or of HIV | 10 | | infection.
| 11 | | (bb) "Treatment" has the meaning ascribed to it under | 12 | | HIPAA, as specified in 45 CFR 164.501. | 13 | | (cc) "Use" has the meaning ascribed to it under HIPAA, as | 14 | | specified in 45 CFR 160.103, where context dictates. | 15 | | (h) "Person" includes any natural person, partnership, | 16 | | association,
joint venture, trust, governmental entity, public | 17 | | or private corporation,
health facility or other legal entity.
| 18 | | (Source: P.A. 98-214, eff. 8-9-13.)
| 19 | | (410 ILCS 305/9) (from Ch. 111 1/2, par. 7309)
| 20 | | Sec. 9. (1) No person may disclose or be compelled to | 21 | | disclose HIV-related information the
identity of any person | 22 | | upon whom a test is performed, or the results of
such a test in | 23 | | a manner which permits identification of the subject of the
| 24 | | test , except to the following persons:
| 25 | | (a) The subject of an HIV the test or the subject's legally
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| 1 | | authorized representative. A physician may notify the spouse of | 2 | | the
test subject, if the test result is positive and has been | 3 | | confirmed
pursuant to rules adopted by the Department, provided | 4 | | that the physician has
first sought unsuccessfully to persuade | 5 | | the patient to notify the spouse or
that, a reasonable time | 6 | | after the patient has agreed to make the
notification, the | 7 | | physician has reason to believe that the patient has not
| 8 | | provided the notification. This paragraph shall not create a | 9 | | duty or
obligation under which a physician must notify the | 10 | | spouse of the test
results, nor shall such duty or obligation | 11 | | be implied. No civil liability
or criminal sanction under this | 12 | | Act shall be imposed for any disclosure or
non-disclosure of a | 13 | | test result to a spouse by a physician acting in good
faith | 14 | | under this paragraph. For the purpose of any proceedings, civil | 15 | | or
criminal, the good faith of any physician acting under this | 16 | | paragraph shall
be presumed.
| 17 | | (b) Any person designated in a legally effective | 18 | | authorization for release of the HIV-related information test
| 19 | | results executed by the subject of the HIV-related information | 20 | | test or the subject's legally
authorized representative.
| 21 | | (c) An authorized agent or employee of a health facility or | 22 | | health care
provider if the health facility or health care | 23 | | provider itself is
authorized to obtain the test results, the | 24 | | agent or employee provides
patient care or handles or processes | 25 | | specimens of body fluids or tissues,
and the agent or employee | 26 | | has a need to know such information.
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| 1 | | (d) The Department and local health authorities serving a | 2 | | population of over 1,000,000 residents or other local health | 3 | | authorities as designated by the Department, in accordance with | 4 | | rules for reporting , preventing, and
controlling the spread of | 5 | | disease and the conduct of public health surveillance, public | 6 | | health investigations, and public health interventions , as | 7 | | otherwise provided by State law.
The Department,
local health | 8 | | authorities, and authorized representatives shall not disclose | 9 | | HIV test results and HIV-related
information and records held | 10 | | by them relating to known or suspected cases of
AIDS or HIV | 11 | | infection , publicly or in any action of any kind in any court | 12 | | or
before any tribunal, board, or agency. HIV test results and | 13 | | HIV-related information AIDS and HIV infection data shall be
| 14 | | protected from disclosure in accordance with the provisions of | 15 | | Sections 8-2101
through 8-2105 of the Code of Civil Procedure.
| 16 | | (e) A health facility , or health care provider , or health | 17 | | care professional which procures, processes,
distributes or | 18 | | uses: (i) a human body part from a deceased person
with respect | 19 | | to medical information regarding that person; or (ii) semen
| 20 | | provided prior to the effective date of this Act for the | 21 | | purpose of
artificial insemination.
| 22 | | (f) Health facility staff committees for the purposes of | 23 | | conducting
program monitoring, program evaluation or service | 24 | | reviews.
| 25 | | (f-5) A court in accordance with the provisions of Section | 26 | | 12-5.01 of the Criminal Code of 2012. |
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| 1 | | (g) (Blank).
| 2 | | (h) Any health care provider , health care professional, or | 3 | | employee of a health facility, and any
firefighter or EMT-A, | 4 | | EMT-P, or EMT-I, involved in an accidental direct
skin or | 5 | | mucous membrane contact with the blood or bodily fluids of an
| 6 | | individual which is of a nature that may transmit HIV, as | 7 | | determined by a
physician in his medical judgment.
| 8 | | (i) Any law enforcement officer, as defined in subsection | 9 | | (c) of
Section 7, involved in the line of duty in a direct skin | 10 | | or mucous membrane
contact with the blood or bodily fluids of | 11 | | an individual which is of a
nature that may transmit HIV, as | 12 | | determined by a physician in his medical
judgment.
| 13 | | (j) A temporary caretaker of a child taken into temporary | 14 | | protective
custody by the Department of Children and Family | 15 | | Services pursuant to Section 5
of the Abused and Neglected | 16 | | Child Reporting Act, as now or hereafter amended.
| 17 | | (k) In the case of a minor under 18 years of age whose test | 18 | | result is
positive and has been confirmed
pursuant to rules | 19 | | adopted by the Department, the health care professional | 20 | | provider who ordered the test shall make a reasonable
effort to | 21 | | notify the minor's parent or legal guardian if, in the
| 22 | | professional judgment
of the health care professional | 23 | | provider , notification would be
in the best interest of the | 24 | | child and the health care professional provider has first
| 25 | | sought unsuccessfully to persuade the minor to notify the | 26 | | parent or legal
guardian or a reasonable time after the minor |
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| 1 | | has agreed to notify
the parent or legal guardian, the health | 2 | | care professional provider has reason to
believe that the minor | 3 | | has not made the notification. This subsection
shall not create | 4 | | a duty or obligation under which a health care professional | 5 | | provider
must notify the minor's parent or legal guardian of | 6 | | the test results, nor
shall a duty or obligation be implied. No | 7 | | civil liability or criminal sanction
under this Act shall be | 8 | | imposed for any notification or non-notification of a
minor's | 9 | | test result by a health care professional provider acting in | 10 | | good faith under this
subsection. For the purpose of any | 11 | | proceeding, civil or criminal, the good
faith of any health | 12 | | care professional provider acting under this subsection shall | 13 | | be
presumed.
| 14 | | (2) All information and records held by a State agency, | 15 | | local health authority, or health oversight agency pertaining | 16 | | to HIV-related information shall be strictly confidential and | 17 | | exempt from copying and inspection under the Freedom of | 18 | | Information Act. The information and records shall not be | 19 | | released or made public by the State agency, local health | 20 | | authority, or health oversight agency, shall not be admissible | 21 | | as evidence nor discoverable in any action of any kind in any | 22 | | court or before any tribunal, board, agency, or person, and | 23 | | shall be treated in the same manner as the information and | 24 | | those records subject to the provisions of Part 21 of Article | 25 | | VIII of the Code of Civil Procedure, except under the following | 26 | | circumstances: |
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| 1 | | (A) when made with the written consent of all persons | 2 | | to whom the information pertains; or | 3 | | (B) when authorized by Section 5-4-3 of the Unified | 4 | | Code of Corrections. | 5 | | Disclosure shall be limited to those who have a need to | 6 | | know the information, and no additional disclosures may be | 7 | | made. | 8 | | (Source: P.A. 96-328, eff. 8-11-09; 97-1046, eff. 8-21-12; | 9 | | 97-1150, eff. 1-25-13.)
