(410 ILCS 460/131-15)
Sec. 131-15. Grants; eligibility standards. (a) The Department shall do the following: (1)(A) Develop application criteria and standards of |
| eligibility for groups or organizations who apply for funds under the program.
|
|
(B) Make available grants to groups and organizations
|
| who meet the eligibility standards set by the Department. However:
|
|
(i) the highest priority for grants shall be
|
| accorded to established sickle cell disease community-based organizations throughout Illinois; and
|
|
(ii) priority shall also be given to ensuring the
|
| establishment of sickle cell disease centers in underserved areas that have a higher population of sickle cell disease patients.
|
|
(2) Determine the maximum amount available for each
|
| grant provided under subparagraph (B) of paragraph (1).
|
|
(3) Determine policies for the expiration and renewal
|
| of grants provided under subparagraph (B) of paragraph (1).
|
|
(4) Require that all grant funds be used for the
|
| purpose of prevention, care, and treatment of sickle cell disease or for educational programs concerning the disease. Grant funds shall be used for one or more of the following purposes:
|
|
(A) Assisting in the development and expansion of
|
| care for the treatment of individuals with sickle cell disease, particularly for adults, including the following types of care:
|
|
(i) Self-administered care.
(ii) Preventive care.
(iii) Home care.
(iv) Other evidence-based medical procedures
|
| and techniques designed to provide maximum control over sickling episodes typical of occurring to an individual with the disease.
|
|
(B) Increasing access to health care for
|
| individuals with sickle cell disease.
|
|
(C) Establishing additional sickle cell disease
|
|
(D) Increasing access to mental health resources
|
| and pain management therapies for individuals with sickle cell disease.
|
|
(E) Providing counseling to any individual, at no
|
| cost, concerning sickle cell disease and sickle cell trait, and the characteristics, symptoms, and treatment of the disease.
|
|
(i) The counseling described in this
|
| subparagraph (E) may consist of any of the following:
|
|
(I) Genetic counseling for an individual
|
| who tests positive for the sickle cell trait.
|
|
(II) Psychosocial counseling for an
|
| individual who tests positive for sickle cell disease, including any of the following:
|
|
(aa) Social service counseling.
(bb) Psychological counseling.
(cc) Psychiatric counseling.
(5) Develop a sickle cell disease educational
|
| outreach program that includes the dissemination of educational materials to the following concerning sickle cell disease and sickle cell trait:
|
|
(A) Medical residents.
(B) Immigrants.
(C) Schools and universities.
(6) Adopt any rules necessary to implement the
|
|
(b) The Department may contract with an entity to
implement the sickle cell disease educational outreach program
described in paragraph (5) of subsection (a).
(Source: P.A. 102-4, eff. 4-27-21.)
|