| 10 | | (410 ILCS 305/9.1 new) | 11 | | Sec. 9.1. Uses and disclosures for treatment, payment, and | 12 | | health care operations. Notwithstanding Sections 9 and 10 of | 13 | | this Act, a covered entity may, without a patient's consent: | 14 | | (1) use or disclose HIV-related information for its own | 15 | | treatment, payment, or health care operations; | 16 | | (2) disclose HIV-related information for treatment | 17 | | activities of a health care provider or health care | 18 | | professional; | 19 | | (3) disclose HIV-related information to another | 20 | | covered entity or health care provider or health care | 21 | | professional for the payment activities of the entity that | 22 | | receives the information; | 23 | | (4) disclose HIV-related information to another | 24 | | covered entity for health care operations activities of the | 25 | | entity that receives the information, if each entity has or |
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| 1 | | had a relationship with the individual who is the subject | 2 | | of the HIV-related information being requested, the | 3 | | HIV-related information pertains to such relationship, and | 4 | | the disclosure is for the purpose of (A) conducting quality | 5 | | assessment and improvement activities, including outcomes | 6 | | evaluation and development of clinical guidelines, | 7 | | provided that the obtaining of generalizable knowledge is | 8 | | not the primary purpose of any studies resulting from such | 9 | | activities; patient safety activities; population-based | 10 | | activities relating to improving health or reducing health | 11 | | care costs, protocol development, case management, and | 12 | | care coordination, contacting of health care providers and | 13 | | patients with information about treatment alternatives; | 14 | | and related functions that do not include treatment; (B) | 15 | | reviewing the competence or qualifications of health care | 16 | | professionals or health care providers, evaluating | 17 | | practitioner and provider performance, health plan | 18 | | performance, conducting training programs in which | 19 | | students, trainees, or practitioners in areas of health | 20 | | care learn under supervision to practice or improve their | 21 | | skills as health care providers, training of non-health | 22 | | care professionals, accreditation, certification, | 23 | | licensing, or credentialing activities; or (C) health care | 24 | | fraud and abuse detection or compliance; and | 25 | | (5) disclose HIV-related information to other | 26 | | participants in an organized health care arrangement in |
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| 1 | | which the covered entity is also a participant for any | 2 | | health care operations activities of the organized health | 3 | | care arrangement. | 4 | | (410 ILCS 305/9.2 new) | 5 | | Sec. 9.2. Uses and disclosures for health oversight | 6 | | activities. | 7 | | (a) Notwithstanding Sections 9 and 10 of this Act, a | 8 | | covered entity may disclose HIV-related information, without a | 9 | | patient's consent, to a health oversight agency for health | 10 | | oversight activities authorized by law, including audits, | 11 | | civil, administrative, or criminal investigations; | 12 | | inspections; licensure or disciplinary actions; civil | 13 | | administrative or criminal proceedings or actions; or other | 14 | | activities necessary for appropriate oversight of (i) the | 15 | | health care system; (ii) government benefit programs for which | 16 | | health information is relevant to beneficiary eligibility; | 17 | | (iii) entities subject to government regulatory programs for | 18 | | which health information is necessary for determining | 19 | | compliance with program standards; or (iv) entities subject to | 20 | | civil rights laws for which health information is necessary for | 21 | | determining compliance. | 22 | | (b) For purposes of the disclosures permitted by this | 23 | | Section, a health oversight activity does not include an | 24 | | investigation or other activity in which the individual is the | 25 | | subject of the investigation or activity and such investigation |
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| 1 | | or other activity does not arise out of and is not directly | 2 | | related to (i) the receipt of health care; (ii) a claim for | 3 | | public benefits related to health; or (iii) qualification for, | 4 | | or receipt of, public benefits or services when a patient's | 5 | | health is integral to the claim for public benefits or | 6 | | services, except that, if a health oversight activity or | 7 | | investigation is conducted in conjunction with an oversight | 8 | | activity or investigation relating to a claim for public | 9 | | benefits not related to health, the joint activity or | 10 | | investigation is considered a health oversight activity for | 11 | | purposes of this Section. | 12 | | (c) If a covered entity is also a health oversight agency, | 13 | | the covered entity may use HIV-related information for health | 14 | | oversight activities permitted by this Section. | 15 | | (410 ILCS 305/9.3 new) | 16 | | Sec. 9.3. Business associates. | 17 | | (a) Notwithstanding Sections 9 and 10 of this Act, a | 18 | | covered entity may, without a patient's consent, disclose a | 19 | | patient's HIV-related information to a business associate and | 20 | | may allow a business associate to create, receive, maintain, or | 21 | | transmit protected health information on its behalf, if the | 22 | | covered entity obtains, through a written contract or other | 23 | | written agreement or arrangement that meets the applicable | 24 | | requirements of 45 CFR 164.504(e), satisfactory assurance that | 25 | | the business associate will appropriately safeguard the |
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| 1 | | information. A covered entity is not required to obtain such | 2 | | satisfactory assurances from a business associate that is a | 3 | | subcontractor. | 4 | | (b) A business associate may disclose protected health | 5 | | information to a business associate that is a subcontractor and | 6 | | may allow the subcontractor to create, receive, maintain, or | 7 | | transmit protected health information on its behalf, if the | 8 | | business associate obtains satisfactory assurances, in | 9 | | accordance with 45 CFR 164.504(e)(1)(i), that the | 10 | | subcontractor will appropriately safeguard the information. | 11 | | (410 ILCS 305/9.4 new) | 12 | | Sec. 9.4. Use and disclosure of information to an HIE. | 13 | | Notwithstanding the provisions of Sections 9 and 10 of this | 14 | | Act, a covered entity may, without a patient's consent, | 15 | | disclose the identity of any patient upon whom a test is | 16 | | performed and such patient's HIV-related information from a | 17 | | patient's record to an HIE if the disclosure is a required or | 18 | | permitted disclosure to a business associate or is a disclosure | 19 | | otherwise required or permitted under this Act. An HIE may, | 20 | | without a patient's consent, use or disclose such information | 21 | | to the extent it is allowed to use or disclose such information | 22 | | as a business associate in compliance with 45 CFR 164.502(e) or | 23 | | for such other purposes as are specifically allowed under this | 24 | | Act. |
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| 1 | | (410 ILCS 305/9.4a new) | 2 | | Sec. 9.4a. Other disclosures. Nothing in this Act shall be | 3 | | construed (1) to limit the use of an HIE to facilitate | 4 | | disclosures permitted by this Act or (2) to allow for the | 5 | | disclosure of information from a patient's record to law | 6 | | enforcement or for law enforcement purposes. | 7 | | (410 ILCS 305/9.6 new) | 8 | | Sec. 9.6. HIE opt out. Section 9.6 of the Mental Health and | 9 | | Developmental Disabilities Confidentiality Act is incorporated | 10 | | herein by reference. In addition to the requirements set out in | 11 | | Section 9.6 of the Mental Health and Developmental Disabilities | 12 | | Confidentiality Act, at the time of a patient's first encounter | 13 | | for HIV-related care with a health care provider, health care | 14 | | professional, or health facility that participates in an HIE, | 15 | | or, in the event of a medical emergency that makes it | 16 | | impossible, as soon thereafter as is practicable, the patient | 17 | | shall receive meaningful disclosure regarding the HIE in which | 18 | | the health care provider, health care professional, or health | 19 | | facility participates and shall be afforded an opportunity to | 20 | | opt out of disclosure of the patient's health information | 21 | | through the HIE. | 22 | | (410 ILCS 305/9.7 new) | 23 | | Sec. 9.7. Record locator service to support HIE. Section | 24 | | 9.9 of the Mental Health and Developmental Disabilities and |
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| 1 | | Confidentiality Act is herein incorporated by reference. | 2 | | (410 ILCS 305/9.8 new) | 3 | | Sec. 9.8. Disclosure of limited data sets and de-identified | 4 | | information. Notwithstanding the provisions of Sections 9 and | 5 | | 10 of this Act: | 6 | | (1) a covered entity may, without a patient's consent, | 7 | | create, use, and disclose a limited data set using | 8 | | HIV-related information from a patient's record or | 9 | | disclose HIV-related information from a patient's record | 10 | | to a business associate for the purpose of establishing a | 11 | | limited data set; the creation, use, and disclosure of such | 12 | | a limited data set must comply with the requirements set | 13 | | forth under HIPAA; | 14 | | (2) a covered entity may, without a patient's consent, | 15 | | create, use, and disclose de-identified information using | 16 | | information from a patient's record that is subject to this | 17 | | Act or disclose HIV-related information from a patient's | 18 | | record to a business associate for the purpose of | 19 | | de-identifying the information; the creation, use, and | 20 | | disclosure of such de-identified data must comply with the | 21 | | requirements set forth under HIPAA. A covered entity or a | 22 | | business associate may disclose information that is | 23 | | de-identified; and | 24 | | (3) the recipient of de-identified information shall | 25 | | not re-identify de-identified information using any public |
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| 1 | | or private data source. | 2 | | (410 ILCS 305/9.9 new) | 3 | | Sec. 9.9. Research. HIV-related information may be | 4 | | disclosed for research in accordance with the requirements set | 5 | | forth under HIPAA. | 6 | | (410 ILCS 305/9.10 new) | 7 | | Sec. 9.10. Minimum necessary. When using and disclosing | 8 | | HIV-related information under this Act, a covered entity shall | 9 | | do so in accordance with the minimum necessary standard under | 10 | | HIPAA.
| 11 | | (410 ILCS 305/10) (from Ch. 111 1/2, par. 7310)
| 12 | | Sec. 10.
No person to whom the results of a test have been | 13 | | disclosed
may disclose the test results to another person | 14 | | except as authorized under this Act
by Section 9 .
| 15 | | (Source: P.A. 85-677; 85-679.)
| 16 | | (410 ILCS 305/16) (from Ch. 111 1/2, par. 7316)
| 17 | | Sec. 16. The Department shall promulgate rules and | 18 | | regulations
concerning implementation and enforcement of this | 19 | | Act , except to the extent that this Act delegates to the | 20 | | Authority the promulgation or adoption of any rules, | 21 | | regulations, standards, or contractual obligations . The rules | 22 | | and
regulations promulgated by the Department pursuant to this |
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| 1 | | Act may include
procedures for taking appropriate action with | 2 | | regard to health care
facilities or health care providers which | 3 | | violate this Act or the
regulations promulgated hereunder. The | 4 | | provisions of The Illinois
Administrative Procedure Act shall | 5 | | apply to all administrative rules and
procedures of the | 6 | | Department pursuant to this Act, except that in case of
| 7 | | conflict between The Illinois Administrative Procedure Act and | 8 | | this Act,
the provisions of this Act shall control. The | 9 | | Department shall conduct training, technical assistance, and | 10 | | outreach activities, as needed, to implement routine HIV | 11 | | testing in healthcare medical settings.
| 12 | | (Source: P.A. 95-7, eff. 6-1-08 .)
| 13 | | Section 15. The Genetic Information Privacy Act is amended | 14 | | by changing Sections 5, 10, 20, 25, 30, 35, and 40 and by | 15 | | adding Sections 31, 31.1, 31.2, 31.3, 31.4, 31.5, 31.6, 31.7, | 16 | | 31.8, 31.9, and 31.10 as follows:
| 17 | | (410 ILCS 513/5)
| 18 | | Sec. 5. Legislative findings; intent. The General Assembly | 19 | | finds that:
| 20 | | (1) The use of genetic testing can be valuable to an | 21 | | individual.
| 22 | | (2) Despite existing laws, regulations, and | 23 | | professional standards which
require or promote voluntary | 24 | | and confidential use of genetic testing
information, many |
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| 1 | | members of the public are deterred from seeking genetic
| 2 | | testing because of fear that test results will be disclosed | 3 | | without consent in a manner not permitted by law or
will be | 4 | | used in a discriminatory manner.
| 5 | | (3) The public health will be served by facilitating | 6 | | voluntary and
confidential nondiscriminatory use of | 7 | | genetic testing information. | 8 | | (4) The use of electronic health record systems and the | 9 | | exchange of patient records, both paper and electronic, | 10 | | through secure means, including through secure health | 11 | | information exchanges, should be encouraged to improve | 12 | | patient health care and care coordination, facilitate | 13 | | public health reporting, and control health care costs, | 14 | | among other purposes. | 15 | | (5) Limiting the use or disclosure of, and requests | 16 | | for, protected health information to the minimum necessary | 17 | | to accomplish an intended purpose, when being transmitted | 18 | | by or on behalf of a covered entity under HIPAA, is a key | 19 | | component of health information privacy. The disclosure of | 20 | | genetic information, when allowed by this Act, shall be | 21 | | performed in accordance with the minimum necessary | 22 | | standard when required under HIPAA.
| 23 | | (Source: P.A. 90-25, eff. 1-1-98.)
| 24 | | (410 ILCS 513/10)
| 25 | | Sec. 10. Definitions. As used in this Act:
|
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| 1 | | "Authority" means the Illinois Health Information Exchange | 2 | | Authority established pursuant to the Illinois Health | 3 | | Information Exchange and Technology Act. | 4 | | "Business associate" has the meaning ascribed to it under | 5 | | HIPAA, as specified in 45 CFR 160.103. | 6 | | "Covered entity" has the meaning ascribed to it under | 7 | | HIPAA, as specified in 45 CFR 160.103. | 8 | | "De-identified information" means health information that | 9 | | is not individually identifiable as described under HIPAA, as | 10 | | specified in 45 CFR 164.514(b). | 11 | | "Disclosure" has the meaning ascribed to it under HIPAA, as | 12 | | specified in 45 CFR 160.103. | 13 | | "Employer" means the State of Illinois, any unit of local | 14 | | government, and any board, commission, department, | 15 | | institution, or school district, any party to a public | 16 | | contract, any joint apprenticeship or training committee | 17 | | within the State, and every other person employing employees | 18 | | within the State. | 19 | | "Employment agency" means both public and private | 20 | | employment agencies and any person, labor organization, or | 21 | | labor union having a hiring hall or hiring office regularly | 22 | | undertaking, with or without compensation, to procure | 23 | | opportunities to work, or to procure, recruit, refer, or place | 24 | | employees. | 25 | | "Family member" means, with respect to an individual, (i) | 26 | | the spouse of the individual; (ii) a dependent child of the |
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| 1 | | individual, including a child who is born to or placed for | 2 | | adoption with the individual; (iii) any other person qualifying | 3 | | as a covered dependent under a managed care plan; and (iv) all | 4 | | other individuals related by blood or law to the individual or | 5 | | the spouse or child described in subsections (i) through (iii) | 6 | | of this definition. | 7 | | "Genetic information" has the meaning ascribed to it under | 8 | | HIPAA, as specified in 45 CFR 160.103. means, with respect to | 9 | | any individual, information about (i) the individual's genetic | 10 | | tests; (ii) the genetic tests of a family member of the | 11 | | individual; and
(iii) the manifestation or possible | 12 | | manifestation of a disease or disorder in a family member of | 13 | | the individual. Genetic information does not include | 14 | | information about the sex or age of any individual. | 15 | | "Genetic monitoring" means the periodic examination of | 16 | | employees to evaluate acquired modifications to their genetic | 17 | | material, such as chromosomal damage or evidence of increased | 18 | | occurrence of mutations that may have developed in the course | 19 | | of employment due to exposure to toxic substances in the | 20 | | workplace in order to identify, evaluate, and respond to | 21 | | effects of or control adverse environmental exposures in the | 22 | | workplace. | 23 | | "Genetic services" has the meaning ascribed to it under | 24 | | HIPAA, as specified in 45 CFR 160.103 means a genetic test, | 25 | | genetic counseling, including obtaining, interpreting, or | 26 | | assessing genetic information, or genetic education . |
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| 1 | | "Genetic testing" and "genetic test" have the meaning | 2 | | ascribed to "genetic test" under HIPAA, as specified in 45 CFR | 3 | | 160.103. mean a test or analysis of human
genes, gene products, | 4 | | DNA, RNA, chromosomes, proteins, or metabolites that detect | 5 | | genotypes, mutations, chromosomal changes, abnormalities, or | 6 | | deficiencies,
including carrier status, that (i) are linked to | 7 | | physical or mental disorders
or
impairments, (ii) indicate a | 8 | | susceptibility to illness, disease, impairment,
or other | 9 | | disorders, whether physical or mental, or (iii) demonstrate | 10 | | genetic or
chromosomal damage due to environmental factors. | 11 | | Genetic testing and genetic tests do not
include routine | 12 | | physical measurements; chemical, blood and urine analyses that
| 13 | | are widely accepted and in use in clinical practice; tests for | 14 | | use of drugs;
tests for the presence of the human | 15 | | immunodeficiency virus; analyses of proteins or metabolites | 16 | | that do not detect genotypes, mutations, chromosomal changes, | 17 | | abnormalities, or deficiencies; or analyses of proteins or | 18 | | metabolites that are directly related to a manifested disease, | 19 | | disorder, or pathological condition that could reasonably be | 20 | | detected by a health care professional with appropriate | 21 | | training and expertise in the field of medicine involved. | 22 | | "Health care operations" has the meaning ascribed to it | 23 | | under HIPAA, as specified in 45 CFR 164.501. | 24 | | "Health care professional" means (i) a licensed physician, | 25 | | (ii) a physician assistant to whom the physician assistant's | 26 | | supervising physician has delegated the provision of genetic |
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| 1 | | testing or genetic counseling-related services, (iii) an | 2 | | advanced practice registered nurse who has a written | 3 | | collaborative agreement with a collaborating physician which | 4 | | authorizes the provision of genetic testing or genetic | 5 | | counseling-related health services, (iv) a licensed dentist, | 6 | | (v) a licensed podiatrist, (vi) a licensed genetic counselor, | 7 | | or (vii) an individual certified to provide genetic testing by | 8 | | a state or local public health department. | 9 | | "Health care provider" has the meaning ascribed to it under | 10 | | HIPAA, as specified in 45 CFR 160.103. | 11 | | "Health facility" means a hospital, blood bank, blood | 12 | | center, sperm bank, or other health care institution, including | 13 | | any "health facility" as that term is defined in the Illinois | 14 | | Finance Authority Act. | 15 | | "Health information exchange" or "HIE" means a health | 16 | | information exchange or health information organization that | 17 | | exchanges health information electronically that (i) is | 18 | | established pursuant to the Illinois Health Information | 19 | | Exchange and Technology Act, or any subsequent amendments | 20 | | thereto, and any administrative rules promulgated thereunder; | 21 | | (ii) has established a data sharing arrangement with the | 22 | | Authority; or (iii) as of August 16, 2013, was designated by | 23 | | the Authority Board as a member of, or was represented on, the | 24 | | Authority Board's Regional Health Information Exchange | 25 | | Workgroup; provided that such designation
shall not require the | 26 | | establishment of a data sharing arrangement or other |
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| 1 | | participation with the Illinois Health
Information Exchange or | 2 | | the payment of any fee. In certain circumstances, in accordance | 3 | | with HIPAA, an HIE will be a business associate. | 4 | | "Health oversight agency" has the meaning ascribed to it | 5 | | under HIPAA, as specified in 45 CFR 164.501. | 6 | | "HIPAA" means the Health Insurance Portability and | 7 | | Accountability Act of 1996, Public Law 104-191, as amended by | 8 | | the Health Information Technology for Economic and Clinical | 9 | | Health Act of 2009, Public Law 111-05, and any subsequent | 10 | | amendments thereto and any regulations promulgated thereunder.
| 11 | | "Insurer" means (i) an entity that is subject to the | 12 | | jurisdiction of the Director of Insurance transacts an | 13 | | insurance business and (ii) a
managed care plan.
| 14 | | "Labor organization" includes any organization, labor | 15 | | union, craft union, or any voluntary unincorporated | 16 | | association designed to further the cause of the rights of | 17 | | union labor that is constituted for the purpose, in whole or in | 18 | | part, of collective bargaining or of dealing with employers | 19 | | concerning grievances, terms or conditions of employment, or | 20 | | apprenticeships or applications for apprenticeships, or of | 21 | | other mutual aid or protection in connection with employment, | 22 | | including apprenticeships or applications for apprenticeships. | 23 | | "Licensing agency" means a board, commission, committee, | 24 | | council, department, or officers, except a judicial officer, in | 25 | | this State or any political subdivision authorized to grant, | 26 | | deny, renew, revoke, suspend, annul, withdraw, or amend a |
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| 1 | | license or certificate of registration. | 2 | | "Limited data set" has the meaning ascribed to it under | 3 | | HIPAA, as described in 45 CFR 164.514(e)(2). | 4 | | "Labor organization" includes any organization, labor | 5 | | union, craft union, or any voluntary unincorporated | 6 | | association designed to further the cause of the rights of | 7 | | union labor that is constituted for the purpose, in whole or in | 8 | | part, of collective bargaining or of dealing with employers | 9 | | concerning grievances, terms or conditions of employment, or | 10 | | apprenticeships or applications for apprenticeships, or of | 11 | | other mutual aid or protection in connection with employment, | 12 | | including apprenticeships or applications for apprenticeships. | 13 | | "Managed care plan" means a plan that establishes, | 14 | | operates, or maintains a
network of health care providers that | 15 | | have entered into agreements with the
plan to provide health | 16 | | care services to enrollees where the plan has the
ultimate and | 17 | | direct contractual obligation to the enrollee to arrange for | 18 | | the
provision of or pay for services
through:
| 19 | | (1) organizational arrangements for ongoing quality | 20 | | assurance,
utilization review programs, or dispute | 21 | | resolution; or
| 22 | | (2) financial incentives for persons enrolled in the | 23 | | plan to use the
participating providers and procedures | 24 | | covered by the plan.
| 25 | | A managed care plan may be established or operated by any | 26 | | entity including
a licensed insurance company, hospital or |
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| 1 | | medical service plan, health
maintenance organization, limited | 2 | | health service organization, preferred
provider organization, | 3 | | third party administrator, or an employer or employee
| 4 | | organization.
| 5 | | "Minimum necessary" means HIPAA's standard for using, | 6 | | disclosing, and requesting protected health information found | 7 | | in 45 CFR 164.502(b) and 164.514(d). | 8 | | "Nontherapeutic purpose" means a purpose that is not | 9 | | intended to improve or preserve the life or health of the | 10 | | individual whom the information concerns. | 11 | | "Organized health care arrangement" has the meaning | 12 | | ascribed to it under HIPAA, as specified in 45 CFR 160.103. | 13 | | "Patient safety activities" has the meaning ascribed to it | 14 | | under 42 CFR 3.20. | 15 | | "Payment" has the meaning ascribed to it under HIPAA, as | 16 | | specified in 45 CFR 164.501. | 17 | | "Person" includes any natural person, partnership, | 18 | | association, joint venture, trust, governmental entity, public | 19 | | or private corporation, health facility, or other legal entity. | 20 | | "Protected health information" has the meaning ascribed to | 21 | | it under HIPAA, as specified in 45 CFR 164.103. | 22 | | "Research" has the meaning ascribed to it under HIPAA, as | 23 | | specified in 45 CFR 164.501. | 24 | | "State agency" means an instrumentality of the State of | 25 | | Illinois and any instrumentality of another state which | 26 | | pursuant to applicable law or a written undertaking with an |
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| 1 | | instrumentality of the State of Illinois is bound to protect | 2 | | the privacy of genetic information of Illinois persons. | 3 | | "Treatment" has the meaning ascribed to it under HIPAA, as | 4 | | specified in 45 CFR 164.501. | 5 | | "Use" has the meaning ascribed to it under HIPAA, as | 6 | | specified in 45 CFR 160.103, where context dictates. | 7 | | (Source: P.A. 95-927, eff. 1-1-09.)
| 8 | | (410 ILCS 513/20)
| 9 | | Sec. 20. Use of genetic testing information for insurance | 10 | | purposes.
| 11 | | (a) An insurer may not seek information derived from | 12 | | genetic testing for use
in connection with a policy of accident | 13 | | and health insurance. Except as
provided in subsection (c) (b) , | 14 | | an insurer that receives information derived from
genetic | 15 | | testing, regardless of the source of that information, may not | 16 | | use
the information for a nontherapeutic purpose as it
relates | 17 | | to a policy of accident and health insurance.
| 18 | | (b) An insurer shall not use or disclose protected health | 19 | | information that is genetic information for underwriting | 20 | | purposes. For purposes of this Section, "underwriting | 21 | | purposes" means, with respect to an insurer: | 22 | | (1) rules for, or determination of, eligibility | 23 | | (including enrollment and continued eligibility) for, or | 24 | | determination of, benefits under the plan, coverage, or | 25 | | policy (including changes in deductibles or other |
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| 1 | | cost-sharing mechanisms in return for activities such as | 2 | | completing a health risk assessment or participating in a | 3 | | wellness program); | 4 | | (2) the computation of premium or contribution amounts | 5 | | under the plan, coverage, or policy (including discounts, | 6 | | rebates, payments in kind, or other premium differential | 7 | | mechanisms in return for activities, such as completing a | 8 | | health risk assessment or participating in a wellness | 9 | | program); | 10 | | (3) the application of any pre-existing condition | 11 | | exclusion under the plan, coverage, or policy; and | 12 | | (4) other activities related to the creation, renewal, | 13 | | or replacement of a contract of health insurance or health | 14 | | benefits. | 15 | | "Underwriting purposes" does not include determinations of | 16 | | medical appropriateness where an individual seeks a benefit | 17 | | under the plan, coverage, or policy. | 18 | | This subsection (b) does not apply to insurers that are | 19 | | issuing a long-term care policy, excluding a nursing home fixed | 20 | | indemnity plan. | 21 | | (c) (b) An insurer may consider the results of genetic | 22 | | testing in connection
with a policy of accident and health | 23 | | insurance if the individual voluntarily
submits the results and | 24 | | the results are favorable to the individual.
| 25 | | (d) (c) An insurer that possesses information derived from | 26 | | genetic testing may
not release the information to a third |
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| 1 | | party, except as specified in this Act Section
30 .
| 2 | | (Source: P.A. 92-430, eff. 8-17-01.)
| 3 | | (410 ILCS 513/25)
| 4 | | Sec. 25. Use of genetic testing information by employers.
| 5 | | (a) An employer, employment agency, labor organization, | 6 | | and licensing agency shall treat genetic testing and genetic | 7 | | information in such a manner
that is consistent with the | 8 | | requirements of federal law, including but not
limited to the | 9 | | Genetic Information Nondiscrimination Act of 2008, the | 10 | | Americans with Disabilities Act, Title VII of the Civil Rights | 11 | | Act of 1964, the Family and Medical Leave Act of 1993, the | 12 | | Occupational Safety and Health Act of 1970, the Federal Mine | 13 | | Safety and Health Act of 1977, or the Atomic Energy Act of | 14 | | 1954.
| 15 | | (b) An employer may release genetic testing information | 16 | | only in accordance
with Sections 15 and 30 of this Act.
| 17 | | (c) An employer, employment agency, labor organization, | 18 | | and licensing agency shall not directly or indirectly do any of | 19 | | the following: | 20 | | (1) solicit, request, require or purchase genetic | 21 | | testing or genetic information of a person or a family | 22 | | member of the person, or administer a genetic test to a | 23 | | person or a family member of the person as a condition of | 24 | | employment, preemployment application, labor organization | 25 | | membership, or licensure; |
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| 1 | | (2) affect the terms, conditions, or privileges of | 2 | | employment, preemployment application, labor organization | 3 | | membership, or licensure, or terminate the employment, | 4 | | labor organization membership, or licensure of any person | 5 | | because of genetic testing or genetic information with | 6 | | respect to the employee or family member, or information | 7 | | about a request for or the receipt of genetic testing by | 8 | | such employee or family member of such employee; | 9 | | (3) limit, segregate, or classify employees in any way | 10 | | that would deprive or tend to deprive any employee of | 11 | | employment opportunities or otherwise adversely affect the | 12 | | status of the employee as an employee because of genetic | 13 | | testing or genetic information with respect to the employee | 14 | | or a family member, or information about a request for or | 15 | | the receipt of genetic testing or genetic information by | 16 | | such employee or family member of such employee; and | 17 | | (4) retaliate through discharge or in any other manner | 18 | | against any person alleging a violation of this Act or | 19 | | participating in any manner in a proceeding under this Act. | 20 | | (d) An agreement between a person and an employer,
| 21 | | prospective employer, employment agency, labor organization,
| 22 | | or licensing agency, or its employees, agents, or members
| 23 | | offering the person employment, labor organization membership,
| 24 | | licensure, or any pay or benefit in return for taking a genetic
| 25 | | test is prohibited. | 26 | | (e) An employer shall not use genetic information or
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| 1 | | genetic testing in furtherance of a workplace wellness program
| 2 | | benefiting employees unless (1) health or genetic services are | 3 | | offered by the employer, (2) the employee provides written | 4 | | authorization and informed consent in accordance with Section | 5 | | 30 of this Act, (3) only the employee or family member if the | 6 | | family member is receiving genetic services and the licensed | 7 | | health care professional or licensed genetic counselor | 8 | | involved in providing such services receive individually | 9 | | identifiable information concerning the results of such | 10 | | services, and (4) any individually identifiable information is | 11 | | only available for purposes of such services and shall not be | 12 | | disclosed to the employer except in aggregate terms that do not | 13 | | disclose the identity of specific employees. | 14 | | (f) Nothing in this Act shall be construed to prohibit | 15 | | genetic testing of an employee who requests a genetic test and
| 16 | | who provides written authorization and informed consent , in | 17 | | accordance with
Section 30 of this Act, from taking a genetic | 18 | | test for the
purpose of initiating a workers' compensation
| 19 | | claim under the Workers' Compensation Act. | 20 | | (g) A purchase of commercially and publicly available
| 21 | | documents, including newspapers, magazines, periodicals, and
| 22 | | books but not including medical databases or court records or
| 23 | | inadvertently requesting family medical history by an
| 24 | | employer, employment agency, labor organization, and licensing
| 25 | | agency does not violate this Act. | 26 | | (h) Nothing in this Act shall be construed to prohibit an |
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| 1 | | employer that conducts DNA analysis for law enforcement | 2 | | purposes as a forensic laboratory and that includes such | 3 | | analysis in the Combined DNA Index System pursuant to the | 4 | | federal Violent Crime Control and Law Enforcement Act of 1994 | 5 | | from requesting or requiring genetic testing or genetic | 6 | | information of such employer's employees, but only to the | 7 | | extent that such genetic testing or genetic information is used | 8 | | for analysis of DNA identification markers for quality control | 9 | | to detect sample contamination. | 10 | | (i) Nothing in this Act shall be construed to prohibit an | 11 | | employer from requesting or requiring genetic information to be | 12 | | used for genetic monitoring of the biological effects of toxic | 13 | | substances in the workplace, but only if (1) the employer | 14 | | provides written notice of the genetic monitoring to the | 15 | | employee; (2) the employee provides written authorization and | 16 | | informed consent under Section 30 of this Act or the genetic | 17 | | monitoring is required by federal or State law; (3) the | 18 | | employee is informed of individual monitoring results; (4) the | 19 | | monitoring is in compliance with any federal genetic monitoring | 20 | | regulations or State genetic monitoring regulations under the | 21 | | authority of the federal Occupational Safety and Health Act of | 22 | | 1970; and (5) the employer, excluding any health care provider, | 23 | | licensed health care professional , or health facility licensed | 24 | | genetic counselor that is involved in the genetic monitoring | 25 | | program, receives the results of the monitoring only in | 26 | | aggregate terms that do not disclose the identity of specific |
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| 1 | | employees. | 2 | | (j) Despite lawful acquisition of genetic testing or | 3 | | genetic information under subsections (e) through (i) of this | 4 | | Section, an employer, employment agency, labor organization, | 5 | | and licensing agency still may not use or disclose the genetic | 6 | | test or genetic information in violation of this Act. | 7 | | (k) Except as provided in subsections (e), (f), (h), and | 8 | | (i) of this Section, a person shall not knowingly sell to or | 9 | | interpret for an employer, employment agency, labor | 10 | | organization, or licensing agency, or its employees, agents, or | 11 | | members, a genetic test of an employee, labor organization | 12 | | member, or license holder, or of a prospective employee, | 13 | | member, or license holder. | 14 | | (Source: P.A. 95-927, eff. 1-1-09.)
| 15 | | (410 ILCS 513/30)
| 16 | | Sec. 30. Disclosure of person tested and test results.
| 17 | | (a) No person may disclose or be compelled to disclose the | 18 | | identity of any
person upon whom a genetic test is performed or | 19 | | the results of a genetic test
in a manner that permits | 20 | | identification of the subject of the test, except to
the | 21 | | following persons:
| 22 | | (1) The subject of the test or the subject's legally | 23 | | authorized
representative. This paragraph does not create | 24 | | a duty or obligation under
which a health care provider | 25 | | must notify the subject's spouse or legal guardian
of the |
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| 1 | | test results, and no such duty or obligation shall be | 2 | | implied. No civil
liability or criminal sanction under this | 3 | | Act shall
be imposed for any disclosure or nondisclosure of | 4 | | a test result to a spouse by
a physician acting in good | 5 | | faith under this paragraph. For the purpose of any
| 6 | | proceedings, civil or criminal, the good faith of any | 7 | | physician acting under
this paragraph shall be presumed.
| 8 | | (2) Any person designated in a specific written legally | 9 | | effective authorization for release release
of the test | 10 | | results executed by the subject of the test or the | 11 | | subject's
legally
authorized representative.
| 12 | | (3) An authorized agent or employee of a health | 13 | | facility or health care
provider if the health facility or | 14 | | health care provider itself is authorized to
obtain the | 15 | | test results, the agent or employee provides patient care, | 16 | | and the
agent or employee has a need to know the | 17 | | information in order to conduct the
tests or provide care | 18 | | or treatment.
| 19 | | (4) A health facility , or health care provider , or | 20 | | health care professional that procures, processes,
| 21 | | distributes, or uses:
| 22 | | (A) a human body part from a deceased person with | 23 | | respect to
medical information regarding that person; | 24 | | or
| 25 | | (B) semen provided prior to the effective date of | 26 | | this Act for the
purpose of artificial insemination.
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| 1 | | (5) Health facility staff committees for the purposes | 2 | | of conducting
program
monitoring, program evaluation, or | 3 | | service reviews.
| 4 | | (6) In the case of a minor under 18 years of age, the | 5 | | health care provider , health care professional, or health | 6 | | facility
who ordered the test shall make a reasonable | 7 | | effort to notify the minor's
parent or legal guardian if, | 8 | | in the professional judgment of the health care
provider, | 9 | | health care professional, or health facility, notification | 10 | | would be in the best interest of the minor and the
health | 11 | | care provider , health care professional, or health | 12 | | facility has first sought unsuccessfully to persuade the | 13 | | minor to
notify the parent or legal guardian or after a | 14 | | reasonable time after the minor
has agreed to notify the | 15 | | parent or legal guardian, the health care provider , health | 16 | | care professional, or health facility has
reason to believe | 17 | | that the minor has not made the notification. This | 18 | | paragraph
shall not
create a duty or obligation under which | 19 | | a health care provider , health care professional, or health | 20 | | facility must notify the
minor's parent or legal guardian | 21 | | of the test results, nor shall a duty or
obligation be | 22 | | implied. No civil liability or criminal sanction under this | 23 | | Act
shall be imposed for any notification or | 24 | | non-notification of a minor's test
result by a health care | 25 | | provider , health care professional, or health facility | 26 | | acting in good faith under this paragraph.
For the purpose |
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| 1 | | of any proceeding, civil or criminal, the good faith of any
| 2 | | health care provider , health care professional, or health | 3 | | facility acting under this paragraph shall be presumed.
| 4 | | (b) (7) All information and records held by a State agency , | 5 | | or local health
authority , or health oversight agency | 6 | | pertaining to genetic information shall be strictly | 7 | | confidential
and
exempt from copying and inspection under the | 8 | | Freedom of Information Act. The
information and records shall | 9 | | not be released or made public by the State
agency , or local | 10 | | health authority , or health oversight agency and shall not be | 11 | | admissible as evidence nor
discoverable in any action of any | 12 | | kind in any court or before any tribunal,
board, agency, or | 13 | | person and shall be treated in the same manner as the
| 14 | | information and those records subject to the provisions of Part | 15 | | 21 of
Article VIII of
the Code
of Civil Procedure except under | 16 | | the following circumstances:
| 17 | | (A) when made with the written consent of all | 18 | | persons to whom the
information pertains;
| 19 | | (B) when authorized by Section 5-4-3 of the Unified | 20 | | Code of Corrections;
| 21 | | (C) when made for the sole purpose of implementing | 22 | | the Newborn Metabolic Screening
Act and rules; or
| 23 | | (D) when made under the authorization of the | 24 | | Illinois Parentage Act of
1984.
| 25 | | Disclosure shall be limited to those who have a need to | 26 | | know the information,
and no additional disclosures may be |
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| 1 | | made.
| 2 | | (c) (b) Disclosure by an insurer in accordance with the | 3 | | requirements of the
Article XL of the Illinois Insurance Code | 4 | | shall be deemed compliance with this
Section.
| 5 | | (Source: P.A. 96-328, eff. 8-11-09.)
| 6 | | (410 ILCS 513/31 new) | 7 | | Sec. 31. Uses and disclosures for treatment, payment, and | 8 | | health care operations. Notwithstanding Sections 30 and 35 of | 9 | | this Act, a covered entity may, without a patient's consent: | 10 | | (1) use or disclose genetic information for its own | 11 | | treatment, payment, or health care operations; | 12 | | (2) disclose genetic information for treatment activities | 13 | | of a health care provider; | 14 | | (3) disclose genetic information to another covered entity | 15 | | or health care provider for the payment activities of the | 16 | | entity that receives the information; | 17 | | (4)
disclose genetic information to another covered entity | 18 | | for health care operations activities of the entity that | 19 | | receives the information, if each entity has or had a | 20 | | relationship with the individual who is the subject of the | 21 | | genetic information being requested, the genetic information | 22 | | pertains to such relationship, and the disclosure is for the | 23 | | purpose of (A) conducting quality assessment and improvement | 24 | | activities, including outcomes evaluation and development of | 25 | | clinical guidelines, provided that the obtaining of |
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| 1 | | generalizable knowledge is not the primary purpose of any | 2 | | studies resulting from such activities; patient safety | 3 | | activities; population-based activities relating to improving | 4 | | health or reducing health care costs, protocol development, | 5 | | case management, and care coordination, contacting of health | 6 | | care providers
and patients with information about treatment | 7 | | alternatives; and related functions that do not include | 8 | | treatment; (B) reviewing the competence or qualifications of | 9 | | health care professionals or health care providers, evaluating | 10 | | practitioner and provider performance, health plan | 11 | | performance, conducting training programs in which students, | 12 | | trainees, or practitioners in areas of health care learn under | 13 | | supervision to practice or improve their skills as health care | 14 | | providers, training of non-health care professionals, | 15 | | accreditation, certification, licensing, or credentialing | 16 | | activities; or (C) health care fraud and abuse detection or | 17 | | compliance; and | 18 | | (5) disclose genetic information to other participants in | 19 | | an organized health care arrangement in which the covered | 20 | | entity is also a participant for any health care operations | 21 | | activities of the organized health care arrangement. | 22 | | (410 ILCS 513/31.1 new) | 23 | | Sec. 31.1. Uses and disclosures for health oversight | 24 | | activities. | 25 | | (a) Notwithstanding Sections 30 and 35 of this Act, a |
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| 1 | | covered entity may disclose genetic information, without a | 2 | | patient's consent, to a health oversight agency for health | 3 | | oversight activities authorized by law, including audits, | 4 | | civil, administrative, or criminal investigations; | 5 | | inspections; licensure or disciplinary actions; civil | 6 | | administrative or criminal proceedings or actions; or other | 7 | | activities necessary for appropriate oversight of (i) the | 8 | | health care system; (ii) government benefit programs for which | 9 | | health information is relevant to beneficiary eligibility; | 10 | | (iii) entities subject to government regulatory programs for | 11 | | which health information is necessary for determining | 12 | | compliance with program standards; or (iv) entities subject to | 13 | | civil rights laws for which health information is necessary for | 14 | | determining compliance. | 15 | | (b) For purposes of the disclosures permitted by this | 16 | | Section, a health oversight activity does not include an | 17 | | investigation or other activity in which the individual is the | 18 | | subject of the investigation or activity and such investigation | 19 | | or other activity does not arise out of and is not directly | 20 | | related to (i) the receipt of health care; (ii) a claim for | 21 | | public benefits related to health; or (iii) qualification for, | 22 | | or receipt of, public benefits or services when a patient's | 23 | | health is integral to the claim for public benefits or | 24 | | services, except that, if a health oversight activity or | 25 | | investigation is conducted in conjunction with an oversight | 26 | | activity or investigation relating to a claim for public |
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| 1 | | benefits not related to health, the joint activity or | 2 | | investigation is considered a health oversight activity for | 3 | | purposes of this Section. | 4 | | (c) If a covered entity is also a health oversight agency, | 5 | | the covered entity may use genetic information for health | 6 | | oversight activities permitted by this Section. | 7 | | (410 ILCS 513/31.2 new) | 8 | | Sec. 31.2. Uses and disclosures for public health | 9 | | activities. Notwithstanding Sections 30 and 35 of this Act, | 10 | | genetic information may be disclosed without a patient's | 11 | | consent for public health activities and purposes to the | 12 | | Department, when the Department is authorized by law to collect | 13 | | or receive such information for the purpose of preventing or | 14 | | controlling disease, injury, or disability, including, but not | 15 | | limited to, the reporting of disease, injury, vital events such | 16 | | as birth or death, and the conduct of public health | 17 | | surveillance, public health investigations, and public health | 18 | | interventions. | 19 | | (410 ILCS 513/31.3 new) | 20 | | Sec. 31.3. Business associates. | 21 | | (a) Notwithstanding Sections 30 and 35 of this Act, a | 22 | | covered entity may, without a patient's consent, disclose a | 23 | | patient's genetic information to a business associate and may | 24 | | allow a business associate to create, receive, maintain, or |
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| 1 | | transmit protected health information on its behalf, if the | 2 | | covered entity obtains, through a written contract or other | 3 | | written agreement or arrangement that meets the applicable | 4 | | requirements of 45 CFR 164.504(e), satisfactory assurance that | 5 | | the business associate will appropriately safeguard the | 6 | | information. A covered entity is not required to obtain such | 7 | | satisfactory assurances from a business associate that is a | 8 | | subcontractor. | 9 | | (b) A business associate may disclose protected health | 10 | | information to a business associate that is a subcontractor and | 11 | | may allow the subcontractor to create, receive, maintain, or | 12 | | transmit protected health information on its behalf, if the | 13 | | business associate obtains satisfactory assurances, in | 14 | | accordance with 45 CFR 164.504(e)(1)(i), that the | 15 | | subcontractor will appropriately safeguard the information. | 16 | | (410 ILCS 513/31.4 new) | 17 | | Sec. 31.4. Record locator service to support HIE. Section | 18 | | 9.9 of the Mental Health and Developmental Disabilities | 19 | | Confidentiality Act is herein incorporated by reference. | 20 | | (410 ILCS 513/31.5 new) | 21 | | Sec. 31.5. Use and disclosure of information to an HIE.
| 22 | | Notwithstanding the provisions of Section 30 and 35 of this | 23 | | Act, a covered entity may, without a patient's consent, | 24 | | disclose the identity of any patient upon whom a test is |
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| 1 | | performed and such patient's genetic information from a | 2 | | patient's record to a HIE if the disclosure is a required or | 3 | | permitted disclosure to a business associate or is a disclosure | 4 | | otherwise required or permitted under this Act. An HIE may, | 5 | | without a patient's consent, use or disclose such information | 6 | | to the extent it is allowed to use or disclose such information | 7 | | as a business associate in compliance with 45 CFR 164.502(e) or | 8 | | for such other purposes as are specifically allowed under this | 9 | | Act. | 10 | | (410 ILCS 513/31.6 new) | 11 | | Sec. 31.6. Other disclosures. Nothing in this Act shall be | 12 | | construed (1) to limit the use of an HIE to facilitate | 13 | | disclosures permitted by this Act or (2) to allow for the | 14 | | disclosure of information from a patient's record to law | 15 | | enforcement or for law enforcement purposes. | 16 | | (410 ILCS 513/31.7 new) | 17 | | Sec. 31.7. Establishment and disclosure of limited data | 18 | | sets and de-identified information. | 19 | | (a) A covered entity may, without a genetic information | 20 | | test subject's consent, create, use, and disclose a limited | 21 | | data set using information subject to this Act or disclose | 22 | | information subject to this Act to a business associate for the | 23 | | purpose of establishing a limited data set. The creation, use, | 24 | | and disclosure of such a limited data set must comply with the |
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| 1 | | requirements set forth under HIPAA. | 2 | | (b) A covered entity may, without a genetic information | 3 | | test subject's consent, create, use, and disclose | 4 | | de-identified information using information subject to this | 5 | | Act or disclose information subject to this Act to a business | 6 | | associate for the purpose of de-identifying the information. | 7 | | The creation, use, and disclosure of such de-identified | 8 | | information must comply with the requirements set forth under | 9 | | HIPAA. A covered entity or a business associate may disclose | 10 | | information that is de-identified in accordance with HIPAA. | 11 | | (c) The recipient of de-identified information shall not | 12 | | re-identify de-identified information using any public or | 13 | | private data source. | 14 | | (410 ILCS 513/31.8 new) | 15 | | Sec. 31.8. HIE opt out. Section 9.6 of the Mental Health | 16 | | and Developmental Disabilities Confidentiality Act is | 17 | | incorporated herein by reference. In addition to the | 18 | | requirements set out in Section 9.6 of the Mental Health and | 19 | | Developmental Disabilities Confidentiality Act, at the time of | 20 | | a patient's first encounter for genetic testing with a health | 21 | | care provider, health care professional, or health facility | 22 | | that participates in an HIE, or, in the event of a medical | 23 | | emergency that makes it impossible, as soon thereafter as is | 24 | | practicable, the patient shall receive meaningful disclosure | 25 | | regarding the HIE in which the health care provider, health |
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| 1 | | care professional, or health facility participates and shall be | 2 | | afforded an opportunity to opt out of disclosure of the | 3 | | patient's health information through the HIE. | 4 | | (410 ILCS 513/31.9 new) | 5 | | Sec. 31.9. Research. Genetic information may be disclosed | 6 | | for research, in accordance with the requirements set forth | 7 | | under HIPAA. | 8 | | (410 ILCS 513/31.10 new) | 9 | | Sec. 31.10. Minimum necessary. When using or disclosing | 10 | | genetic-related information under this Act, a covered entity | 11 | | shall do so in accordance with the minimum necessary standard | 12 | | under HIPAA.
| 13 | | (410 ILCS 513/35)
| 14 | | Sec. 35. Disclosure by person to whom results have been | 15 | | disclosed. No
person to whom the results of a test have been | 16 | | disclosed
may disclose the test results to another person | 17 | | except as authorized under this Act
by Section 30 .
| 18 | | (Source: P.A. 90-25, eff. 1-1-98.)
| 19 | | (410 ILCS 513/40)
| 20 | | Sec. 40. Right of action.
| 21 | | (a) Any person aggrieved by a violation of this
Act
shall | 22 | | have a right of action in a State
circuit court or as a |
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| 1 | | supplemental claim in a federal district court against an | 2 | | offending party. A prevailing party may recover for each | 3 | | violation:
| 4 | | (1) Against any party who negligently violates a | 5 | | provision of this Act,
liquidated damages of $2,500 or
| 6 | | actual damages, whichever is greater.
| 7 | | (2) Against any party who intentionally or recklessly | 8 | | violates a
provision of this Act, liquidated
damages of | 9 | | $15,000 or actual damages, whichever is greater.
| 10 | | (3) Reasonable attorney's fees and costs, including | 11 | | expert witness fees and other litigation expenses.
| 12 | | (4) Such other relief, including an injunction, as the | 13 | | State or federal court may deem
appropriate.
| 14 | | (b) Article XL of the Illinois Insurance Code shall provide | 15 | | the exclusive
remedy for violations of Section 30 by insurers.
| 16 | | (c) Notwithstanding any provisions of the law to the
| 17 | | contrary, any person alleging a violation of subsection (a) of | 18 | | Section 15, subsection (b)
of Section 25, Section 30, Section | 19 | | 31, or Section 35 of this Act shall have a right of action in a
| 20 | | State circuit court or as a supplemental claim in a federal
| 21 | | district court to seek a preliminary injunction preventing the
| 22 | | release or disclosure of genetic testing or genetic information
| 23 | | pending the final resolution of any action under this Act. | 24 | | (Source: P.A. 95-927, eff. 1-1-09.)
| 25 | | Section 20. The Unified Code of Corrections is amended by |
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| 1 | | changing Sections 3-8-2 and 3-10-2 as follows:
| 2 | | (730 ILCS 5/3-8-2) (from Ch. 38, par. 1003-8-2)
| 3 | | Sec. 3-8-2. Social Evaluation; physical examination; | 4 | | HIV/AIDS. | 5 | | (a) A social evaluation shall be made of a
committed | 6 | | person's medical, psychological, educational and vocational | 7 | | condition
and history, including the use of alcohol and other | 8 | | drugs, the
circumstances of his offense, and such other | 9 | | information as the Department
may determine. The committed | 10 | | person shall be assigned to an institution or
facility in so | 11 | | far as practicable in accordance with the social evaluation.
| 12 | | Recommendations shall be made for medical, dental, | 13 | | psychiatric,
psychological and social service treatment.
| 14 | | (b) A record of the social evaluation shall be entered in | 15 | | the committed
person's master record file and shall be | 16 | | forwarded to the institution or
facility to which the person is | 17 | | assigned.
| 18 | | (c) Upon admission to a correctional institution each | 19 | | committed person
shall be given a physical examination. If he | 20 | | is suspected of having a
communicable disease that in the | 21 | | judgment of the Department medical
personnel requires medical | 22 | | isolation, the committed person shall remain in
medical | 23 | | isolation until it is no longer deemed medically necessary. | 24 | | (d) Upon arrival at a reception and classification center | 25 | | or an inmate's final destination, the Department must provide |
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| 1 | | the committed person with appropriate information in writing, | 2 | | verbally, by video or other electronic means concerning HIV and | 3 | | AIDS. The Department shall develop the informational materials | 4 | | in consultation with the Department of Public Health. At the | 5 | | same time, the Department also must offer the
committed person | 6 | | the option of being tested, with no copayment, for infection | 7 | | with human immunodeficiency virus (HIV). Pre-test information | 8 | | shall be provided to the committed person and informed consent | 9 | | obtained as required in subsection (q) (d) of Section 3 and | 10 | | Section 5 of the AIDS Confidentiality Act. The Department may | 11 | | conduct opt-out HIV testing as defined in Section 4 of the AIDS | 12 | | Confidentiality Act. If the Department conducts opt-out HIV | 13 | | testing, the Department shall place signs in English, Spanish | 14 | | and other languages as needed in multiple, highly visible | 15 | | locations in the area where HIV testing is conducted informing | 16 | | inmates that they will be tested for HIV unless they refuse, | 17 | | and refusal or acceptance of testing shall be documented in the | 18 | | inmate's medical record. The Department shall follow | 19 | | procedures established by the Department of Public Health to | 20 | | conduct HIV testing and testing to confirm positive HIV test | 21 | | results. All testing must be conducted by medical personnel, | 22 | | but pre-test and other information may be provided by committed | 23 | | persons who have received appropriate training. The | 24 | | Department, in conjunction with the Department of Public | 25 | | Health, shall develop a plan that complies with the AIDS | 26 | | Confidentiality Act to deliver confidentially all positive or |
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| 1 | | negative HIV test results to inmates or former inmates. Nothing | 2 | | in this Section shall require the Department to offer HIV | 3 | | testing to an inmate who is known to be infected with HIV, or | 4 | | who has been tested for HIV within the previous 180 days and | 5 | | whose documented HIV test result is available to the Department | 6 | | electronically. The
testing provided under this subsection (d) | 7 | | shall consist of a test approved by the Illinois Department of | 8 | | Public Health to determine the presence of HIV infection, based | 9 | | upon recommendations of the United States Centers for Disease | 10 | | Control and Prevention. If the test result is positive, a | 11 | | reliable supplemental test based upon recommendations of the | 12 | | United States Centers for Disease Control and Prevention shall | 13 | | be
administered.
| 14 | | (Source: P.A. 97-244, eff. 8-4-11; 97-323, eff. 8-12-11; | 15 | | 97-813, eff. 7-13-12.)
| 16 | | (730 ILCS 5/3-10-2) (from Ch. 38, par. 1003-10-2)
| 17 | | Sec. 3-10-2. Examination of Persons Committed to the | 18 | | Department of Juvenile Justice.
| 19 | | (a) A person committed to the Department of Juvenile | 20 | | Justice shall be examined in
regard to his medical, | 21 | | psychological, social, educational and vocational
condition | 22 | | and history, including the use of alcohol and other drugs,
the | 23 | | circumstances of his offense and any other
information as the | 24 | | Department of Juvenile Justice may determine.
| 25 | | (a-5) Upon admission of a person committed to the |
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| 1 | | Department of Juvenile Justice, the Department of Juvenile | 2 | | Justice must provide the person with appropriate information | 3 | | concerning HIV and AIDS in writing, verbally, or by video or | 4 | | other electronic means. The Department of Juvenile Justice | 5 | | shall develop the informational materials in consultation with | 6 | | the Department of Public Health. At the same time, the | 7 | | Department of Juvenile Justice also must offer the person the | 8 | | option of being tested, at no charge to the person, for | 9 | | infection with human immunodeficiency virus (HIV). Pre-test | 10 | | information shall be provided to the committed person and | 11 | | informed consent obtained as required in subsection (q) (d) of | 12 | | Section 3 and Section 5 of the AIDS Confidentiality Act. The | 13 | | Department of Juvenile Justice may conduct opt-out HIV testing | 14 | | as defined in Section 4 of the AIDS Confidentiality Act. If the | 15 | | Department conducts opt-out HIV testing, the Department shall | 16 | | place signs in English, Spanish and other languages as needed | 17 | | in multiple, highly visible locations in the area where HIV | 18 | | testing is conducted informing inmates that they will be tested | 19 | | for HIV unless they refuse, and refusal or acceptance of | 20 | | testing shall be documented in the inmate's medical record. The | 21 | | Department shall follow procedures established by the | 22 | | Department of Public Health to conduct HIV testing and testing | 23 | | to confirm positive HIV test results. All testing must be | 24 | | conducted by medical personnel, but pre-test and other | 25 | | information may be provided by committed persons who have | 26 | | received appropriate training. The Department, in conjunction |
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| 1 | | with the Department of Public Health, shall develop a plan that | 2 | | complies with the AIDS Confidentiality Act to deliver | 3 | | confidentially all positive or negative HIV test results to | 4 | | inmates or former inmates. Nothing in this Section shall | 5 | | require the Department to offer HIV testing to an inmate who is | 6 | | known to be infected with HIV, or who has been tested for HIV | 7 | | within the previous 180 days and whose documented HIV test | 8 | | result is available to the Department electronically. The
| 9 | | testing provided under this subsection (a-5) shall consist of a | 10 | | test approved by the Illinois Department of Public Health to | 11 | | determine the presence of HIV infection, based upon | 12 | | recommendations of the United States Centers for Disease | 13 | | Control and Prevention. If the test result is positive, a | 14 | | reliable supplemental test based upon recommendations of the | 15 | | United States Centers for Disease Control and Prevention shall | 16 | | be
administered. | 17 | | Also upon admission of a person committed to the Department | 18 | | of Juvenile Justice, the Department of Juvenile Justice must | 19 | | inform the person of the Department's obligation to provide the | 20 | | person with medical care.
| 21 | | (b) Based on its examination, the Department of Juvenile | 22 | | Justice may exercise the following
powers in developing a | 23 | | treatment program of any person committed to the Department of | 24 | | Juvenile Justice:
| 25 | | (1) Require participation by him in vocational, | 26 | | physical, educational
and corrective training and |
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| 1 | | activities to return him to the community.
| 2 | | (2) Place him in any institution or facility of the | 3 | | Department of Juvenile Justice.
| 4 | | (3) Order replacement or referral to the Parole and | 5 | | Pardon Board as
often as it deems desirable. The Department | 6 | | of Juvenile Justice shall refer the person to the
Parole | 7 | | and Pardon Board as required under Section 3-3-4.
| 8 | | (4) Enter into agreements with the Secretary of Human | 9 | | Services and
the Director of Children and Family
Services, | 10 | | with courts having probation officers, and with private | 11 | | agencies
or institutions for separate care or special | 12 | | treatment of persons subject
to the control of the | 13 | | Department of Juvenile Justice.
| 14 | | (c) The Department of Juvenile Justice shall make periodic | 15 | | reexamination of all persons
under the control of the | 16 | | Department of Juvenile Justice to determine whether existing
| 17 | | orders in individual cases should be modified or continued. | 18 | | This
examination shall be made with respect to every person at | 19 | | least once
annually.
| 20 | | (d) A record of the treatment decision including any | 21 | | modification
thereof and the reason therefor, shall be part of | 22 | | the committed person's
master record file.
| 23 | | (e) The Department of Juvenile Justice shall by certified | 24 | | mail, return receipt requested,
notify the parent, guardian or | 25 | | nearest relative of any person committed to
the Department of | 26 | | Juvenile Justice of his physical location and any change |
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| 1 | | thereof.
| 2 | | (Source: P.A. 97-244, eff. 8-4-11; 97-323, eff. 8-12-11; | 3 | | 97-813, eff. 7-13-12.)
| 4 | | Section 25. The County Jail Act is amended by changing | 5 | | Section 17.10 as follows: | 6 | | (730 ILCS 125/17.10) | 7 | | Sec. 17.10. Requirements in connection with HIV/AIDS. | 8 | | (a) In each county other than Cook, during the medical | 9 | | admissions exam, the warden of the jail, a correctional officer | 10 | | at the jail, or a member of the jail medical staff must provide | 11 | | the prisoner with appropriate written information concerning | 12 | | human immunodeficiency virus (HIV) and acquired | 13 | | immunodeficiency syndrome (AIDS). The Department of Public | 14 | | Health and community-based organizations certified to provide | 15 | | HIV/AIDS testing must provide these informational materials to | 16 | | the warden at no cost to the county. The warden, a correctional | 17 | | officer, or a member of the jail medical staff must inform the | 18 | | prisoner of the option of being tested for infection with HIV | 19 | | by a certified local community-based agency or other available | 20 | | medical provider at no charge to the prisoner. | 21 | | (b) In Cook County, during the medical admissions exam, an | 22 | | employee of the Cook County Health & Hospitals System must | 23 | | provide the prisoner with appropriate information in writing, | 24 | | verbally or by video or other electronic means concerning human |
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| 1 | | immunodeficiency virus (HIV) and acquired immunodeficiency | 2 | | syndrome (AIDS) and must also provide the prisoner with option | 3 | | of testing for infection with HIV or any other identified | 4 | | causative agent of AIDS, as well as counseling in connection | 5 | | with such testing. The Cook County Health & Hospitals System | 6 | | may provide the inmate with opt-out human immunodeficiency | 7 | | virus (HIV) testing, as defined in Section 4 of the AIDS | 8 | | Confidentiality Act, unless the inmate refuses. If opt-out HIV | 9 | | testing is conducted, the Cook County Health & Hospitals System | 10 | | shall place signs in English, Spanish, and other languages as | 11 | | needed in multiple, highly visible locations in the area where | 12 | | HIV testing is conducted informing inmates that they will be | 13 | | tested for HIV unless they refuse, and refusal or acceptance of | 14 | | testing shall be documented in the inmate's medical record. | 15 | | Pre-test information shall be provided to the inmate and | 16 | | informed consent obtained from the inmate as required in | 17 | | subsection (q) (d) of Section 3 and Section 5 of the AIDS | 18 | | Confidentiality Act. The Cook County Health & Hospitals System | 19 | | shall follow procedures established by the Department of Public | 20 | | Health to conduct HIV testing and testing to confirm positive | 21 | | HIV test results. All aspects of HIV testing shall comply with | 22 | | the requirements of the AIDS Confidentiality Act, including | 23 | | delivery of test results, as determined by the Cook County | 24 | | Health & Hospitals System in consultation with the Illinois | 25 | | Department of Public Health. Nothing in this Section shall | 26 | | require the Cook County Health & Hospitals System to offer HIV |
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| 1 | | testing to inmates who are known to be infected with HIV. The | 2 | | Department of Public Health and community-based organizations | 3 | | certified to provide HIV/AIDS testing may provide these | 4 | | informational materials to the Bureau at no cost to the county. | 5 | | The testing provided under this subsection (b) shall consist of | 6 | | a test approved by the Illinois Department of Public Health to | 7 | | determine the presence of HIV infection, based upon | 8 | | recommendations of the United States Centers for Disease | 9 | | Control and Prevention. If the test result is positive, a | 10 | | reliable supplemental test based upon recommendations of the | 11 | | United States Centers for Disease Control and Prevention shall | 12 | | be administered. | 13 | | (c) In each county, the warden of the jail must make | 14 | | appropriate written information concerning HIV/AIDS available | 15 | | to every visitor to the jail. This information must include | 16 | | information concerning persons or entities to contact for local | 17 | | counseling and testing. The Department of Public Health and | 18 | | community-based organizations certified to provide HIV/AIDS | 19 | | testing must provide these informational materials to the | 20 | | warden at no cost to the office of the county sheriff. | 21 | | (d) Implementation of this Section is subject to | 22 | | appropriation.
| 23 | | (Source: P.A. 97-244, eff. 8-4-11; 97-323, eff. 8-12-11; | 24 | | 97-813, eff. 7-13-12.) | 25 | | Section 30. The Code of Civil Procedure is amended by |
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| 1 | | changing Section 8-802 as follows:
| 2 | | (735 ILCS 5/8-802) (from Ch. 110, par. 8-802)
| 3 | | Sec. 8-802. Physician and patient. No physician or surgeon | 4 | | shall be
permitted to disclose any information he or she may | 5 | | have acquired in
attending any patient in a professional | 6 | | character, necessary to enable him
or her professionally to | 7 | | serve the patient, except only (1) in trials for
homicide when | 8 | | the disclosure relates directly to the fact or immediate
| 9 | | circumstances of the homicide, (2) in actions, civil or | 10 | | criminal, against
the physician for malpractice, (3) with the | 11 | | expressed consent of the
patient, or in case of his or her | 12 | | death or disability, of his or her
personal representative or | 13 | | other person authorized to sue for personal
injury or of the | 14 | | beneficiary of an insurance policy on his or her life,
health, | 15 | | or physical condition, or as authorized by Section 8-2001.5, | 16 | | (4) in all actions brought by or against the
patient, his or | 17 | | her personal representative, a beneficiary under a policy
of | 18 | | insurance, or the executor or administrator of his or her | 19 | | estate wherein
the patient's physical or mental condition is an | 20 | | issue, (5) upon an issue
as to the validity of a document as a | 21 | | will of the patient, (6) in any
criminal action where the | 22 | | charge is either first degree murder by abortion,
attempted | 23 | | abortion or abortion, (7) in actions, civil or criminal, | 24 | | arising
from the filing of a report in compliance with the | 25 | | Abused and Neglected
Child Reporting Act, (8) to any |
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| 1 | | department, agency, institution
or facility which has custody | 2 | | of the patient pursuant to State statute
or any court order of | 3 | | commitment, (9) in prosecutions where written
results of blood | 4 | | alcohol tests are admissible pursuant to Section 11-501.4
of | 5 | | the Illinois Vehicle Code, (10) in prosecutions where written
| 6 | | results of blood alcohol tests are admissible under Section | 7 | | 5-11a of the
Boat Registration and Safety Act,
(11) in criminal | 8 | | actions arising from the filing of a report of suspected
| 9 | | terrorist offense in compliance with Section 29D-10(p)(7) of | 10 | | the Criminal Code
of 2012, or (12) upon the issuance of a | 11 | | subpoena pursuant to Section 38 of the Medical Practice Act of | 12 | | 1987; the issuance of a subpoena pursuant to Section 25.1 of | 13 | | the Illinois Dental Practice Act; the issuance of a subpoena | 14 | | pursuant to Section 22 of the Nursing Home Administrators | 15 | | Licensing and Disciplinary Act; or the issuance of a subpoena | 16 | | pursuant to Section 25.5 of the Workers' Compensation Act , or | 17 | | (13) to or through a health information exchange, as that term | 18 | | is defined in Section 2 of the Mental Health and Developmental | 19 | | Disabilities Confidentiality Act, in accordance with State or | 20 | | federal law .
| 21 | | In the event of a conflict between the application of this | 22 | | Section
and the Mental Health and Developmental Disabilities | 23 | | Confidentiality
Act to a specific situation, the provisions of | 24 | | the Mental Health and
Developmental Disabilities | 25 | | Confidentiality Act shall control.
| 26 | | (Source: P.A. 97-18, eff. 6-28-11; 97-623, eff. 11-23-11; |
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| 1 | | 97-813, eff. 7-13-12; 97-1150, eff. 1-25-13.)
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